Welcome to April at FACT Oregon!
Happy Spring! We’re feeling energized and inspired as we welcome a second group of parents from across Oregon to Activate Your Advocacy: Parent Leadership Training. Graduates of our first cohort last fall are already getting involved in policy and advocacy work in their local communities and statewide.
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In This Edition:
- Welcome to our second Parent Leadership cohort!
- Community Spotlight!
- Engagement Opportunities
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We’re delighted to build up and support this network of engaged parents to effect real systems change and improve education and health outcomes for youth with disabilities. A gracious thank you to everyone who applied (over 100 of you!). If you haven’t received an email from us, please check your spam folder or reach out to parentleadership@factoregon.org.
In March, we hosted a community conversation on graduation requirements, facilitated by Oregon’s Kitchen Table. Thank you to all who were able to attend and share their perspectives and ideas with the Oregon Department of Education. Your voices are important in helping ODE ensure that high school graduation requirements work better for ALL kids. See more engagement opportunities, such as our upcoming Supported Decision Making training, below!
This month, we also feature another fabulous Community Partner: the Assistive Technology Lab at Community Vision (AT Lab for short). The AT Lab does amazing work to put assistive technology into the hands of individuals who need it across the state. Read on in our Partner Spotlight section!
As always, thank you for joining us in the work to empower families and transform disability.
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Christy Reese, Executive Director
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Supported Decision Making
With Em Braman, National Certified Guardian
May 18th, 2022
6pm - 7pm
Virtual!
Your child is soon to be 18 and with that you both experience some role changes. In this training, we will explore an adult decision-making support called Supported Decision Making. Help empower your soon-to-be adult child to make informed decisions about their life and their future.
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Participants will leave understanding:
- The Components of a Supported-Decision Making
- Tools to identify and establish Supported Decision-Making Supports
- The change in dynamic when your adult child is the decision maker
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Read the Governors Report!
The State Interagency Coordinating Council (SICC) is an advisory council made of parents and leaders in early learning throughout the state who ensure interagency coordination and service development and advise and assist Oregon’s Early Intervention and Early Childhood Special Education (EI/ECSE) programs. SICC believes that successful programs with strong community collaboration maximize each child’s unique potential and ability to participate in their home, school and community. The SICC supports Local Interagency Coordinating Councils (LICCs) which are comprised of parents and EI/ECSE professionals to enhance parent voice served through these programs.
In February, the State Interagency Coordinating Council (SICC) presented their Governor's Report to Governor Brown. This report highlights Early Intervention/Early Childhood Special Education (EI/ECSE) services across Oregon and helps advise Oregon's legislators as they make decisions about early childhood services.
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Read the State Interagency Coordinating Councils 2021-2021 Governor's Report.
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Share Your Voice!
As part of our work in accessible educational material planning with partners across Oregon, we want to share this opportunity from CAST with YOU!
CAST researchers as part of the Center on Inclusive Technology and Education Systems (CITES) project in collaboration with research intern Angel Morgan from North Carolina State University are conducting a study about ways in which school district leaders, school leaders, teachers, and service providers involve families of students with disabilities in planning, implementing, and using technology.
Family members of a K-12 student with an Individualized Education Plan (IEP) or 504 plan who attends a public school in the United States are invited to participate in a survey to share their thoughts. Survey participants may enter to win a $50 Amazon gift card and volunteer to participate in a Focus Group to provide more detailed feedback. For more information (English & Spanish) and a link to the survey, visit https://bit.ly/3L6j8Hp.
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A newly released report from the Oregon Early Childhood Inclusion (OECI) State Leadership Team found that "prioritizing partnerships to focus on equity and inclusion for children under five is critical to helping our earliest learners experiencing disabilities."
FACT Oregon is proud to partner with families, advocacy organizations and state leadership as we build welcoming and inclusive early care and education environments through our work in the State Interagency Coordinating Council (SICC) and OECI State Leadership Team.
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Oregon’s 2022 Short Legislative session ended on March 4th, just 32 days after it was gaveled in on Feb. 1st and three days ahead of its required end date.
Despite having strict limitations on the number of bills that can be introduced in a short legislative session, this session saw 275 bills introduced. Of those, the FACT Oregon Policy Team identified a couple dozen “high priority” education and early childhood-related bills that were of interest as well as bills that could potentially impact families who have children experiencing disability.
Thanks to a strong February Revenue Forecast and continued positive outlook going forward, legislators also had $800 million more to spend than anticipated, which they put to good use. The 100-page end-of-session budget bill (HB 5202) included several billion dollars in investments in many key areas such as education, educator workforce issues, summer learning, stabilizing Oregon’s childcare workforce, maintaining access to health care for lower-income Oregonians, addressing the homelessness and housing crisis, addressing workforce needs, making investments in behavioral health, public safety, and much more.
While there was much good news that came out of the session, there were also several important policy bills that fell by the wayside. Most of these required money to implement, so they went to the Joint Committee on Ways and Means (JWM) after passing out of the policy committee they were assigned to, and they never got assigned to a Ways and Means subcommittee or had further hearings after that. We hope--and expect--that we will see many of these bills again in the upcoming 2023 legislative session!
Visit our website for a brief summary and status on several of the bills we were tracking this session.
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Stay up to date on Policy and Advocacy news by joining the mailing list!
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The Assistive Technology Lab
The AT Lab is an education and resource center open to the public which offers support to individuals with disabilities navigating mobility, communication, learning, daily living, and more.
The AT Lab is a branch of Community Visions located in SE Portland.
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The AT Lab knows that sometimes Assistive Technology can be expensive and inaccessible. They are committed to getting assistive technology into the hands of those who need it. To do this, they have a free AT library where folks can try out different AT, explore helpful trainings on how to use various AT, and they also offer a number of helpful grants and supports to families in affording equipment. Check out the link below to learn more about funding options.
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Stories from FACT Families from the FACT Oregon Blog
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Why Reaching Families Early Matters
Amanda Robb
In this blog Amanda shares about how important it is to reach families early in their journey. FACT Oregon's Dream to Go Far inclusive storybook works to meets this need. Read more from Amanda here and visit our website to learn more about Dream to Go Far!
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Articles, videos, and podcasts to spark conversations with your friends and family!
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The Shift from “Autism Awareness Month” to “Autism Acceptance Month”
UAB Institute for Human Rights, Blog
This April is Autism Acceptance month! Read more about the shift from Autism Awareness to Autism Acceptance month and the importance of language and framing in this great article.
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Autism Empowerment
Autism Acceptance Month
With Karen Krejcha
What does Autism Acceptance look like? What is the difference between Autism Acceptance and Autism Awareness? How does Autism Empowerment come into play? Learn more about these ideas and more in this podcast!
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Support families
experiencing disability!
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Share Your Story!
Share your family's story! Tell us what you've learned along the way and how the support, trainings, or resources FACT Oregon may have provided have helped!
What interesting conversations did this month's content spark with your family?
What would you like to see next month?
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