Hey Cure.

We’re always excited to see the FAST community’s creativity and passion — you constantly inspire us. That’s why this week’s newsletter is focused on the FAST community!

Enjoy these fun updates and we hope to see a photo of your loved one with Angelman syndrome during the Gala! (check out the third section to see what we mean…)

If you have updates you would like to be included in next week’s newsletter, please email us at info@cureangelman.org.

University of Pittsburgh School of Medicine’s REAACT Program has launched online data collection for Dr. Mazefsky’s Adult Functioning Scale (AFS) study, funded by both Autism Speaks and National Institutes of Health (NIH).

The purpose of this research study is to develop a new survey tool to measure functional outcomes in autistic adults and adults with other developmental disabilities (DD) in an effort to better inform future policies to support the successful transition to adulthood for this population.

This exclusively online study is enrolling both individuals age 18+ with DDs and caregivers of individuals age 18+ with DDs who are US residents. Each individual who completes the surveys will receive an $80 Amazon e-gift card for their efforts.

Click here to learn more and apply to participate >>

Check out this fun workout video made by Rhian Adams and Amelia Beatty to help raise money for FAST's CAN (Cure Angelman Now) campaign! Both women have a son with Angelman syndrome, both are FAST Athletes and both live in the Middle East.

Watch Rhian and Amelia’s workout video on our FAST Athletes page.

Thank you to our community members who are finding unique, creative ways to fundraise for FAST!

FAST is excited to announce that we are now taking photo submissions for the 2022 FAST Gala video! You are invited to submit a photo of your child's successes or their struggles; we want this video to be transparent and genuine about how your experience with Angelman syndrome affects your child in the day-to-day.  

The deadline for photo submission is September 23.

Please click here to submit a photo for our Gala video:

Thanks for reading and being a part of the FAST community! If you know anyone else who would be interested in the opportunities in this newsletter, please forward them this link to sign up for our updates.