CARE Registry:
Giving AANHPIs a Voice Through Research

Currently, AANHPIs are among the least represented groups in scientific research. The goal of CARE is to overcome barriers to research participation and connect AANHPIs to various types of research.

As of June 26, 2022, 8,816 people have signed up to increase AANHPIs' representation in research!
Click to learn more about CARE Registry
Some examples of potential research studies that CARE registry participants may be contacted about include:

  • Prevention or treatments for Alzheimer’s disease and related dementias
  • Health issues across the lifespan
  • Caregiving issues and improving the health and wellness of caregivers

If you haven't already, please consider enrolling in CARE at: https://careregistry.ucsf.edu/enroll-care

*CARE'S WEBSITE AND MATERIALS ARE AVAILABLE IN:
NEW! Hindi (हिन्दी) Website now available!
Samoan (Sāmoa)
Watch our 30 second animated videos in
UCSF Asian Health Institute Alzheimer’s Symposium 

Part 1: Thursday, July 14, 2022 @ 5:00 – 6:30 PM PST  
Early symptoms identification, early diagnosis, early treatment, state-of-the-art Alzheimer’s disease research in progress 

Part 2: Thursday, August 18, 2022 @ 6:00 – 7:30pm PST 
Pearls of wisdom and resources for caretakers of patients with Alzheimer’s disease
This bilingual symposium is hosted by the UCSF Asian Health Institute (AHI) in collaboration with UCSF’s Memory and Aging Center (MAC), the Alzheimer’s Association, and the Charles K. Kao Foundation for Alzheimer’s Disease in Hong Kong.  

Both Parts will be hosted by Diana Lau, PhD, Director of the Asian Health Institute.  

Outstanding speakers include: 
  • Boon Lead Tee, MD, MA, Assistant Professor, UCSF Memory and Aging Center, CARE Community Advisory Board Member
  • Xiaorong Ou, PhD of the Alzheimer’s Association, and  
  • Mrs. Gwen Kao of the Charles K. Kao Foundation (widow of Professor Charles Kuen Kao who was the 2009 Nobel Laureate of Physics from Hong Kong and also fondly dubbed as the “Father of Fibre Optics”, “Father of Fibre Optic Communication” and “Godfather of Broadband”, and shocked the world when he was diagnosed with Alzheimer’s disease in 2004). 

For more details, please view these Bilingual flyers for Part 1 and Part 2.


This event is presented in English and Cantonese.

Registration is required.

Alzheimer’s Association is a CARE community partner. 
CARE Tabling at Jeepney Jam at
Garden of the Flea
On Friday, June 17, 2022, a couple of CARE’s staff members and CARE Ambassadors tabled at the Jeepney Jam held at the Garden of the Flea in Berryessa, San Jose in celebration of Philippines Independence Day. This event was hosted by FAHM Jam, FACTsj, Moveable Co., LEAD Filipino, Silicon Valley Filipino-American National Historical Society, and Filipino Youth Coalition of San Jose. 

Thank you for letting us be a part of such a lively event and thank you to everyone who stopped by our table! 
CARE Ambassador Program
The CARE Ambassador program is a newly created volunteer opportunity by the CARE Registry, open to high school students, college students, and recent undergrad graduates. Participating as a CARE Ambassador will help leverage community connections and assist the Asian American, Native Hawaiian, and Pacific Islander community to increase research participation and representation. Working as a CARE Ambassador will foster new learning experiences involving hosting virtual events, in-person tabling, and more depending on your capacity. CARE Ambassadors will also have the opportunity to gain skills in community outreach, data management, research, ethics, and team collaboration.

Upon completion of the program CARE Ambassadors will receive a certificate as well as gained knowledge from our online trainings.  
To apply scan the QR code.

After completion, you will be contacted shortly by our Ambassador team. 
Dr. Van Ta Park contributes to
the Geriatrics Cultural Navigator
We are proud to share that Dr. Van Ta Park — CARE’s Principal Investigator— contributed to the Vietnamese American Older Adults chapter in the Geriatrics Cultural Navigator.

The Geriatrics Cultural Navigator's purpose is to provide cross-cultural assistance to clinicians with older patients from minority groups. This text has since been published and is now available for the public.  

Geriatrics Cultural Navigator

The key concepts included in the Cultural Navigator include factors that health care providers should reflect upon to provide culturally competent care to their older adult patients.

Read more
geriatricscareonline.org
CARE's 2022 Brief Report & Executive Summary
are now available

Read and share an organized overview of CARE’s purpose, partners, participant demographic, status with referral requests from research investigators, outreach activities, and next steps.  
Anonymous Online Form Available in 29 Languages to Report Violence Against AANHPI Elders 
On September 4, 2021, in remembrance of the Bellingham Riots, National Asian Pacific Center on Aging (NAPCA) will introduce an online reporting form to describe occurrences of violence against older Asian American Pacific Islander (AANHPI) community members. The in-language online report form will be fully anonymous and available in 29 AANHPI languages. 

The form will be accessible on the NAPCA website.

NAPCA is a CARE Community Partner.
The Asian Cohort for Alzheimer’s Disease (ACAD)
is looking for volunteers!
Asians are among the fastest growing populations in the United States and Canada, yet they are underrepresented in Alzheimer’s disease research.

The ACAD study is a collaboration across multiple universities and community partners in the U.S. and Canada to better understand how genetics and lifestyle factors impact Alzheimer’s disease risk in Asian Americans and Asian Canadians. Dr. Van Park (CARE Principal Investigator) is one of the principal investigators for ACAD, and UCSF is one of the recruitment sites. This study will be looking for healthy volunteers, people concerned about their memory and thinking, and people diagnosed with Alzheimer's disease who are 60 years old or older. 

Edie Yau (Alzheimer's Association) and Quyen Vuong (International Children Assistance Network) (both CARE Community Advisory Board members) also serve on the ACAD Community Advisory Board. Joyce Cheng, Executive Director of the Chinese Community Health Resource Center (also a CARE Community Advisory Board member), is one of ACAD's community partners.

All participants will be compensated for their time and effort.  

Visit ACAD study website or the animated videos in EnglishCantoneseMandarinKorean, and Vietnamese for more information.

If you are interested in participating in the study,
fill out this online form or email acad@ucsf.edu.
The Vietnamese Insights into Aging Program (VIP)
The Vietnamese Insights into Aging Program (VIP) is a brand-new study funded by the National Institute on Aging and is a collaboration between academic universities (UC Davis and UCSF) and community-based organizations (ARI and ICAN). The purpose of this study is to better understand factors that impact thinking and memory in the Vietnamese American community. Dr. Oanh Meyer (CARE Co-Investigator) is the Principal Investigator (PI) of VIP and Dr. Van Ta Park (CARE PI) along with several CARE Co-Investigators are also involved in VIP.

We are recruiting volunteers who: 
  • identify as Vietnamese American 
  • are 65 years or older 
  • reside in Northern California 
  • can speak either English or Vietnamese
  • have immigrated from Vietnam 

All participants will be compensated for their time and effort.  

If you are interested in participating in the VIP study, 
Bay Area residents (San Francisco Bay area including San Jose, San Francisco, Oakland, etc.), contact us at ucsfvip@ucsf.edu or (408) 609-9144. 
Sacramento residents, contact us at vip@ucdavis.edu or (916) 432-4197.

Korean Center, Inc. (KCI)
The Korean Center, Inc. (KCI)'s 4th Annual Bay Area Chuseok Festival is back in-person this year Sept. 10, 2022 at the Presidio’s Main Parade Lawn

This free-to-the-public, daylong festival is the Bay Area's largest public event celebrating, showcasing, and promoting Korean culture, cuisine, music, arts, and community. The festival will have delicious Korean food (both traditional and fusion), exciting live performances from local Korean cultural performance groups, traditional Korean games and activities, raffles, and more! 

Bring your friends and family and come spend the day with KCI at the beautiful Presidio grounds! CARE will be among one of the many tables at this event so come say hi!
KCI's mission is to create spaces for exploring Korean culture and heritage, bridging communities and generations, and collaborating to address Korean American community needs in the Bay Area. 

They envision a vibrant, engaged community where Korean culture and heritage are explored, celebrated, and preserved for future generations.
 
To learn more, visit their website at https://koreancentersf.org/ 

KCI is a CARE community partner.
I share this story without hesitation, and hope that this can be of assistance to anyone in search of how the Filipino cultural practices and norms can be used to enhance individualized care for a person living with dementia.
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