BONNE NOUVELLE

Your "Good News" from Tourette Texas

May 2024 Volume 17, Issue 2

Helping Children & Adults Change Their Lives

Tourette is a chronic neurobehavioral movement disorder that begins in childhood. Those affected make motor movements and vocalizations they cannot control. Additionally, many have associated obsessive compulsive disorder, attention deficit hyperactivity disorder, dysgraphia and other issues.  

Today's estimates indicate that 1 out of every 160 children between the ages of 5-17 in the US has TS and that 1 out of every 100 children has TS or another Tic Disorder. Of note, boys are 3-4 times more likely to have TS than girls and 86% of those with Tourette also have a co-occurring condition such as ADHD, OCD or anxiety. In spite of its high incidence, Tourette continues to be greatly misunderstood. Although medication may help control the symptoms, as of yet there is no cure.  

Tourette Texas, one of the largest Chapters of the Tourette Association of America, is a 501(c)(3) non-profit organization. We directly assist Texas area families and children in crisis, 24 hours a day, 365 days a year. 

ARE YOU INTERESTED IN VOLUNTEERING AT TIC-CON?

Some volunteer slots are still available, and we are happy to have your help!

 Go to https://taa.volunteerhub.com/vv2/lp/nationalconference (YOU WILL NEED TO CREATE AN ACCOUNT FIRST. See the upper right corner at the link)

Questions? Please reach out to elizabeth.barker@tourette.org.

TEE-OFF FOR TOURETTE GOLF EVENT

 WE HAD ANOTHER FABULOUS TEE-OFF FOR TOURETTE!

THURSDAY, MARCH 28, 2024 — GOLF, DINING, AWARDS, RAFFLE, AND MORE.


CHAIRMEN: DAVE SCALLAN AND ALAN WEISS

PHOTOS OF THE BEAUTIFUL DAY COMING SOON!


Email info@TouretteTexas.org to be put on the list for information for 2025.


HUGE THANKS TO OUR SPONSORS, CHAIRMEN, DONORS, GOLFERS, BLACKHORSE GOLF CLUB, AND OUR VOLUNTEERS!

TARGETS FOR TOURETTE CLAY SHOOT


Friday, April 5th at Greater Houston Sports Club

 

As always, T4T was one of the best shootin’ matches anywhere in Texas. Teams competed in sporting clays, then relaxed with cocktails, hors d’oeuvres and a gourmet dinner catered by Monarch Hospitality. Fine wine from the personal cellar of Meredith and Fielding Cocke topped off the extraordinary dinner fare. 

Chaired by Jyl and Keith Calcote and benefiting the Tourette Association of Texas, the event also included a high-end shopping opportunity for custom belts and buckles by Maida’s Belts and Buckles; wraps from Anna Irion; Kendra Scott Jewlery; Davidoff Cigars; Oliver Peoples Eyeware, and much more. Revelers then “boot-scooted” late into the night to live C&W music by the incomparable Tommy Alverson Band.


However, the HIGHLIGHT of the evening was a presentation by Felix L. on the reality, challenges, and even joy of a life lived with Tourette (HINT: Think Camp du Ballon Rouge.) WATCH THE VIDEO BELOW!

CDC TOURETTE SYNDROME PUBLIC HEALTH EDUCATION & RESEARCH PROGRAM

WE NEED YOUR HELP WITH TWO EMAILS -- 5 MINUTES TOTAL!

TAA and the Texas Chapter request YOUR support in contacting our two Texas Senators for FY25 $2.5 million in funding in FY2025 for the CDC Tourette Syndrome Public Health Education and Research Program. Currently, there is a “Dear Colleague” letter circulating in the Senate, and we need emails from as many individuals as possible encouraging our Senators to sign on in support of including this $2.5 million in the Labor, Health and Human Services, and Education Appropriations Bill. Read more below to see how simple sending the emails can be! Less than 5 minutes and you are done and have helped make a difference.) Deadline is 5/7, so please do not delay.

CLICK HERE!

TENNIS, ANYONE?

Shiv K., a sophomore at St. John's School in Houston and a member of their varsity tennis team, has offered a unique opportunity for free tennis lessons for children with Tourette Syndrome. With all equipment provided, these individual sessions will be held at Firetruck Park in Southside Place (in the Houston area). Sessions will begin at the end of May and will last approximately 30 minutes each.

This initiative is more than just about learning tennis; it's an opportunity for participants to build on their basic skills and fundamentals in a supportive and understanding environment. Shiv's vision is to create a space where the joys of tennis are accessible to all, and every lesson is a step towards overcoming barriers and celebrating achievements together.

To learn more and to sign up, contact the Tourette Texas office at

281-238-8096 or at info@TouretteTexas.org.

UPCOMING SUPPORT GROUP MEETINGS!


Tuesday, May 13 Katy/Sugar Land/Richmond

7pm at the Cinco Ranch Branch Library, 2620 Commerical Center Blvd, Kty


Dallas/Fort Worth/Arlington -- Time and Date TBD

Arlington Public Library, 1905 Brown Blvd, Arlington


Woodlands/North Houston -- Time and Date TBD

St. Simon and Jude Catholic Parish, 26777 Glen Loch Drive, The Woodlands, TX 77381 Room number 18

 

For further information or to RSVP, contact:  

info@TouretteTexas.org

www.TouretteTexas.org

281-238-8096

CAMP dBR 2023

How awesome was our 20th Anniversary Camp du Ballon Rouge?

Take a look at these photos and see for yourself! CLICK HERE.


Huge thanks to our Staff, Counselors, Medical Doctors, Volunteers, Photographer

and CAMPERS for another fun and fabulous year.

Dates are not yet set for 2025. Stay tuned!


DONATE TO TOURETTE TEXAS TO HELP US CONTINUE OUR SERVICES


Use THIS LINK to make a donation of any size: DonateToTouretteTexas



OR USE THIS HANDY QR CODE:

Make a "general" donation, or make it in honor or memory of someone


If you shop at KrogerRandall's or Tom Thumb (use code 2493), you can link your Rewards cards to Tourette Texas 


Join iGive and your purchases to over 2,000 stores provide donations


Contact info@TouretteTexas.org for more info, if needed.


START YOUR OWN TOURETTE FUNDRAISER

Some of you have asked if there is an easy way to start a small fundraiser for Tourette Texas, e.g, donations for your birthday or graduation. Well -- there is! Simply click this link and follow the directions!

https://www.facebook.com/fund/TouretteTexas/



PUT A DIGITAL "I Have TS" card on your phone

https://idcard.tourette.org/

Tourette Association of Texas | 281-238-8096

info@TouretteTexas.org | www.TouretteTexas.org