Spring is here and nice weather is what we all need during this time! We want all of our patients and friends to know that ACPMP is here to support those impacted by COVID-19, directly and indirectly. If there is something you may need or a question you may have, please let us know and we will help to the best of our ability. ACPMP wants to assure you that while our staff are working remotely, we are still available for patient assistance.

ACPMP will continue to plan for the future and propel our research and educational initiatives in safe and effective ways.

We hope you will take a minute to catch up with us and learn about what we have planned in the coming months.

From all of us at the ACPMP Research Foundation , please stay safe and healthy!
News and Updates

During these critical times, the health and safety of those in our community is our top priority. Like you, we're closely monitoring the quickly developing effects of the Coronavirus (COVID-19) pandemic. We hope all of you are continuing to follow the suggestions on prevention and care expressed by the CDC and your doctors.

We are very cognizant that the dangers of this outbreak are not just physical. It is very important to protect ourselves from anxiety and depression that can be caused by fear, uncertainty, and social isolation. Therefore, ACPMP will continue to update you with helpful links as well as up-to-date medical and scientific information to help address the physical, mental, and emotional needs of our community.

Resources:

Please also continue to check our website  and social media pages for more updates as we share them.

Susan began volunteering with the ACPMP Research Foundation 10 years ago this Spring. Susan currently serves on ACPMP’s Board of Directors as Secretary and is also the IT Director with our volunteer staff. We are beyond grateful to her for her continued dedication towards ACPMP's mission; she is a vital member of our team. Thank you, Susan!

With these two grants, ACPMP has now issued $1,300,000 in the form of 27 promising research grants over the past 11 years designed to improve the diagnosis and treatment of Appendix Cancer and Pseudomyxoma Peritonei.

The following researchers will each receive a $50,000, two-year  research grant funded by ACPMP  and administered by the National Organization of Rare Disorders.

These grants are issued in memory of friends we lost to Appendix Cancer and/or PMP. 
Principal Investigator:  Oliver S. Eng, MD  
Institution:  The University of Chicago, Chicago, Illinois
Project Title:  Assessment of the Effects of HIPEC on the Genetic Landscape of Peritoneal Metastases from High Grade Appendiceal Neoplasms
This grant is issued in memory of Joseph Gouin, Carol Koch, Thomas “Tommy Tuesday” Czuprynski, Terrence Lippert, Cathy Gamino, Jay Branson, Jerry Maden, Stephen Faig, Joann Belczak, Gloria Delle Cese Ortwerth, Danielle DeVoe Godefroy and Michelle Burton.
Principal Investigator:   Kjersti Flatmark, MD, PhD
Institution:  Oslo University Hospital, Oslo, Norway
Project Title:  ctDNA for monitoring patients with Pseudomyxoma Peritonei
This grant is issued in memory of Mike Liguori, Alexander Dalis, Rick Dodson, George Haskin, Tammy Glawson, Karen Davis Redner, Jim Cain, Stephen Thiesfeld, Jay Verbos, Sharon Perry Delaney and Ray Ruliffson.




ACPMP will fund two $50,000, two-year grants in 2020 for scientific and/or clinical research studies of appendix cancer and pseudomyxoma peritonei. The RFP for this funding will be available soon and initial proposals are due in June of 2020.

  • Abstract deadline: June 2020
  • Full proposal invitations: August 2020
  • Full proposal deadline: October 2020
  • Award announcements: December 2020

The ACPMP Research Grant Program  is currently administered by the highly respected  National Organization for Rare Disorders (NORD).  Grant recipients are selected by the independent  NORD Medical Advisory Committee.

Information will soon be available on the  ACPMP website  or the NORD website at their  Request for Proposals page.  ACPMP will send out an email when the RFP is available and abstracts may be submitted.

Questions or requests for application forms may be directed to NORD at: (800)-999-NORD or  research@rarediseases.org .
Upcoming Events
As COVID-19 (coronavirus) impacts how people gather around the world, ACPMP will continue to evaluate whether or not to move forward with our upcoming events. We will update you when decisions to either maintain or postpone below events are solidified. As the situation unfolds, we will also share alternative ways to connect and join in on any fun virtually!

We're hoping to hold ACPMP's 14th Annual Father's Day Walk and 5K Run event on Saturday, June 20th at the scenic Ridley Creek State Park just outside of Philadelphia, PA. 

We will also share alternative ways to connect and join in on the fun virtually! Stay tuned for more details about a Virtual Walk/Run, how you can participate and ways to support ACPMP from the comfort and safety of your home should the event be postponed.

This event is held annually in memory of Dutch Culbertson, beloved father, husband and friend and has raised nearly $400,000 for AC/PMP research and education over the past 13 years!

Plans are underway for the 2nd Annual Joe Gouin Memorial Classic to tentatively be held on Saturday, August 1st, 2020 at Bedford Hills Golf Club: 6400 Jackman Rd, Temperance, MI.

The   Joe Gouin Memorial Classic Golf Outing   was held on August 10, 2019 at the Fallen Timber Fairways in Waterville, OH to honor Joe Gouin's memory. Thank you to all of our generous supporters, sponsors, donors, players and volunteers for making last year’s event such a huge success, raising $15,400!
ACPMP's Fall Symposium Series - Save The Dates

Save The Dates for our upcoming 2020 fall symposiums!

Given the current circumstances, we will continue to evaluate the situation and decide how to proceed with our educational symposiums, whether virtually or in person. Stay updated through our website and social media pages and know that we will also provide more details via email as we approach October.
Appendix Cancer Pseudomyxoma Peritonei Research Foundation acpmp.org