Hope For Hypothalamic Hamartomas - February 2023
Order your HOPE MATTERS shirts today
Make sure not to miss out on ordering your HOPE MATTERS shirts! Only 1 week left to order.

Help spread Hypothalamic Hamartoma Awareness by wearing your Hope for HH gear throughout the year. This is a great opportunity to raise donations as well as educate others about this rare syndrome.

Our goal is to sell over 100 shirts and raise funds to allow us to continue to serve the Hope for HH community through our support, information, and HH research initiatives.
"This is for all my friends and family that keep asking how they can help our nonprofit spread awareness and raise funds! Here is your chance to show you care and get a great shirt/sweatshirt at the same time! Just order what you like and we benefit! Your cool stuff is delivered right to your door! Thanks for sharing and caring!" - Lisa Soeby, Hope for HH Vice President
* International shipping is available
Join Our Facebook Group
Join the Hope For HH Community Facebook private group and get the emotional support you need from others in similar circumstances, gain practical advice and insights on managing treatment or therapies for the various comorbidities (symptoms) associated with hypothalamic hamartomas.

Our group provides individuals and families to truly connect, make real friendships, and share daily ups and downs in a judgment-free place.
This group is intended for those impacted by HH including individuals with HH as well as HH caregivers. In order to provide a safe environment when you request to join, you will be required to answer questions about your connection to HH.

Steps to Join:

  1. Before you request to join the Hope For HH Community Facebook group, please make sure you've completed the Contact Registry here: https://www.hopeforhh.org/join-us/
  2. Please note your request to join may take 2-3 days to process as we approve each member to ensure this private community group is a safe and positive environment.
  3. Link to group: https://www.facebook.com/groups/hopeforhhcommunity
Hope For Hypothalamic Hamartomas | www.hopeforhh.org | info@hopeforhh.org