Main Topic - A Day in the Life of a Care Coordinator ... Using the Medical Home Portal for resources and solutions
We had a great exercise using Zoom breakout rooms and small groups to find resources and information from the Medical Home Portal. Here are the cases:
- Mom and daughter are both medically complex. Mom cannot drive to appointments and they live in Stansbury Park near Tooele. They have appointments in SLC on a regular basis and need safe transportation that is not costly. They are both on Medicaid.
- A CPS caseworker called looking for help for a family who live in the Farmington area. They were called by the school because the child has not been attending. The family is Arabic and only speaks Arabic. The child is 16, and lives with Dwarfism and obesity. He is currently 300+ lbs and uses a wheelchair. The parents said his wheelchair has broken and they cannot get him out of the house into the community or to school at all. They are struggling with every aspect of his care and may need other supports like a proper bath chair, a nutritionist/coach, and someone to help them navigate the systems in their language.
- This family just moved from California to Utah, and their child has CP, tracheostomy, feeding tube and epilepsy. Uses a wheelchair and DME supplies. In CA they had all services including respite nursing available through Medical and the State regional center programs. They are looking to get her on services in Provo and want to know how to do that and what is available to them.
