Greetings!
Welcome to the March 25th issue of CanChild Today! In this edition, we are proud to share outputs from the stakeholder dialogue, research opportunities, and recent publications by some of our members!
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Our past issues are archived on the CanChild website and can be accessed here.
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Creating a Pan-Canadian Learning Health System for Neurodevelopmental Disorders!
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The effects of neurodevelopmental disorders tend to last for a person's entire lifetime. Consult McMaster Health Forum’s complete set of products (evidence brief, stakeholder dialogue summary, and video interviews) for stakeholder insights on creating a pan-Canadian learning health system for neurodevelopmental disorders.
The health forum dialogue was funded by the Azrieli Foundation in partnership with McMaster University. CanChild Director Dr. Jan Willem Gorter is one of the Steering Committee members.
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READYorNot™ BBD: Recruiting in Ontario, Alberta, New Brunswick and Nova Scotia!
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The READYorNot™ BBD Trial is looking for Ontario, Alberta, New Brunswick and Nova Scotia youth aged 15 to 17 with Autism, Cerebral Palsy, Epilepsy, FASD or Spina Bifida to help them study the MyREADY TransitionTM BBD App. The App was co-designed with patients and families to help youth prepare for the transition from pediatric to adult health care. Visit the project website to read the recruitment ad or watch the recruitment videos spearheaded by the project’s Patient and Family Advisory Council.
Now recruiting Ontario, Alberta, New Brunswick and Nova Scotia youth in participating clinics and on social media. We will be recruiting youth in Quebec soon. For more information, email Barb Galuppi (galuppi@mcmaster.ca).
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Registration is still open!
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Are you registered for CP-NET's free webinar, Hip Surveillance for Children with CP: Why do we do it? It’s happening on Monday, March 29th from 12:00 to 1:00 PM EDT.
Register now to participate in this informative discussion and come prepared with questions. We look forward to seeing you!
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Participate in Research: Mental Health of Kids with CP!
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Do you have a child with Cerebral Palsy (CP) between the ages of 8 and 18?
We are looking for kids with CP and one of their parents to participate in a new research study. Help us understand how pain and sleep impact the mental health of kids with CP!
You can now participate in this study entirely from your home!
- Kids will wear an Actigraph (small device) around their wrist and around their waist to measure their sleep and physical activity, as well as report on their pain, sleep, and mood each day for 7 days and nights.
- Kids and their parents will complete a mental health interview (over the phone), and fill out online questionnaires related to mental health, pain, sleep, and energy levels.
Participants will receive a $50 gift card.
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For more information, please contact the
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Recent Publications by CanChild Members!
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Tiered Approaches to Rehabilitation Services in Education Settings: Towards Developing an Explanatory Programme Theory (open access publication)
In this realist review, researchers systematically located and qualitatively analyzed 52 peer-reviewed papers to determine: What are the outcomes of successful tiered approaches to rehabilitation services for children and youth in education settings, in what circumstances do these services best occur, and how and why? They identified several contextual characteristics that created optimal environments for delivering tiered services. Positive outcomes for students, families, professionals, and systems occurred via three key mechanisms: (a) collaborative relationships, (b) authentic service delivery, and (c) reciprocal capacity building. This study is the first step in developing a theory of tiered rehabilitation services in education settings. Authors: VanderKaay S, Dix L, Rivard L, Missiuna C, Ng S, Pollock N, Sahagian Whalen S, Eisen I, Kyte C, Phoenix, M, Bennett S, Specht J, Kennedy J, McCauley D, Campbell W. Intl J Disabil Dev Educ. doi: 10.1080/1034912X.2021.1895975.
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Measure of early vision use: initial validation with parents of children with cerebral palsy
The Measure of Early Vision Use (MEVU) is the first assessment tool to describe 'how vision is used' in children with cerebral palsy. It is a brief and user-friendly tool proposed to complement existing practices such as clinical evaluations of vision. While MEVU provided a method to quantify basic visual abilities, it is important to note that parents in this study also provided comments to explain their child's score, reflecting that a child’s individuality should remain part of the assessment process. This study is the first step in an ongoing process of validation and psychometric testing. Authors: Deramore Denver B, Froude E, Rosenbaum P, Imms C. Disabil Rehabil. 2021 Mar 2:1-9. doi: 10.1080/09638288.2021.1890243.
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Sensitivity and Specificity of a Multimodal Approach for Concussion Assessment in Youth Athletes
The aim of this article was to compare the sensitivity and specificity of a multimodal assessment battery (balance, cognition, and upper and lower body strength) versus individual clinical measures at discriminating concussed youth athletes or non-injured controls when asymptomatic. The multimodal approach was statistically superior compared with an individual measures approach for balance and upper and lower body strength, but not for cognition. These results provide a foundation for understanding which domains of post-symptomatic assessment (cognition, balance, and strength) may be sensitive and specific to lasting deficits in youth athletes. Authors: Toong T, Wilson KE, Hunt AW, Scratch S, DeMatteo C, Reed N. J Sport Rehabil. 2021 Feb 4:1-10. doi: 10.1123/jsr.2020-0279.
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