Hope For Hypothalamic Hamartomas - February 2023
We are RARE, but together we are STRONG!
Today is Rare Disease Day! Today is an annual awareness day dedicated to elevating public understanding of rare diseases and calling attention to the special challenges people face. We are counting on you to join the fight for improved treatments and a cure for those living with Hypothalamic Hamartoma Syndrome.

Remember every single day a family is forced to live with this ultra rare disease compels us as a community to focus on ADVOCACY | EDUCATION | RESEARCH.
How will you make a difference?
We cannot do this alone. How are you willing to help?

Everyone can have an impact whether pledging your time, skills, voice, or dollars to support Hope For HH​.
Fund A Better Future

We are asking our Hope for HH community to help raise donations to support our 2023 research initiatives and our next Patient Conference. These events are crucial to our mission for providing information and support to those living with HH as well as pushing to make advancements in HH-related research. Every donation has an impact! We are asking patients, caregivers, friends, and family to stretch by donating $10, $25, $50, or $100 on Rare Disease Day.
Raise Your Hand & Take Action

Volunteering is good for your health, your happiness, and your HH Community. By volunteering, you can give something back, make a difference to the people around you, develop new skills, and learn more about issues affecting the HH community.

Are you passionate about fundraising? Do you love to plan events? Do you prefer to work behind the scenes?

We are currently looking to expand our team of volunteers, so please take the first step and complete the Volunteer Inquiry Form.
Don't forget to wear your Hope for HH t-shirt - vintage or new, and share your story and photos today!

Make sure to tag @HopeforHH and include #HopeforHH in your posts.
Hope For Hypothalamic Hamartomas | www.hopeforhh.org | info@hopeforhh.org