The Future of Porphyria...
KICKING OFF PAW RIGHT

Dr. Bruce Wang (Porphyria Expert, UCSF) was AMAZING! He answered questions from all porphyrias with such expertise. We are so thankful to have him on the Scientific Advisory Board of United Porphyrias.

He agreed to respond to questions over video when we meet in a couple weeks. If you have questions...send them to info@porphyria.org
UNITED PORPHYRIAS STORE
NEW ITEMS ADDED!

Have you checked out our store?

New items are always being added!
 Get your UPA Gear today!

WE are
#PORPHYRIA TOGETHER

This Porphyria Awareness Week, snap a photo with our #PorphyriaTogether sign to help spread awareness!

Your pictures will be used in video to end out the week! Share with your friends and family!
We can't wait to see all of your great pictures!

NEED HELP PAYING FOR YOUR MEDICATIONS?

HEALTHWELL IS HERE TO HELP!

Offering up to $4,000 in financial assistance to help with the cost of insurance premiums or medication copayments associated with the treatment and management of the various forms of Porphyria.

To learn more about the fund, determine eligibility and apply for assistance, click the link below or call (800) 675-8415.
DO YOU WANT TO HELP FUNDRAISE?

Our Pop-Up Fundraiser is LIVE!

Click the link below to participate and share the link with friends and family!
Fundraiser ends April 6th!
Don't miss out!

Donations will be matched up to $2,000 by one of our gracious donors!
PORPHYRIA AWARENESS WEEK 2022

GLOBAL AWARENESS EFFORT

Get out your PURPLE and prep for Porphyria Awareness Week – April 2-9, 2022!