May 2022 Resources of the Month
Dear UCCCN members,

Here are your May 2022 resources and meeting summary.
Announcements

SPARK for Autism genetics study reminder – Parents and siblings of children with autism are encouraged to participate (from home, at no charge, gift cards possible). Registration is online at www.SPARKforAutism.org/utah.


UCCCN meetings have a new Zoom link and require registration. If you haven't yet, please register for upcoming meetings. It's quick and easy! We've also published the meeting schedule in advance on the UCCCN webpage.

University of Utah Pediatric Project ECHO Spring sessions ended, but recording and slides are on the Pediatrics ECHO website.

Our next Autism 101 ECHO session will be held next Wednesday, May 25th and continue through October. This fourth session will focus on Developmental, Behavioral, and Educational Interventions. The schedule and information is available on the Autism 101 page, where you can also register for the sessions you'd like to attend. Nurse contact hours and CME are available for those able to attend these sessions.

               Project ECHO : MHP 35649
Medical Home Portal Section
Content Updates

Brainstorming

Resource #1: Tina Persels - Utah legislature passed approval for a certain number of individuals to come off the DSPD waitlist. Some patients that are currently on the Technology Dependent Waiver and/or the Medically Complex Children’s Waiver are getting calls about now being able to get DSPD services. They should sit down with a case manager for both programs and someone from skilled nursing to help them decide if they are going to accept DSPD or stay on the waiver they have. DSPD is a much bigger package, however, it does not include the same level of skilled nursing services.



Resource #2 - There is a new ABA service in Utah County. Located in Spanish Fork, they focus on the 14-20 year old group of children.


Resource #3 - Med-Peds Physicians at Sugar House Health Center are piloting a new Transition Clinic. More info soon to come; it sounds like it will be held weekly (on Monday mornings).
Disclaimer: These resources come from our members as part of the meeting brainstorming session; please check with your providers to make sure they are appropriate for your patient/families.

You can find a custom list of these and all the service providers discussed in this month's meeting, that can be printed, emailed, and more, here: May 2022 UCCCN Resources of the Month list.
A Day in the Life of a Care Coordinator...Using the Medical Home Portal

Mindy, Athena, and Jennifer led breakout sessions to review two different cases and work with the groups to find solutions and information in the Portal.

Case 1 - Family that lives in Summit County, just received notification of a positive newborn screening for Citrin Deficiency. This is their first child and they have several questions for their family doctor and would like to know more about next steps. The parents both speak Farsi as their primary language and Mom has limited English proficiency.

Case 2 - Patient who is a 17 year-old boy (they/them) with severe anxiety, suicidal ideation and headaches, is in need of day treatment due to escalating symptoms and school failure within Davis School District. Family has not been able to get child in for regular therapy appointments. Patient is already on one psychiatric medication. School counselor is concerned that there is not enough support for them at school. Parents are divorced and family has both private insurance and Medicaid coverage.

Results of the exercise (content pages, service providers, resource links, and more from the Medical Home Portal) are here.
Other
Our next meeting date is June 15, 2022 and will be on creating a medical home. Please register in advance for this meeting. After registering, you will receive a confirmation email containing information about joining the meeting and it will give you the option to add them to your calendars.

Archived meeting recordings are available on our YouTube UCCCN 2022 Playlist.

Please use our listserv (ucccn-meetings@lists.hsc.utah.edu) to send questions or issues needing help, connect with UCCCN members in between meetings - ask for help, share resources, etc.

All the best,
Mindy Tueller, MS, MCHES
Director of Operations, Medical Home Portal
Facilitator, Utah Children’s Care Coordination Network
Department of Pediatrics
University of Utah
801-213-3920
Medical Home Portal | UCCCN | 801-213-3920 | mindy.tueller@utah.edu | Medical Home Portal