Legislative Advocacy: Connecting With Your Legislators

Continuing Cure CMD’s 2023 Your Voice Matters Initiative, Lani Knutson hosted an interactive session focused on learning how to connect with your legislators at the United States federal, state, and local level, and why these relationships are important. The recording is available on Cure CMD’s YouTube Channel, so be sure to check it out!

Cure CMD's Advocacy Team is beginning plans for the next Rare Disease Week on Capitol Hill, scheduled for February 25-28, 2024! The EveryLife Foundation is offering travel reimbursements for advocates to attend in person. Community members interested in attending can learn more about the travel stipend & apply before November 8, 2023. CMD Community Members who apply but are not awarded travel support by EveryLife will be eligible to apply for funding with Cure CMD in early January.

Register Now:

College Conversations

Join us October 27 as we dive into the complex & intimidating journey of post-secondary education, featuring Accessible College expert, Annie Tulkin. This fully interactive session will discuss the differences between high school and college, college accommodations considerations, personal care attendants, resources for students, and more.

Congratulations to this year's Creative Contest winners! Thank you to all who entered & helped support this creative initiative.

Cure CMD's Creative Contest was established to exhibit the unique gifts of individuals affected by CMD & neuromuscular diseases to promote the expressions of their stories through creativity.