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Dear CanChild,
Welcome to the October 27th edition of CanChild Today! We are excited to share information about a contest, research opportunities, CanChild member news, a featured resource, and summaries of recent publications.
Please feel free to share CanChild newsletter & resources with family, friends and colleagues.
They can subscribe to the CanChild Today! newsletter for free by registering here.
Our past issues are archived on the CanChild website and can be accessed here.
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Take photos of yourself, family, and children doing activities that you and your family enjoy most to showcase participation of individuals with cerebral palsy. Share your photos with CP-NET to enter into the contest. With your consent, photos may be used by CP-NET and the Ontario Brain Institute for websites, newsletters, and future materials!
Key details:
- Submit photos by November 4th by clicking the link below.
- Voting will open from November 4th- 11th.
- Prizes ($100.00 CAD Amazon gift cards) will be awarded to the top three photos!
Questions? Contact Alice Soper at sopera@mcmaster.ca.
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Post-Doctoral Fellowship Opportunity! | Drs. BJ Cunningham and Janis Oram Cardy are recruiting for a Post Doc Fellow to join their team. Applicants must have a Ph.D. in Speech-Language Pathology, Knowledge Translation or Implementation Science, Health Services Research, Psychology, or a closely related field. The successful applicant will possess research experience working with community end users (e.g., clinicians, families, policy makers) to identify applied research questions, and develop, trial, and implement novel tools and protocols to improve evidence-based practice. Interested? Click on the button below for more information on how to apply. |
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What is it all about?
The ENVISAGE-SP Program, co-developed by health services researchers, parents, and pediatric service providers introduces service providers to a set of modern concepts, which endorse a holistic, strengths-based, function-promoting, family-centred approach to children's health and development. Through a series of five workshops, ENVISAGE-SP offers ideas and provides tools/resources to apply these concepts in everyday practice with families.
How can you help?
- Review five ENVISAGE-SP online workshop materials
- Complete online surveys providing feedback on the acceptability, appropriateness, feasibility, usability, and utility of the ENVISAGE-SP program
- Participate in an optional online interview to help us develop the program further
Who can participate?
Service providers who work with children with neurodevelopmental disabilities in Canada and Australia.
If you are interested or would like more information about the study, please contact Debbie Hughes, Research Coordinator: envisage@mcmaster.ca.
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Do you want to participate in more CanChild research? Click the learn more button below to see which projects are recruiting today! | |
Keeping Up with CanChild Members! | |
On October 21, in Dublin, Peter Rosenbaum received an Honorary Fellowship from the Faculty of Paediatrics of the Royal College of Physicians of Ireland. Congratulations Peter! | | |
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About My Child is a caregiver report tool. It can be used to collect narrative descriptions of a child and family's strengths and to document concerns related to 20 areas of child development. For each area of concern, caregivers are asked to rate the impact the concern has on a child’s ability to participate in everyday activities. These responses can be scored to provide a measure of 'health complexity' ranging from 0 to 80. About My Child has been used in research and as a clinical intake tool to facilitate discussions about and document service needs. | |
Recent Publications by CanChild Members! | |
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Effectiveness of Interventions to Promote Physical, Psychological, and Socioeconomic Well-being Outcomes of Parents of Children With Neurodevelopmental Disabilities: Protocol for a Systematic Review.
It is well recognized that parents of children with neurodevelopmental disabilities can experience a considerable burden of care associated with their child’s disability, which can potentially impact their functioning and quality of life. Historically, the intervention efforts in pediatric rehabilitation have focused primarily on the child’s development and well-being and much less on parental and family well-being. The impact that a child’s diagnosis might have on parents remains unclear, and it is unknown how we can best support parents on their journey of childhood disability. It is, therefore, important to assess the published evidence on interventions for parents of children with neurodevelopmental disabilities so that clinicians can be better informed about the ways in which families can be supported. This paper presents the protocol for a systematic review of the effectiveness of interventions aiming to improve the physical, psychological, or socioeconomic well-being of parents of children with neurodevelopmental disabilities when compared to usual care or no care.
Authors: Novak-Pavlic, M., Rosenbaum, P., Gazzi Macedo, L., Di Rezze, B., Yong, J., Noori, A., & Hughes, D. (2022). JMIR Research Protocols, 11(7), e38686. doi: 10.2196/38686
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