The Scleroderma Research Foundation will be featured on Behind the Mystery, a recurring series devoted to rare and genetic diseases, airing on The Balancing Act on the Lifetime network:

• February 20th (7:30 AM ET/PT 6:30 AM CT, 5:30 AM MT)
• February 28th (7:30 AM ET/PT 6:30 AM CT, 5:30 AM MT)

Dr. Chung, Melissa Tarantino (dx 2014), and Susan Feniger share their respective experiences with scleroderma and why they're excited about the progress of research today.

We're honored to be profiled on The Balancing Act during this impactful awareness month along with the Lennox-Gastaut Syndrome Foundation, a non-profit organization dedicated to advancing research for another rare disease.

You don't want to miss this incredible opportunity to share information about scleroderma with your family, friends, and broader network. Save the dates and spread the word, so that everyone can learn what scleroderma is and why we need a cure.

The Waiting Room Entertainment—led by Amy G., Demeshia M. (both dx 2001), Rod D., and Dee B.—is hosting the first meet up of "The Social Club." This is a networking opportunity for those living with scleroderma and those who care for them.

When: February 27th, 5-8PM

Where: Embassy Suites by Hilton, 2886 Airport Drive, Columbus, OH 43219

To learn more, email thewaitingroomentertainment@gmail.com.

Not in Ohio? Join other in-person and virtual events happening where you can connect with people affected by rare diseases. Learn more at the Rare Disease Day official site.

Nearly 90% of scleroderma patients have Raynaud’s symptoms. It's called secondary Raynaud's phenomenon because it is secondary to the underlying condition, scleroderma, and can be an important step in getting diagnosed.

This year for Raynaud's Awareness Month in February, please join the SRF in raising awareness by sharing your personal stories, tips, and life hacks related to Raynaud’s.

Tag us in your social media posts at @srfcure and spread the word using #KnowRaynauds.

SRF Research

January 9th marked one year since we lost our dear friend, Bob Saget, and we've missed him every single day. This video is from our Virtual Cool Comedy • Hot Cuisine in 2021, our last fundraiser with Bob Saget.

When he lost his sister Gay to scleroderma, Bob became a leading force in raising awareness of the disease. Bob wanted nothing more than for the SRF to close its doors because we found a cure, and today we are as committed as ever to eradicating this disease.

In advance of Rare Disease Month, the National Institute of Health (NIH) shares up-to-date information on the burden the rare disease community faces and what needs to happen to alleviate these challenges.

Image Credit: Christina Loccke, Lindsey Bergstrom and Sarah Theos

Thank you to all of our dedicated supporters who have been shopping and donating via Amazon Smile by choosing the SRF.

Unfortunately, this month Amazon announced it is discontinuing this program as of February 23, 2023, and we will no longer receive funds from your purchases. So again, thank you for prioritizing the SRF while you shopped and helping us accelerate the pace of research.