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September 2024

CRAAG Newsletter

The Next CRAAG ZOOM Meeting

Is On Wednesday, September 18th

10:00 a.m. to 12:00 p.m.


Plan to Join us!


1) Welcome - Introductions

2) Advocacy Update

  • Legislative Priorities
  • SIS Process Redesign
  • VAAA update

3) Provider Capacity Discussion

  • Local Challenges 
  • Community Asset Mapping Initiative 

4) Work Group Reports 

5) Provider and Agency Updates

6) Individual and Family Concerns

7) Open Discussion 


Zoom Link for the September

18th CRAAG Meeting


Meeting ID: 371 306 7117

Passcode: ysA8Ji


Questions? Email CRAAG

DBHDS Responds to SIS-A 2nd Edition Questions CRAAG's Readers are Asking


Many thanks to DBHDS for their responses CRAAG's questions on where the implementation of the new SIS-A 2nd Edition stands. Two reports from the Human Services Research Institute (HSRI) are linked below. Lots of reading to do!


Q: Has DBHDS received the final report from HSRI?


A: "DBHDS received the final report and plain language summary on August 26, 2024, 7:54 PM." "September 2024 Update [from the DBHDS website]: In 2022, the American Association on Intellectual and Developmental Disabilities (AAIDD) announced the completion of their project to re-norm the Supports Intensity Scale-Adult Version (SIS-A). During the Spring of 2023, the Department of Behavioral Health and Developmental Services (DBHDS) entered into a contract with the Human Services Research Institute (HSRI) to study the impact of implementing SIS-A, 2nd Edition for Virginia. The HSRI Plain Language Summary and the HSRI Final Report summarize the work done, the results, and HSRI’s recommendations. DBHDS reviewed all recommendations. The implementation of some are in progress, while others will take longer and involve other stakeholders."


Q: Has the report been approved for implementation by the DBHDS leadership?


A: "DBHDS has already started moving forward on some of the suggestions."


Q: When and how will the final report be shared with stakeholders? 


A: "The report has been posted to the DBHDS website." [See above links]


Q: In all the public meetings DBHDS emphasized that the algorithm under discussion hadn't been approved and DBHDS was waiting for the final report to answer some of our questions. Is the algorithm the same or different from the example we discussed? Can you update us specifically on the differences if there are any? 


A: "Everything will run as it has been through September 24, 2024. From September 25 - October 1 there will be a pause in assessments until after October 1."


"After October 1, 2024:"


"SIS-C assessments: there is no change to this SIS. Algorithm usedSIS Sections 1, 2A, 2B, 2E - it may also include Supplemental Questions, and Verification."


"SIS-A assessments: SIS-A will continue to be completed in VA through September 24, 2024. SIS assessments completed will remain valid until the next SIS due date. The algorithm used to determine the support level and reimbursement tier will remain unchanged. Algorithm used: SIS Sections 1, 2A, 2B, 2E - it may also include Supplemental Questions, and Verification."


"SIS-A, 2nd Edition assessments: After October 1, 2024 SIS-A, 2nd Edition will be completed in place of SIS-A. SIS Vendors will follow current SIS due dates which are provided by DBHDS. For this SIS only, the algorithm used to determine the support level and reimbursement tier will include the entire SIS. Algorithm used: Section 1, Section 2 - it may also include Supplemental Questions, and Verification."

Action Alert


Autism Collaboration, Accountability, Research, Education and Support Act (Autism CARES Act)

The Autism CARES Act sunsets on September 30, 2024. We can't let this happen. Two of CRAAG's partners in our autism advocacy work, Virginia Autism Project and Autism Society have shared helpful information about the importance of the Autism Cares Act. We've added a quick link at the end of this article to take action on this issue.


The Virginia Autism Project shared these bullet points explaining what would be lost if the Autism CARES Act isn't reauthorized. Since its passage in 2006, over $3.1 billion has been dedicated for:

  • Autism prevalence monitoring.
  • Training of medical professionals to detect and diagnose autism.
  • Development of treatments for medical conditions associated with autism.
  • The Interagency Autism Coordinating Committee (IACC) and its annual strategic plan.
  • Centers of Excellence in autism surveillance and epidemiology.
  • Countless programs and research grants to benefit individuals with autism.

The Autism CARES Act of 2014 also resulted in:

  • A report to Congress on the current state of Adult Services and a 2017 report to Congress on “Young Adults and Transitioning Youth with Autism Spectrum Disorder.”
  • Identification of where gaps exist and how to address those needs.
  • Those with Profound Autism benefitting from language to include this population in research.
  • Ensuring that profound autism is included in Autism CARES Act.

Read Autism Society's "Capitol Connection" blog post on the importance of the Autism CARES Act. Please take action now by clicking the link below.




CORRECTED: Click this Link to Take Action for the

Autism CARES Act now!

Q: Jail or Mental Health Hospital?

A: Neither One!


Your Stories and Voices Are Important

Virginia Autism Project invites you to collaborate with families dedicated to developing effective strategies aimed at preventing individuals with autism from entering the criminal justice system or a mental health hospital during times of crisis.


By engaging in this important dialogue, we can share insights, resources, and experiences that promote understanding and support for individuals on the autism spectrum. Together we can work towards creating a more compassionate approach that prioritizes community support and therapy, ensuring that those in need receive the appropriate care and intervention rather than facing incarceration.


Your involvement fosters a safer and more inclusive environment for individuals with autism and their families.


For more information, email Virginia Autism Project

Key articles in the August 2024 Issue

  • Future IFSP Funding Update and Resources
  • 2025 IFSP State and Regional Council Recruitment
  • Understanding and Preparing for Independent Living Video
  • Peer Mentoring Program/Family Mentoring Program
  • Improving Support for People with Mental Health Conditions and Other Disabilities
  • Online Mental Health Support for Autistic Adults with Intellectual Disability

Click here to download the issue

Don't Forget to Care for

the Aging Caregivers


Contact JABA (Jefferson Area Board for Aging)

434-817-5244 or jabacares.org

SSA Announces Simplification of the SSI Application


“People in our communities who need this crucial safety net deserve the dignity of an application process that is less burdensome and more accessible than what we now have, and we’re committed to achieving that vision over the next few years.”

Read More

About CRAAG


CRAAG began in 2010 in collaboration with Commonwealth Autism (CA). CRAAG’s mission is to raise awareness and enhance the quality of life for people with autism, developmental disabilities, and their families in Charlottesville City, Albemarle, Greene, Fluvanna, Louisa and Nelson counties. We are a volunteer action group for families, self-advocates, and professionals who are interested in all age groups and levels of need. The daily concerns of CRAAG's active volunteers inform our focus on the needs of students transitioning out of high school, adults throughout the lifespan, and their families. Our advocacy is person-centered aimed at maximizing independent living with supports; meaningful employment; social connectivity; and community engagement. CRAAG's 2021 Housing survey initiated a years-long initiative in our region to expand the number of housing options, supports and services available to meet the needs of adults with developmental disabilities.


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