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Young Women Can and DO Get Breast Cancer!
Let's make sure they have support that is relevant and appropriate.
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Resources for Young Women Diagnosed with Breast Cancer
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The I Am Still Me, Sigo Siendo Yo resource guide contains resources especially for young women after a breast cancer diagnosis.
This month we are highlighting resources on My Health and Wellness Team/Mi Equipo Médico y de Bienestar. Each of the three guides offer resources specific to where a young woman may be along the care continuum. Resources support young women with learning what to expect from primary care providers, communicating with providers, and finding the healthcare team that feels right for them.
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Resources for young women: | |  |
Recursos para mujeres jóvenes que: | | |
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Recientemente se les ha diagnosticado cáncer de mama
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Han completado el
tratamiento
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Viven con cáncer de mama metastásico
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QR codes link directly to evidence-based resources for the most common issues among young women living with breast cancer.
To receive copies of the guides to share with young women in your community, contact Joan (jalcaz2@uic.edu)
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3rd Annual AYA's Take Chicago Event: Arts and Rec
Thursday, April 4th
6:00 - 10:00 PM CT
Sarabande Chicago
2726 W. Roscoe St, Chicago, IL
Enjoy a night of food, drinks, music, and connection with others diagnosed with cancer between the ages of 15-39, their supporters, and the oncology professionals who care for them. This event is FREE and open to patients and families from any cancer treatment center. Register here.
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Deeper Than Us Survivors Luncheon
Saturday, May 25th
11:00 AM - 3:00 PM CT
Crystal Sky Banquets
7941 47th St, McCook, IL 60525
Free for Breast Cancer Survivors under age 45 & their caregivers.
Discounted tickets for breast cancer survivors
Wear your bling t-shirts, tutus, and heels!
Register Here.
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Behind the Headlines:
Genetic Testing Among People with Cancer can Find Mutations that may Affect Treatment and Prevention
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Despite national guidelines recommending genetic testing, less than 10 percent of eligible patients had genetic testing within two years after their cancer diagnosis. Among those who had testing, 10-30 percent had an inherited mutation that could affect their medical care.
Read the Article Here
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Behind the Headlines is part of the XRAY program from Facing Our Risk of Cancer Empowered (FORCE). Learn more about this effort to deliver reliable information about cancer research-related news and information here. | |
Events Designed for Young Women
Living with Breast Cancer
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Grupo De Apoyo
Sábado, el 20 de abril
9:30 - 11:30 AM CT
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Este grupo de apoyo en línea es un lugar seguro donde las sobrevivientes de cáncer de mama de entre 25 y 50 años y sus familias pueden compartir sus sentimientos, historias y experiencias. Estos grupos son facilitados en español. | |
Young Women with Breast Cancer Virtual Support Group
Tuesday, April 23rd
6 - 7:30 PM CT
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A monthly, online group for young women
ages 18-40 living with breast cancer to share stories, and treatment tips, as well as discuss nutrition, body image, relationships, and more. This group is held in partnership with the Young Survival Coalition and Gilda’s Club Chicago.
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Virtual Hangout for African American Young Breast Cancer Survivors
Thursday, April 25th
6 PM CT
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An exclusive, virtual space for Black or African American young adults living with breast cancer to grow relationships and share life experiences with peers who have similar diagnoses. Open to any person diagnosed with breast cancer age 40 and under. Hosted by the Young Survivor Coalition, Touch - The Black Breast Cancer Alliance, and For the Breast of Us. | |
Events Inclusive of Young Women
Living with Breast Cancer
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National Webinar: How to Talk to Kids About Cancer
Wednesday, April 3rd
6:00 -7:00 PM CT
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This free educational webinar is well suited for any parent, caregiver, friend, or school professional who wants to learn about practical, evidence-based ways to talk to kids about their parent's cancer diagnosis. This free online event is provided by the PICKLES Group. | |
A Toolkit to Manage Cancer-Related Disability
Wednesday, April 10th
12:00 PM CT
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This online presentation will explore what cancer-related disability is and how it relates to the survivorship experience. This presentation will also equip breast cancer patients with strategies and knowledge to help manage, talk to their healthcare team about, and provide resources for cancer-related disability. Presented by the Breast Cancer Resource Center. | |
Breakfast & Breast Exam
Saturday, April 13th
10:00 AM - 1:00 PM CT
Mongolian Heritage Center
1301 S Wolf Rd
Prospect Heights, IL 60070
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Have breakfast and hear about how Equal Hope services can help maintain optimal breast health. Bilingual Community Health Worker, Veronica Sanchez-Villa, will be there presenting information and answering questions from the crowd. | |
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April 19th - April 21st
Hilton Philadelphia @ Penns Landing
Philadelphia, PA
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The conference on metastatic breast cancer features the latest information on research and treatment options, as well as sessions that discuss the emotional effects of a diagnosis. There is dedicated time to meet and connect with other attendees via receptions, meals, and social events. Hosted by Living Beyond Breast Cancer. | |
Spring into Self Care for Young Adults
Tuesday, April 23rd
12:00 - 1:00 PM CT
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Join in this online presentation for young adults impacted by cancer to learn about the benefits of self-care and develop practical strategies to incorporate self-care within daily life. This program is hosted by Wellness House. | |
Estate Planning Educational Webinar
Tuesday, April 30th
12:00 - 1:30 PM CT
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This online webinar will cover the various documents that can make up an estate plan, things to consider when beginning the process of creating a plan and options available to individuals to protect their medical decision making rights. This webinar is presented by Triage Cancer. | |
Walk for Wellness House
Sunday, May 5th
8 AM CT
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Choose between a 3K Walk, 5K Run, 10 Step Walk, or Walk Your Way at a place and time of your choice to help people with cancer and their loved ones feel supported and acknowledged by a caring community. All proceeds benefit Wellness House programming supporting people impacted by cancer. | |
Joining FORCEs Against Hereditary Cancer Conference
June 13th - 15th
Philadelphia, PA
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Joining FORCEs is an opportunity to learn about the latest hereditary cancer information and research and connect with others sharing similar experiences in-person. This conference is open to survivors, previvors, caregivers, and healthcare providers and is designed to empower individuals and families facing hereditary cancer. | |
Resources for Young Women and Caregivers | |
Practical Guide to Cancer Rights | |
A series of practical guides and checklists on cancer rights from Triage Cancer introduce cancer patients to many of the cancer rights law topics they may encounter after a cancer diagnosis. Available in English and Spanish. | |
Navigating Finances After Cancer Toolkit | |
Online interactive toolkit that covers key topics to help patients manage finances after a cancer diagnosis and find financial assistance resources. Created by Triage Cancer. | |
Legal & Financial Navigation Program | |
Free, one-to-one help with health insurance, disability insurance, employment, finances, medical decision-making, estate planning, and more. Provided by Triage Cancer. | |
Resources for Returning to Work After Cancer | |
Learn how to take full advantage of the protections afforded to cancer survivors under the law with this resource provided by Cancer + Careers. | |
Financial Wellness Tool Kit | |
This free online toolkit covers health insurance, disability rights, financial planning, and estate planning. It also includes guidelines from experts in the field, tools to record and organize personal information, and helpful financial wellness tips from other women who have faced breast cancer. Organized by Sharsheret. | |
Mentor Angel Peer Support Service | |
A one-on-one matching process pairs cancer previvors, survivors, and caregivers with a Mentor Angel who can help them to navigate their diagnosis, determine their options, and create strong support systems. This peer support service is free and offered to anyone touched by any type of cancer, at any stage, any age, living anywhere in the world. Provided by Imerman Angels. | | |
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This Peer Match program is designed to make young adults diagnosed with breast cancer feel connected and supported by a community of peers. Matchmaking is based on similar diagnoses and/or experiences, and is provided by Young Survival Coalition. | |
My Life is My Legacy Collection | |
This collection of personal stories from people living with metastatic breast cancer and the medical experts and caregivers who care for them offers inspiration and guidance to those looking to better understand the impacts of metastatic breast cancer. From the Tigerlily Foundation. | |
The Young Women's ANGEL Advocacy Program | |
The ANGEL (Advocate Now to Grow, Empower, and Lead) Advocacy Program provides comprehensive training and access to services and resources for women of color between the ages of 21-50, who have been touched by breast cancer. Created by The Tigerlily Foundation. | | |
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Free, interactive programs to educate community health workers, healthcare professionals, and cancer survivors on the needs of young women diagnosed with breast cancer. Created by the Breast Cancer Resource Center. | |
Breast Health and You: A Young Woman's Resource Guide | |
Learn about breast cancer facts, common myths, good health habits, and information on how to talk to your doctor about breast health, using this resource from the Young Survival Coalition. | |
For the Newly Diagnosed Breasties Resource Guide | |
Read about some things to keep in mind while preparing for the first few doctors appointments after being diagnosed with breast cancer with this free, online resource guide from TOUCH, the Black Breast Cancer Alliance. | |
Healthcare Provider Education | |
Insurance & Finance Intensive
Sunday, April 7th
8:30am – 5:30pm CT
Marriott Marquis Chicago
2121 S Prairie Ave, Chicago, IL 60616
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A free training course for oncology health care professionals and advocates that will provide valuable information to help them navigate patients and caregivers through the continuum of cancer care. Triage Cancer will provide free continuing education/contact hours to nurses, social workers, patient advocates, and HR professionals. | |
Financial Navigation Lesson for Social Workers | |
This training will share mitigation strategies and resources that will prepare patient navigators to effectively address financial toxicity with their patients. This training program is approved by the National Association of Social Workers for 1.0 continuing education contact hours and is provided by he George Washington School of Medicine & Health Sciences. | |
Breast Cancer: Evaluating and Integrating New Treatment Approaches | |
This course will cover the latest clinical evidence for novel therapies, discuss barriers and solutions to timely access to care, treatment strategies based on biomarker testing results, and ways to improve communication, education, and treatment decision-making alongside breast cancer patients. Healthcare professionals can earn 1.25 CME/CE/ CH/CPE/CNE credits after completing the course offered by PRIME. | |
Opportunities for Young Women to Participate in Research | |
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HER2+ & Triple+ MBC Research Study
Researchers want to understand treatment decisions around continuing or stopping/pausing HER2 therapy.
To participate:
- You must have been diagnosed with HER2-positive or Triple-positive metastatic (also known as Stage IV) breast cancer.
- Be at least 18 years old.
- Be receiving or have received HER2-targeting drugs such as Herceptin, Kadcyla, etc.
- Be located in the US.
If you have any questions or comments about the study, please contact Dr. Guy Adami at gadami@uic.edu
Click Here to Complete the Anonymous Survey
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Enhancing Connections: Helping Your Child
This study examines the effectiveness of two educational programs for parents who have advanced cancer and who have a 5-17 year-old child.
People are eligible for this study if they meet the following criteria:
- Have a diagnosis of advanced cancer
- Have a 5–17 year old child who lives with them at least 50% of the time
- Have a parent, guardian, or surrogate parent (adult relative, friend, etc.) who lives with them and their child at least 50% of the time
- Read and write English
- Have access to a telephone
Click Here to Find Out More.
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Examining Quality of Adolescent & Young Adult Health Services within their Overall Cancer Care Experience
This study explores the quality of care perception for adolescent and young adults (AYAs) who have been impacted by a cancer diagnosis. Participants will be asked to complete a 10 - 15 minute questionnaire and will be randomly selected to participate in one 60- 90 min Zoom interview. Click Here to Find Out More.
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Factors Influencing Disparities in Quality of Life among People of Color Affected by Cancer
The goals of this research study are to improve physical activity & diet among cancer survivors and to address barriers or challenges in developing and maintaining an active & healthy lifestyle. This study focuses on the needs of cancer survivors who self-describe as people of color during the transitional time period following cancer treatment. Researchers from the University of Massachusetts Amherst would like to work with cancer survivors of color to understand how social structures, stress and environmental factors impact health behaviors and subsequent quality of life. This study is open to breast cancer survivors over 18 years old who have completed cancer treatment, such as surgery, chemotherapy, radiotherapy, or immunotherapy, anytime since 2017. Click Here to Take the Survey.
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Young and A Survivor! (YAAS!) is a robust network of clinicians, supportive service providers, navigators, survivors, thrivers, co-survivors, and local and national patient advocacy organizations engaging collaboratively to promote health equity in survival and quality of life among young women in Chicago affected by breast cancer and their co-survivors, including family members, caregivers, and community members. Young breast cancer survivors are young women diagnosed under the age of 45, including those living with metastatic breast cancer.
The YAAS! network is led by the University of Illinois Cancer Center and includes the University of Illinois at Chicago, UI Health, and five community partners: ALAS-Wings, Greater Chicago Food Depository, Imerman Angels, Triage Cancer, and Wellness House.
Young and A Survivor (YAAS) is a program at University of Illinois Cancer Center supported by the Centers for Disease Control and Prevention Cooperative Agreement NU58DP006674
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