APF Virtual Educational Series Via Zoom; Ready for some FUN? This Saturday at Noon! The APF Pet Fashion Show!; Dr. Bonkovsky's Site Now Active - Winston-Salem, NC; Items on the APF Store!; Research Opportunities

August 6, 2020

Porphyria Post

APF Virtual Educational Series Via Zoom!

Join us....Virtually!

We are excited to share that the APF will be hosting several educational sessions via Zoom.

Topics will be tailored for each type of porphyria and many will include a porphyria expert.

Dates, times and topics are included below. Request the zoom link below and log on to join.

We hope that you can join us! Have an idea for a future session? Let us know.

Virtual Series Dates:

August 13, 2020 | 7:00PM EDT

Patient to Patient Resources – Acute Porphyrias

August 20, 2020 | 12:00PM EDT

Shadow Jumpers Kids <18

August 20, 2020 | 8:00 PM EDT

Shadow Jumpers Young Adults Ages 18-25

August 27, 2020 7:00 PM EDT

Shadow Jumpers Parents + Caregivers

October 8, 2020 | 7:00 PM EDT

Heme Basics – the science behind it all!

October 13, 2020 7:00 PM EDT

Nutrition and the Acute Porphyrias

E-Mail Edrin Williams (edrinw@porphyriafoundation.org) to receive the registration link for the specific session of your choice!

Dr. Bonkovsky's Site Now Active

Winston-Salem, NC

Active study sites now include:

Columbus, OH

Boston, MA

Winston-Salem, NC

THREE ADDITIONAL SITES EXPECTED IN LATE AUGUST!

Please contact the American Porphyria Foundation for more information and we will connect you with a study site nearest you.

Email edrinw@porphyriafoundation.org OR

call 866-APF-3635 (301-347-7166).

Ready for some FUN?

This Saturday at Noon!

The APF Pet Fashion Show!

Dress yourself and your pets in purple, costumes, or both!

Even if you don’t have pets and simply want to watch, join the Zoom call at 12 PM Eastern Time or 11 AM Central Time on August 8th.

We will be crowning the most creative costume and awarding first place with a prize of $100!

If you would like to join, click on the Zoom link below:

https://us02web.zoom.us/j/83893305568

Check Out These Items on the APF Store!

The APF store now has new items available on it's online store.

Research Opportunities

Are you interested in participating in research? If so, we need you!

Click on the link below for current studies and clinical trials that need participants.

“Remember…Research is the Key to Your Cure!”

https://porphyriafoundation.org/get-involved/current-research-needs-observational-studies-clinical-trials-and-surveys/

RSVP TODAY!

Virtual Patient Education Meeting with Dr. Manisha Balwani

LOCATION
Virtual - Zoom

DATE AND TIME
08/24/20 5:30pm - 08/24/20 6:30pm

Join us for our second virtual patient education meeting with Porphyria Exert, Dr. Manisha Balwani!

Send me the link to RSVP.

Sorry, I can't make it.

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Contact Information

Is your contact information up to date?

If not please give us a call @ 866-APF-3635 or Email to info@porphyriafoundation.org

American Porphyria Foundation| 1.866.APF.3635 | porphyriafoundation.org

"Remember....Research is the Key to Your Cure!"