Hey Cure, happy first week of fall!

As the leaves change and temperatures cool, we’re looking ahead to the rest of the year: research updates, successful fundraising campaigns, and planning for our Gala in December!

If you have updates you would like to be included in next week’s newsletter, please email us at info@cureangelman.org.

Dr. Barbara Bailus, Keck Graduate Institute (KGI) Assistant Professor of Genetics, recently received a distinguished New Investigator Grant of $500,000 over a two year period from FAST. This grant will support a research project titled, “Targeting Angelman Syndrome Therapeutics to the Brain Utilizing Novel Cell-Penetrating Peptides.”

The origins of this project can be traced back to her 2013 research which Dr. Bailus conducted as a PhD student in the lab of Dr. David Segal at UC Davis. In the lab, they designed an artificial transcription factor—a precision-tailored molecule designed to bind DNA and regulate transcription in a preprogrammed manner—to successfully treat Angelman syndrome (AS) in a mouse model.

Over the course of the two-year grant, Dr. Bailus plans to test up to three novel cell-penetrating peptides to carry the therapeutic targets into human cells and into the brain of Angelman syndrome mice.

Click here to read more about Dr. Bailus' grant from FAST >>

Drumroll please….. the Scholarship and Ticket Giveaway recipients have been determined! We want to thank everyone who submitted their interest. The winners should have received an email from FAST indicating their award and important next steps on how to accept their offer. Please make sure to check your spam if you submitted an entry. For questions, please email giveaway@cureangelman.org.

We are looking forward to seeing you in December!

If you haven’t yet gotten your own tickets to join us at the Gala this December, you can still purchase them here:

“On Friday September 9th, we hosted our 1st Annual James CAN Golf Outing to raise money for FAST. Our son James was diagnosed with Angelman syndrome in May of this year at 19 months old and while processing the life changing news, we also knew we wanted to dive in and help raise money to find a cure.

Our first event was a wonderful day with friends and family coming out to help meet our fundraising goals and most importantly show their support for James who was the star of the day giving out many smiles and hugs. Thanks to so many people who attended and donated online we were able to raise over $50,000 to help cure Angelman syndrome.

We already can't wait to host our 2nd annual event next year!”

-Kathryn and Anthony

Check out more photos from this hugely successful event on our website!

This is the final week to submit a photo of your child for the 2022 FAST Gala video! We want this video to be transparent and genuine about how Angelman syndrome affects your child every day, so please submit a photo of your child’s success or struggles.

The deadline for photo submission is this Friday, September 23.

Please click here to submit a photo for our Gala video:

Did you submit a photo? Do you know anyone else who would want to? If so, please forward them this link to sign up for our updates.