Las Vegas' NF Hope Concert Celebrates 10 Years of Raising Funds and Awareness for Neurofibromatosis

Since the inaugural event in 2011, the NF Hope Concert has grown by leaps and bounds, with more than $900,000 raised for neurofibromatosis research and advocacy. Now, for the first time, people around the world can attend the Las Vegas NF Hope Concert LIVE for an exclusive virtual performance like no other.

IQVIA Conducting New Research Study for Individuals with NF1 and Plexiform Neurofibromas


IQVIA, a healthcare research firm, is currently conducting a new research project measuring pain associated with plexiform neurofibromas. By participating, you will help researchers understand the complexity and pain associated with PNs, which may lead to new treatments.

DermResearch and NFlection Therapeutics Seeking Participants for Cutaneous Neurofibroma Clinical Trial


DermResearch and NFlection Therapeutics are currently seeking new participants to enroll in their clinical trial for a new topical drug treatment. This trial is to study a gel treatment for cutaneous neurofibromas.

Yale New Haven Hospital Opens New NF Clinic


With the hard work from Dr. Asher Marks and Dr. Frank Buono, the duo have helped found a new NF clinic at Yale New Haven Hospital. The clinic, led by Dr. Marks, will offer a multi-disciplinary team to provide exceptional, coordinated, world class care to neurocutaneous syndrome patients regionally, and contribute to the community nationally. 

What will come of Autumn? A girl, a disfiguring tumor, and a clinical trial that offers hope


After a plexiform tumor began to grow on her daughter's face, Lyndsay enrolled Autumn in a clinical trial to help stop the growth and progression. In recent months, the trial has given the NF1 community and Lyndsay something that has long been elusive: proven results and hope.

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The mission of the NF Network "is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
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