Your Monthly Update from NCDSA

Volume 2 Issue 6 | June 2021

Free Transition to Pre-K Series...there's still time to participate

Is your toddler turning three in the next year?
Do you know what comes after early intervention services?
Are you concerned about where your child will go to pre-school?

Join NCDSA and AFIE for the answers to your questions and concerns. You will create a vision for your child's education and learn about their educational rights and the responsibilities of the public school system.

Presented Virtually - Registration Required

Advocacy in Action

The Down Syndrome Organ Transplant Nondiscrimination Act, HB 642, affectionately known as Bethany’s Law, has passed the North Carolina House of Representatives and the North Carolina Senate. The bill will now be sent to Governor Cooper. Once signed into law, North Carolina will join 17 other states recognizing the rights of people with Down syndrome and other disabilities to become organ transplant recipients. Please email Donna Beckmann, NCDSA Advocacy and Outreach Director, about how you can join NCDSA's advocacy efforts benefiting people with Down syndrome.

Upcoming Social Activities

Advance Registration Required for all Events

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Calendar and Info

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Virtual events require advanced registration to access Zoom links for attending.

Down Syndrome Medical Interest Group-USA has published an updated Intellectual and Developmental Disability COVID-19 Vaccination Position Statement

The Arc Webinar: 6/24 2:00 pm How Marginalized Families Are Left Behind in Disability Education Services and How to Address It

NCCDD Webinar: 6/24 7:00 pm Navegando por la transición de la adolescencia a la edad adulta

Public Comment: Enhancing or Improving Home and Community-Based Services Through the American Rescue Plan Act

Apply for the FCC Program's Emergency Broadband Benefit

Volunteer Spotlight

Anne Marie LaLumia moved from New York to Hillsborough, North Carolina with the dream of someday owning a farm. That dream became a reality in 2007 when she established Strouds Creek Farm in the countryside outside of Hillsborough. Anne Marie has been a friend of the NCDSA for many years, opening her farm to the Down syndrome community. Along with her three daughters, Anne Marie welcomes our families to her farm for monthly Family Farm Days. Children of all ages can meet the goats, ducks, and chickens, ride the ponies, climb on the play structures, or sway in one of many hammocks on the property. Anne Marie loves sharing her farm and all it has to offer with NCDSA families - Thank You Anne Marie!

Want to make a difference at NCDSA - find out more...

The 2021 Summer Camp Directory: A Free Resource Guide for Families with Children who have Special Needs

Day camps
Residential camps
Listed by condition
Listed by county
Out of state camps

Download the Summer Camp Directory

Infant Brain Imaging Study for children 24 months and younger

Sexual Health Education Survey for parents of a child ages 14-25 with a disability

Accommodations at Work for individuals with intellectual disabilities ages 18-35

Improve Survey Forms Project for adults with IDD

Support NCDSA

NCDSA exists due the generosity of individuals and sponsors who share NCDSA's mission and vision for people with Down syndrome. Won't you join us as we work to improve the quality of life and healthcare outcomes for people with Down syndrome in North Carolina?

Make a Donation