|
From the Child Neurology Foundation and BioMarin: Help Improve Care for Children in Search of a Diagnosis
"BioMarin is proud to partner with the Child Neurology Foundation (CNF) to conduct a brief survey to understand caregivers' experiences on their journey to a diagnosis, with the goal of finding ways to shorten the diagnostic odyssey.
CNF will share anonymized information from this survey with health care providers, so they are better able to serve our community through what can sometimes be a very long process of getting a diagnosis. We are looking to get input from both those who have received a diagnosis and those who are still searching for a diagnosis
- We welcome participation from primary caregivers of children with neurologic conditions.
- This survey should take less than 5 minutes to complete.
- Only one survey should be completed for each child.
- Children under the age of 18 should not complete this survey. Instead, an adult should complete this survey on their behalf.
We respect your privacy and all information obtained from this survey will be presented in summary form, grouped with other responses so that no one individual can be identified.
You can access the survey here
Thank you for supporting this research, this survey opportunity will close August 19th."
|
