- COVID-19 RESOURCES
- VOLUNTEER OF THE MONTH
- YOU DID IT!
- TEAMCCF UPDATE
- VOLUNTEERS NEEDED
- UPCOMING EVENTS
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We know you rely on us for medically accurate and up-to-date information. CCF is here to help you navigate through this difficult time! We have been reviewing hundreds of sources to bring you the most relevant information regarding COVID-19 and cancer. We are very cognizant that the dangers of this outbreak are not just physical. It is important to protect ourselves from anxiety and depression that can be caused by fear, uncertainty, and social isolation. Therefore, we will be sending select periodic videos, links to other websites, and up-to-date medical and scientific information to help address the specific physical, mental, and emotional needs of our community. Visit CCF's
COVID-19 & Cholangiocarcinoma
page for resources and information.
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Live Webinar: Navigating Your Care in Uncertain Times
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Join us on Friday, April 3, 2020 at 5pm (EDT) for a Live Webinar featuring:
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Dr. Milind Javle
MD Anderson Cancer Center
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Dr. R. Kate (Katie) Kelley
University of California - San Francisco
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During these unprecedented times Dr. Javle and Dr. Kelley will answer your questions to help address the specific care, treatment, and access needs of our community during the COVID-19 pandemic.
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Mayo Clinic Q&A
podcast
: Dr. Gregory Poland, a Mayo Clinic infectious diseases expert, answers COVID-19 questions
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The information about the
COVID-19
pandemic changes rapidly, and it's hard to stay up to date with the latest information.
Dr. Poland discusses preventive measures to stop the spread of the virus, what to do if you do get sick, and the potential for effective treatments and a vaccine.
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Each month we will recognize those whose contributions inspire us and who demonstrate excellence in their service to others. This award was created to thank those outstanding individuals and to bring to light the immense efforts, time and resources that are generously given to the Foundation.
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Peggy works as a patient mentor with the CholangioConnect program.
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Peggy Barney loves to read, grow flowers, play the piano and create with needlepoint. She also loves spending time with her family. Peggy credits her family and strong faith in helping her accept her diagnosis over 4 ½ years ago. A cancer diagnosis is extremely difficult, and she counts a supportive husband and loving family as tremendous blessings.
Peggy shares her diagnosis came fairly quickly but involved symptoms most adults would tend to push aside - fatigue and loss of appetite, especially after recently having a knee replacement surgery. With her family’s encouragement, however, she sought additional testing.
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Boys enjoy the glow in the dark dancing at the Mother and Son Valentine's Dance.
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Carrie Ruiz planned a Mother and Son Valentine's Dance to benefit the Cholangiocarcinoma Foundation. After the initial brainstorm idea, Carrie quickly planned, organized and held the event all in only three weeks' time. The event was a complete sell-out at 250 attendees, and only due to the venue's capacity. Dancing, face painting, raffles, and photo booths were enjoyed by all
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Smiles all around as mothers and sons enjoy the valentine dance.
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Other upcoming events are the Chicago Half Marathon in September; the Philadelphia Marathon, Half Marathon, and 8k and the Indianapolis Marathon, Half Marathon and 5k in November. Join TeamCCF and let's raise money for the Foundation together.
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CCF is currently seeking contributors to our 'cholangio what?' blog. Bloggers write, edit, post and promote the content of the blog. If interested, please email
cindy.thomas@cholangiocarcinoma.org
.
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"The Quack Out
Cholangio 5k Run/Walk
to Crush Bile Duct Cancer has been rescheduled to Saturday, October 24, 2020, at the Hare Pavilion on the Wilmington Riverwalk in Wilmington, DE. The postponement was disappointing I am sure to you as it was to us, however, we now have even more time to make this event even more incredible.
We have over $1200 in prizes and raffle draws and so much more. Follow us on Facebook on Quack Out for details about the race starting Monday. We can't wait to see you on October 24!!"
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Brawl for a Cause
shares their mission, and Mark invites you to support his event benefiting the CCF on May 2nd.
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Sat, May 2nd, 2020
6:00 PM EDT
Southern Exchange Ballrooms
200 Peachtree St #206, Atlanta, GA
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Thanks to encouragement from my coworkers and family, I have decided to fight this year on May 2nd for a cause near and dear to my heart.
In May of 2018 my Mother was diagnosed with Cholangiocarcinoma, a rare cancer of the bile ducts. We were extremely scared and confused at first, considering the fact that little to no conclusive research has been done regarding this form of cancer. It is terrifying to research an illness affecting the person who gave you life that so little is known about. Only 8,000 people in the United States are diagnosed with Cholangiocarcinoma each year, so it is tough to find guidance and information about the disease. Despite our lack of knowledge, we had a plan as a family to fight against all odds and stick together. We know that where there’s a Will, there’s a way.
Our worries along with a plethora of questions were answered thanks to the Cholangiocarcinoma Foundation.
Because of them, my Mom was connected with the right doctors to help her begin the steps necessary for fighting this disease! A majority of the research done for this cancer is spearheaded by the Cholangiocarcinoma Foundation, and they have been instrumental in providing my Mom with the assistance and care she requires.
Almost two years have passed now, and despite countless ups and downs, my Mom is still fighting just as hard as before. Please help me by giving the Cholangiocarcinoma Foundation and myself your support.
No family should be confused and lost in the face of cancer.
Thank you!
Mark Rew
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