Weekly Parkinson's Newsletter from PAACI

I'm repeating last weeks article because it's important and I want as many people as possible to be aware and possibly in attendance. Also, we are looking for some volunteers for the day of the Rally. If you have time and can come help please contact Rick May at richardmay5229@gmail.com.

On Tuesday, March 5, 2024 (9-11am) there will be a Rally & Awareness Fair at the Indiana State House. The Indiana Parkinson's Action Coalition will be at the rally to raise awareness of PD with our Indiana State Reps, as well as with the public in general, in advance of the 2025 legislative session during which we will be asking for the creation of a PD registry for Indiana. The rep sponsoring this for us is Carey Hamilton from Carmel.

The Indiana Parkinson's Action Coalition consists of the Parkinson's Awareness Association of Central Indiana (PAACI), Rock Steady Boxing and the Indiana Parkinson Foundation.

For more information please respond to this message.

Have a fun and happy weekend from Sheri, John & the PAACI Board!

Research Opportunities

Parkinson's Disease Medical Care Planning Resource

Dr. Jiayun Xu is creating a tool to help you and your family members talk about future medical planning in Parkinson's Disease. They are looking for a person with Parkinson's and a family member who is/was caring for a family member with PD within the last 5 years. You must be able to speak and read English, willing to be audio-recorded and have access to a phone or internet. For more info contact Dr. Xu at caregive@purdue.edu or phone 765-494-4017.

Speech Accessibility Project

Beckman Institute at University of Illinois Urbana-Champaign has a new study called the "Speech Accessibility Project" to help speech recognition tools understand diverse voices. You can record your speech from home and earn up to $180/$90 for caregivers. For more info: 1-888-309-6499 or speechaccessibility@beckman.illinois.edu