YOUR ACTION/VOICE (Advocacy) IS NEEDED!
Federal Level Policy/Advocacy:
Did you know that three bills have been introduced in the US Congress this year about sickle cell disease? This web page has information about them. An “Action button” allows individuals to input their details and customize a statement/letter to their legislators.
This resource was developed in collaboration with SCDAA and SickCells but ultimately decided to house it at Leavitt Partners SCD webpage. Leavitt Partners has been working with Dr. Brett Giroir, who made sickle cell disease a policy priority when he was Assistant Secretary of HHS.
LocaL LeveL Policy/Advocacy:
Don't forget to keep the momentum and conversations going with your Illinois state representatives, elected officials, mayors and senators.
We need YOUR VOICE and help in ensuring that your Illinois State Senator & representatives know what legislation for Sickle Cell Disease would mean to you and your loved one with Sickle Cell Disease!
What do we need you to do? Call, email or meet with your state senator, and other elected officials and let them know your personal story and why the Sickle Cell Prevention, Care, and Treatment Program Act is important and needs full appropriations of funding!
Click the link below and type in your home address to find your elected officials.