In this issue:
Announcing the 2018 Ambassador of the Year |
Federal task force wants to hear from you |
Become a support group leader this March | Social Security Administration looking for feedback on how they consider pain for disability benefits | Pediatric Pain Warrior retreat video released | and more
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Announcing the 2018 Joselynn Badmann Ambassador of the Year Award
It is with great pride and gratitude that we present the 2018 Joselynn Badmann Ambassador of the Year Award to Dawn Stancliff.
Read more.
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Don't wait... weigh in on federal pain management guidelines now
The Pain Management Best Practices Intra-agency Task Force has released its first draft of recommendations on pain management and is asking pain patients to weigh in by April 1.
Read more
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Apply to become a support group leader this March
U.S. Pain Foundation's Pain Connection program is hosting a support group leader training in March in San Francisco, CA.
Read more.
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Social Security Administration looking for feedback on how they consider pain for disability benefits
The Social Security Administration is asking for your help on how they should consider pain when they review benefit disability claims for Social Security Disability Insurance.
Read more
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Pediatric Pain Warrior retreat highlighted in new video
A new video highlights a weekend retreat to Disney and the launch of U.S. Pain's Pediatric Pain Warrior Program.
Read more.
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Rare Disease Day is Feb. 28
The National Organization of Rare Disorders is celebrating its yearly awareness day on Feb. 28. There are countless ways to get involved this year.
Read more.
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Second Points for Pain game rescheduled to Feb. 11
Points for Pain, a fundraiser for the Pediatric Pain Warrior Program, held its first game on Jan. 24; the second has been rescheduled to Feb. 11 due to inclement weather.
Read more.
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Pain Warrior of the Month:
Nancy Harris Bonk
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Location:
Buffalo, NY
Pain warrior role:
U.S. Pain advocate since 2014
Pain conditions:
Migraine disease, intracranial hypertension, and fibromyalgia.
Favorite tips for living with chronic pain:
Living with migraine, a neurological brain disease, can be overwhelming and frustrating but, accepting our diagnosis is important and doing so enables us to become educated and empowered patients!
Fun fact:
I love to bake and quilt!
Since 2014, Nancy has been an active ambassador, especially during Migraine and Headache Awareness Month, where she did everything from run a booth to pass out information information at events like Miles for Migraine. Nancy is a member of the Coalition for Headache and Migraine Patients and is helping host its first Retreat Migraine this April.
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Upcoming Events
- Feb. 5: Support group in Tucson, AZ (Pascua Yaqui Tribe); held weekly on Tuesdays
- Feb. 6: Support group in Tucson, AZ (Natural Healing Care Center)
- Feb. 7: Afternoon Pain Connection Live call
- Feb. 8: Support group in Arlington, MA
- Feb. 9: Ehlers-Danlos support group webinar featuring U.S. Pain Board Member Ellen Lenox Smith. (Register here.)
- Feb. 11: Points for Pain game in Glen Gardner, NJ, and support group in Rockville, MD
- Feb. 12: Support group in Concord, NH
- Feb. 13: Evening Pain Connection Live call and support group in Thousand Oaks, CA
- Feb. 20: Support groups in Middletown, CT, and Sacramento, CA
- Feb. 21: Advocacy webinar series: "The power of social media: Amplify key messages and reach legislators online." (Register here.)
- Feb. 22: Abilities Expo in Los Angeles, CA
- Feb. 23: Saturday Pain Connection Live call
- Feb. 27: Pediatric Pain Warrior webinar series: "Age is just a number: A pediatric pain warrior's tips." (Register here.)
- Feb. 28: Rare Disease Day
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