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January 2024
Dear community...
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Martine Elias, Executive Director | |
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"Welcome to 2024!
The coming year is gearing up to be different on many fronts for our community of Canadians with myeloma and their caregivers, especially with respect to new treatments coming to the forefront. We at Myeloma Canada will, as always, work hard so they do become available to patients.
Let me explain… "
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I - 2023 ended on a great note: Elranatamab approved by Health Canada! | |
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Myeloma Canada is pleased to announce that as of December 11, 2023, Health Canada has granted Notice of Compliance Information with conditions (NOCc) for elranatamab (Elrexfio).
Elrexfio (elranatamab solution for injection) is indicated for the treatment of adult patients with relapsed or refractory multiple myeloma who have received at least 3 prior lines of therapy, including a proteasome inhibitor, an immunomodulatory agent, and an anti-CD38 monoclonal antibody.
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What's new at Myeloma Canada | |
I - Announcing: Myeloma Canada's new website! | | |
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For over a year, we’ve been working tirelessly on creating a new website that will provide you with a more responsive, intuitive, and easy-to-use experience.
We hope you find the new myeloma.ca website easy and comfortable in finding the information and resources you need to stay connected, empowered and informed throughout your journey.
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II - New InfoSheet: Understanding relapsed/refractory myeloma | |
While you may have lived with multiple myeloma for some time, relapse and disease progression remain life threatening and emotionally devastating. As you navigate this stressful stage of the disease, some terms and concepts may seem foreign to you. That’s why exploring your immediate needs with your healthcare team and educating yourself on future treatment options are crucial steps in your myeloma journey. Multiple factors will influence your overall treatment plan when there’s no response to treatment (refractory) and the disease comes back (relapse). | | |
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To learn about your response to treatment, Myeloma Canada has developed an InfoSheet about relapsed and refractory disease.
This InfoSheet will help people with myeloma, their caregivers, families, and friends better understand the response to treatment associated with multiple myeloma and the resources available to support them through the emotional blow of relapse and disease progression.
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III - Scaling new heights: Join us and rappel to repel myeloma! | |
Are you driven to test your limits? Do you want to have some serious fun with friends and colleagues and take in amazing views from 324 feet above ground? Do you want to create unforgettable memories while raising funds – and awareness – for a little-known incurable blood cancer that claims the lives of thousands of Canadians each year? | |
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Join the fun and rappel down the Hilton Toronto Hotel
while raising money for an amazing cause.
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Do you want to participate but have questions about accommodations for individuals
with special needs, severe health complications, allergies, or other?
Please reach out to Michelle Oana at moana@myeloma.ca.
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The Grand Rappel is open to participants 18 years and older. Participants will be asked to show a form of official ID at the event. The minimum fundraising target in order to participate in the Grand Rappel is $1,000 per participant. | |
IV - Score big together: Join our fundraising collaboration with the Laval Rocket!
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Gather your family and friends and grab a seat for a clash of sticks and skates at a thrilling hockey game, all for a cause that hits close to home! | | |
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We’re excited to announce yet another collaboration with the Laval Rocket for an unforgettable hockey game event where a portion of ticket sales, purchased through our organization, will be donated to support our cause. Not to mention the exciting 50/50 draw that will take place during the game, with our organization being the proud beneficiary! | |
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Event details:
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Who: Laval Rocket vs. Cleveland Monsters
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When: Saturday, March 9 at 3:00 pm
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Where: Place Bell (1950 Rue Claude-Gagné, Laval, QC H7N 0E4)
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V - Run for Myeloma: Join us at the Marathon Beneva de Montréal | |
We're thrilled to announce that Myeloma Canada is gearing up to participate in the upcoming Marathon Beneva de Montréal. Come and join us! | |
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Join us on September 21 and 22, 2024! | | | |
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By registering with Myeloma Canada for the Marathon Beneva de Montréal, you not only become a part of a vibrant community of runners but also contribute to a meaningful cause that aligns with our mission. We believe in the power of collective efforts, and your participation can make a significant difference.
Whether you are a seasoned runner or a first-timer, this marathon provides a platform for everyone to come together, promote a healthy lifestyle, and support a charitable initiative.
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Spotlight on Megan and Dwight Gardiner:
Supporting our loved ones and others
is key
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Megan and Dwight Gardiner | |
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« Hello. My name is Megan, and I am Dwight’s wife and caregiver.
Dwight was diagnosed with multiple myeloma (MM) in February 2018. Confusion and feelings of devastation followed as it was found that he had high risk smoldering myeloma.
Then, four months later, Dwight was also diagnosed with AL amyloidosis in his kidneys and heart.
He was 53 years old. »
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Join online from the comfort of your own home!
All you need is a computer, tablet or smart phone and an internet connection.
Full information on upcoming and past InfoWebinars is available by clicking here.
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Among past webinars available for viewing:
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Turn your passion into a fun fundraising event.
We can show you how!
Visit the ‘Get involved’ section of our new website
for ideas on how to transform your passion into a fundraiser!
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For more information, contact Patricia Célestin or Sophia Mendoza
at Myeloma Canada.
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Myeloma Canada is here to support you along every phase
of your myeloma journey.
Please consult our website at myeloma.ca for up-to-date news and information,
as well as the following helpful links:
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Myeloma Canada's promise: To improve the lives and empower all Canadians affected by myeloma, accelerate access to the best care, while supporting the pursuit of its cure and prevention. | |
Follow us on social media for the most up-to-date information and resources: | |
Si vous préférez recevoir vos communications en français, écrivez-nous à contact@myelome.ca. | |
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To donate to Myeloma Canada
please visit myeloma.ca or call us toll-free at 1-888-798-5771.
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