Greetings!
Welcome to the March 10th edition of CanChild Today! In this issue, we want to highlight exciting awards received by CanChild members, upcoming events, a research opportunity, and lay language summaries of recent publications.
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Congratulations to Peter Rosenbaum and Iona Novak on receiving awards at the IAACD Better Together 2022 Conference! |
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IAACD MacKeith Press Global Award
This award recognizes and highlights an individual or an organization who has made an outstanding contribution to the field of childhood disability with actual or demonstrated potential for global impact.
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Elsass Award MacKeith Press Awards
The award recognizes researchers that have made an exceptional contribution within the field of cerebral palsy across all aspects of human function including motor, sensory, cognitive, psychological and social conditions.
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Upcoming Event: Meet the Experts on Transition! |
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On March 25th, CP-NET and the Health Hub in Transition are hosting a Meet the Expert event on the transition from pediatric to adult-centred care for youth and young adults with special healthcare needs. In this event, you will hear from three people with lived experience:
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Natasha Trehan, a youth who is currently preparing for the transition from pediatric to adult healthcare services.
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Danijela Grahovac, a mother of a 19 year old son with Cerebral Palsy who recently transitioned to adult healthcare services.
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Jessica Geboers, a young adult who will reflect on her transition to adult healthcare experience.
This Meet the Expert event is an opportunity to hear from these three experts and to ask general questions related to healthcare transition. We encourage attendees to actively participate in the event by asking questions and engaging in discussion!
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Upcoming Event: Luke's Legacy Research Rounds |
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CanChild and Kids Brain Health Network are excited to announce Luke’s Legacy Family Research Rounds, a series of monthly virtual research presentations for families, patients and researchers. Presentations are designed in a family-friendly format with an interactive discussion component.
On Wednesday, March 30 at 7 p.m. EST join Dr. Francine Buchanan for her talk: Shared Decision Making: Advancing Decision-Making Research from a Parent's Perspective.
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Dr. Jill Zwicker and her team are currently recruiting parents of children with Developmental Coordination Disorder (DCD) to participate in an online survey.
They are conducting research on the physical, social, emotional and financial impact of DCD on the child and family. The impACT for DCD questionnaire will be used to gather this information to inform the government about the service needs of children with DCD and their families. If you meet the criteria for participation, please click on the link for further details and to complete the questionnaire.
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The criteria to participate in this research is as follows:
- Primary residence of parent(s) and child(ren) is in Canada
- Child(ren) must be under the age of 18 years with motor coordination challenges
- These motor coordination challenges are not because of biological, genetic and/or developmental delays (e.g., cerebral palsy, Down’s syndrome, chromosomal abnormality, etc.)
- Child(ren) may have a diagnosis of DCD, but a formal diagnosis is not required to participate in the study. Parents of children suspected to have DCD may also participate.
- Child(ren) may have other co-occurring conditions that can include autism, ADHD, learning disabilities and/or speech-language deficits.
- Parents can be biological, adoptive or guardian/caregiver
- Parents need to be able to speak and read English or French
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We thank you in advance for your participation in this research study. Please feel free to forward this link to other participants that also meet the listed criteria. For more information,
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Transitions From Youth to Adult Health Care Services! |
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The transition from youth to adult health care services is a critical time when young people are at increased risk for negative health outcomes. To improve this transition, Ontario Health partnered with the Provincial Council for Maternal and Child Health to develop the Transitions From Youth to Adult Health Care Services Quality Standard. The quality standard can be used to help patients, families, and caregivers know what to ask for in their care; to help health care professionals know what care they should be offering; and to help health care organizations measure, assess, and improve their performance in caring for patients. |
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The 24-Hour Activity Guideline Infographic! |
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The link between physical activity and health is clear. Promoting physical activity can be a cheap and first-line treatment for nearly every chronic disease. However, most clinicians do not apply the same level of surveillance, assessment, and management approach to detect problems with physical activity or sleep in children and adolescents with Cerebral Palsy (CP). Consequently, many children with CP miss out on an important first line of treatment. This article presents an evidence-informed clinical practice guide to help practitioners detect 24-hour activity problems in children with CP. This is a critical step to help them adopt healthy lifestyle behaviours, which will provide long-term health benefits. |
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Featured CanChild Product! |
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PREP – Pathways and Resources for Engagement and Participation – is an evidence-based intervention that focuses on enhancing participation through modifying the environment. Using this skills-based approach, therapists work with the client (and his/her parent or caregiver when appropriate) to identify aspects of the environment and the activity that either support or hinder participation.
Together, a plan to minimize and/or remove barriers within the environment and build on existing supports is developed and implemented so that the client can participate in the activities of his/her choice.
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Recent Publications by CanChild Members!
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Waisman-Nitzan, M., Ivzori, Y., & Anaby, D. (2022). Implementing Pathways and Resources for Engagement and Participation (PREP) for Children with Disabilities in Inclusive Schools: A Knowledge Translation Strategy. Physical & Occupational Therapy In Pediatrics, 1–16. https://doi.org/10.1080/01942638.2022.2037809
Pathways and Resources for Engagement and Participation (PREP) for Children with Disabilities works in inclusive schools! This 30-hour interactive program for school occupational therapists aims to enhance their practice and knowledge, and increase the participation of children with disabilities. The study found that therapists gained new knowledge from PREP which led to practice changes (self-reported). Children’s participation did improve significantly after the program.
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Yoo, P. Y., Movahed, M., Rue, I., Santos, C. D. D., Majnemer, A., & Shikako, K. (2022). Changes in Use of a Leisure Activity Mobile App for Children With Disabilities During the COVID-19 Pandemic: Retrospective Study. JMIR Pediatrics and Parenting, 5(1), e32274. https://doi.org/10.2196/32274
Participation in leisure activities is so important for child development. Unfortunately, children with disabilities face more roadblocks to participating in leisure activities compared to peers without disabilities. The Jooay App provides accessible information on participation activities. This study describes the use of the Jooay app before and during COVID-19. Engagement did decrease during the first wave of the COVID-19 pandemic, but the addition of online adapted leisure activities to the app listing did increased use during the pandemic.
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