CARE Registry: Giving AAPI a Voice Through Research

Currently, AAPIs are among the least represented groups in scientific research. The goal of CARE is to overcome barriers to research participation and connect AAPIs to various types of research.

As of 10/31/2021, 7040 people have signed up to increase AAPI representation in research!
Click to learn more about CARE Registry
Some examples of potential research studies that CARE registry participants may be contacted about include:

  • Prevention or treatments for Alzheimer’s disease and related dementias
  • Health issues across the lifespan
  • Caregiving issues and improving the health and wellness of caregivers

If you haven't already, please consider enrolling in CARE at: https://careregistry.ucsf.edu/enroll-care

*CARE'S WEBSITE AND MATERIALS ARE AVAILABLE IN:
Samoan (Sāmoa)
CARE 30 Seconds Videos
Asian Cohort for Alzheimer’s Disease:
Involving the Asian Community in Research   

Saturday, November 6, 2021 @ 10:00 AM – 12:00 PM PDT

Join us to learn: 
  • Overview of Alzheimer’s disease 
  • Understanding clinical dementia studies: Fostering innovation in Alzheimer’s disease 
  • The dawn of an Alzheimer’s Cohort for Asian Americans 
  • Caregiver perspectives 
  • Inclusive representation in clinical trials  

Meeting ID: 850 3922 7594 
Passcode: 2223 

For more information, click here.

Questions? Call (669) 900-6833 (US) or (204) 272-7920 (Canada)
CARE Registry Informational Community Presentation Presented by the CARE Ambassadors

Saturday, November 13, 2021 @ 10:00 AM – 12:00 PM PDT

  • Come learn about how Alzheimer’s disease affects you, your family, and the AAPI community 
  • Learn how you can help us make a difference for your family and future generations  
  • Learn about opportunities to participate in research  
•••••
We will hold raffles for gift cards!

This event is presented in English.


Questions? Contact: careaapi@gmail.com
Healthy Aging in Vietnamese 

Saturday, November 13, 2021 @ 10:00 AM – 12:00 PM PDT

Presenters:  
  • Phung Vuong, Asian Resources, Inc. 
  • Tien Nguyen, MBA, University of California, Davis School of Medicine 
  • Hoang Truong, Alzheimer’s Association 

Join us to learn: 
  • Healthy aging in Vietnamese 
  • Know the 10 warning signs of dementia 

This event is presented in Vietnamese.


Questions? Contact Hanh Hoang at hhhoang@alz.org or (707) 755-7601

Alzheimer’s Association is a CARE community partner.  
 Somang Senior Resource Book Publication Event 

Saturday, November 13, 2021 @ 10:30 AM PDT
Lunch & a senior guide book will be provided.

Location: Berendo Street Baptist Church ( 남가주 새누리교회)  
975 S. Berendo St., Los Angeles, CA 90006 

This event is presented in Korean.

RSVP: (562) 977-4580 or somang@somangsociety.org 

Please RSVP as soon as possible, seats are limited. 

Somang Society is a CARE Community Partner.
SACHI (Society for Art and Cultural Heritage of India) Annual Event: Indian Botanical Medicines
in Early Modern Europe

Sunday, November 14, 2021 @ 2:00 PM PDT 

Free with Asian Art Museum admission and open to the public.  


*Advance registration recommended.
CARE Virtual Information Session  

Saturday, November 20, 2021 @ 11:00 AM – 12:00 PM PDT

Presenters:  
  • Araceli D. Antonio, MS, RN. Advisor for Philippine Nurses Association of America Foundation and Philippine Nurses Association of Northern California. CARE Community Advisory Board member.  
  • Jessica de Leon, MD. Assistant Professor, Memory and Aging Center, University of California San Francisco. 
  • Myka Lay, Research Analyst, CARE Registry 
  • Featuring guest speaker Deslynn Jaquias, Hawaii Native, podcaster, empowerment coach, previous dementia caregiver and social service coordinator for nursing care.

Join us to learn: 
  • What is the CARE registry? 
  • Importance of AAPI representation in research 

We will hold raffles for gift cards!

This event is presented in English.


Questions? Contact careaapi@gmail.com.
CARE Ambassador Program
The CARE Ambassador program is a newly created volunteer opportunity by the CARE Registry, open to high school students, college students, and recent undergrad graduates. Participating as a CARE Ambassador will help leverage community connections and assist the Asian American and Pacific Islander community to increase research participation and representation. Working as a CARE Ambassador will foster new learning experiences involving hosting virtual events, in-person tabling, and more depending on your capacity. CARE Ambassadors will also have the opportunity to gain skills in community outreach, data management, research, ethics, and team collaboration.

Upon completion of the program CARE Ambassadors will receive a certificate as well as gained knowledge from our online trainings.  
To apply scan the QR code.

After completion, you will be contacted shortly by our Ambassador team. 
Anonymous Online Form Available in 29 Languages to Report Violence Against AAPI Elders 
On September 4, 2021, in remembrance of the Bellingham Riots, National Asian Pacific Center on Aging (NAPCA) will introduce an online reporting form to describe occurrences of violence against older Asian American Pacific Islander (AAPI) community members. The in-language online report form will be fully anonymous and available in 29 AAPI languages. 

The form will be accessible on the NAPCA website.

NAPCA is a CARE Community Partner.
The Asian Cohort for Alzheimer’s Disease (ACAD)
is looking for volunteers!
Asians are among the fastest growing populations in the United States and Canada, yet they are underrepresented in Alzheimer’s disease research.

The ACAD study is a collaboration across multiple universities and community partners in the U.S. and Canada to better understand how genetics and lifestyle factors impact Alzheimer’s disease risk in Asian Americans and Asian Canadians. Dr. Van Park (CARE Principal Investigator) is one of the principal investigators for ACAD, and UCSF is one of the recruitment sites. This study will be looking for healthy volunteers, people concerned about their memory and thinking, and people diagnosed with Alzheimer's disease who are 60 years old or older. 

Edie Yau (Alzheimer's Association) and Quyen Vuong (International Children Assistance Network) (both CARE Community Advisory Board members) also serve on the ACAD Community Advisory Board. Joyce Cheng, Executive Director of the Chinese Community Health Resource Center (also a CARE Community Advisory Board member), is one of ACAD's community partners.

Visit ACAD study website or the animated videos in EnglishCantoneseMandarinKorean, and Vietnamese for more information.

If you are interested in participating in the study,
fill out this online form or email acad@ucsf.edu.
Coming Soon!
The Vietnamese Insights into Aging Program (VIP)
The Vietnamese Insights into Aging Program (VIP) is a brand-new study funded by the National Institute on Aging and is a collaboration between academic universities (UC Davis and UCSF) and community-based organizations (ARI and ICAN). The purpose of this study is to better understand factors that impact thinking and memory in the Vietnamese American community. Dr. Oanh Meyer (CARE Co-Investigator) is the Principal Investigator (PI) of VIP and Dr. Van Ta Park (CARE PI) along with several CARE Co-Investigators are also involved in VIP.

In November 2021, we will be recruiting volunteers who: 
  • identify as Vietnamese American 
  • are 65 years or older 
  • reside in Northern California 
  • can speak either English or Vietnamese
  • have immigrated from Vietnam 

All participants will be compensated for their time and effort.  

If you are interested in participating in the VIP study, 
Bay Area residents, contact us at ucsfvip@ucsf.edu or (408) 609-9144 
Sacramento residents, contact us at vip@ucdavis.edu or (916) 432-4197

CARE at FAHM JAM
San Jose’s Fil-Am Cultural Celebration
We are thrilled that our team was able to participate in this year's FAHM JAM event at the Garden at the Flea in San Jose, CA! FAHM JAM is San Jose’s annual Filipino-American Cultural Celebration event, with this year's theme focusing on supporting Young Filipinx Professionals, Organizers, & Entrepreneurs. This event was a great way for us to celebrate Filipino History Month and connect with the community. We can't wait to be back next year! 
"It was a hard time. It was a struggle because the family was divided and I would say most of the siblings who were nurses were on my side and those non-medical were on the other side."
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