Donate and Support a VIP Cause!
HELP TO FIND A CURE FOR ALD!
Adrenoleukodystrophy, or ALD, is a deadly genetic disease that affects the adrenal glands, the spinal cord, and the white matter (myelin) of the nervous system. It is found in roughly 1 in 17,000 people, mostly boys and men.

Some of you may know that our studio co-owner, Lora, has a nephew Ben that passed away from ALD two years ago at the age of 10. This was a tragic loss and her family is doing what they can for future generations to help in the funding of research for treatment options of ALD.
BE WARRIOR FUNDRAISER
Saturday, August 27th, 2022 is the 2nd Annual Be Warrior Challenge Hike in Reno at Mt. Rose Summit Trail.

From Matt, Katie, and Luke Anderson...

"We hold the Be Warrior Challenge as a way to remember and honor Ben, get our community together, and to raise money for the Van Haren Lab at Stanford; where promising research is being done to develop treatments and therapies for Adrenodleukodystrophy. Thanks to you, (last year) we met our fundraising goal of $25,000. Your donations helped fund preliminary research projects in the lab. Because ALD is such a rare disease, securing NIH grants demands initial research to be funded privately to ensure a more promising outcome with government funds. 

Whether you are able to make it to the event or not, PLEASE STILL REGISTER! There is no cost to register and we are using signups as a way to build our database and ability to communicate with everyone.  

We hope you will join us on the trail or virtually! If for some reason you are not able to, we appreciate your donations to the lab so very much."

Below is a link to the website where you can sign up, order T-Shirts and make a donation.
DONATE TODAY!
With your support, the Van Haren Lab will begin to test new drugs that could treat ALD brain lesions without the need for a bone marrow transplant. 
Thank you so much for all your support for me and my family throughout this journey.

Having the love and compassion of Pilates Studio City was so helpful for me. I am forever grateful!

Last year I helped guide my brother blindfolded up the challenging mountain hike. This year, Lola and I will be hiking together to raise money for a cure for ALD.

Thank you for your support and prayers!

Love, Lora

P.S. Read this to learn how Ben was truly a warrior and an inspiration to us all!!!