TRAIL Clinic
Transforming Recovery After Injury for the Long-Term
Spaulding Rehabilitation and Brigham & Women's Hospital join forces to launch pilot clinic that provides interdisciplinary, longitudinal, holistic services after traumatic injury.
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The United States has created an impressive and sustainable trauma system that excels at saving lives after traumatic injury but has failed to achieve comparable success in ensuring that survivors and their families receive the necessary care and support after leaving the trauma center.
The Transforming Recovery After Injury for the Long-term (TRAIL) Clinic, launched on April 26th, is a trauma survivorship model developed in partnership between Brigham and Women’s Hospital and Spaulding Rehabilitation to address the unique needs of trauma survivors. The grant-supported, multidisciplinary pilot program is designed for survivors of traumatic injury who are at highest risk for poorer long-term outcomes such as functional limitations, chronic pain and unemployment.
The clinic will draw from patients admitted to the Brigham Division of Trauma, Burn and Surgical Critical Care. Instead of receiving follow-up care in the standard trauma outpatient clinic, eligible patients will be offered the TRAIL Clinic. Core services will include trauma care, physical rehabilitation, psychosocial services, care coordination and community referrals.
TRAIL Clinic patients will receive a holistic health assessment. The interprofessional team will identify clinical and social needs, develop a collaborative care plan and discuss recovery goals. These assessments will be used to place referrals to community programs. Navigation services will be provided to address any identified barriers to accessing those programs. With a minimum of three TRAIL Clinic visits in the first six months post-discharge, this model offers a longitudinal approach to better match the longitudinal impacts of traumatic injury.
VISIT THE WEBSITE
EMAIL THE TEAM
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WEBINAR
The Insurance Maze: Navigating Coverage After Life-Changing Injury and Illness
Join us as we explore challenges with coverage after life-changing injuries and illness. We will provide case studies and real-life examples illustrating successful strategies for navigating insurance challenges in the context of the journey after initial hospitalization.
Have questions you would like to hear covered during the webinar?
Please register in advance and submit your thoughts at the link below!
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LOCATION
Virtual
DATE
June 11, 2024
12PM - 1PM
COST
Free
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Social Determinants of Health Data in a Learning Health System: Implications for Rehabilitation
Learning Health Systems Rehabilitation Research Network (LeaRRn)
A recent Grand Rounds from LeaRRn focused on Social Determinants of Health data. If you missed, it, access the archived presentation and resources!
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LOCATION
Virtual
DATE
Available Now
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S-IHP's CAP: Intensive Aphasia Program
Spaulding Rehabilitation Hospital and MGH Institute of Health Professions collaborate each fall to offer this unique intensive 6-week Comprehensive Aphasia Program. It is affectionately referred to as “Ship’s Cap” or "S-IHP's CAP".
This innovative, interprofessional Comprehensive Aphasia Program targets an individual’s life participation goals and operates according to the core values of the Life Participation Approach to Aphasia (LPAA). The program features 1-on-1 Therapy Sessions, Group Therapy Sessions, Music Therapy, Swim Group, Wellness Program, and Adaptive Sports Program.
Applications accepted on a first-come, first-served basis, with final enrollment deadline July 31.
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LOCATION
Charlestown Navy Yard
DATE
Early September - Mid October
Tuesday through Fridays
9 AM - 4 PM
COST
$3000
Insurance not accepted. Limited scholarships available based on need.
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Understanding the Role of the Neighborhood Environment in Spinal Cord Injury (SCI) Outcomes
A recent presentation from the SCI Lecture Series was focused on the role of the neighborhood environment in SCI outcomes. MGB employees have access to the full Spinal Cord Injury lecture series. Watch other past recordings such as SCI Induced Osteopororis: New Clinical Practice Guidelines and Emerging Therapeutics and Forging a New Future Participatory Action Design and Engineering Technologies with People with Disabilities.
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LOCATION
Virtual
DATE
Available Now
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ROCS Summer Socials
Join us for the second year of the ROCS Summer Socials. We'll be gathering four times throughout the summer at Pier 6 in Charlestown for some community bonding. Email us to get added to the event series.
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LOCATION
Pier 6, Charlestown Navy Yard
DATE
Four dates throughout the summer
COST
Free with self-pay bar
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NEW PODCAST EPISODE
Building Bridges for Brain Injury: The Legacy of Marilyn Spivack & Dr. Mel Glenn
In this special episode of Finding Strength, we look back at the careers of Marilyn Spivack and Dr. Mel Glenn - major forces in brain injury rehabilitation.
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A Lookback for Trauma Awareness Month | |
Recovery After Moderate to Severe Brain Injury
Giacino, Godaire & Macarty
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No Easy Game: An Intensive Comprehensive Aphasia Program's First Five Years
Ayuk, Black Schaffer, Brady Wagner, Hildebrand, Lanzillo & Nicholas
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Measuring Function After a Spinal Cord Injury:
The SCI-FI
Jette & Skeels
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Which Head Impacts Lead to CTE?
Daneshvar & McHale
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From Survival to Survivorship - Framing Traumatic Injury as a Chronic Condition, Parts I & II
Schneider & Tenney
Estrada & Herrera-Escobar
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FUNDING OPPORTUNITY
Innovative Treatments in Disorders of Consciousness
Spaulding Rehabilitation, in collaboration with the Neurocritical Care Society and the Curing Coma Campaign, announces a funding opportunity to generate and initiate disruptive ideas in the treatment of patients with disorders of consciousness.
These awards will fund innovative pilot studies that create infrastructure to enable larger multicenter collaborations that aim to elucidate neurobiological mechanisms underlying loss and recovery of consciousness, assess potential biomarkers, identify endophenotypes, and conduct RCTs that evaluate biologically plausible treatments.
Letters of Intent will be accepted from June 3, 2024 - July 15, 2024.
LEARN MORE
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Award-Winning Research and Distinguished Service Recognized at the Annual American Burn Association Conference
At the 2024 American Burn Association conference, the Boston Harvard Burn Injury Model System team showcased their research in the field of burn injury rehabilitation, pediatrics, and social participation outcomes. Research Coordinator, Edward Santos received best poster award for "An Examination of Balance Problems in the Burn Population."
Dr. Colleen Ryan, Co-Principal Investigator of the BHBIMS, received the esteemed Harvey Stuart Allen Distinguished Service Award. This award recognizes an outstanding North American scientist for their contribution to the burn field.
Other presentations from the Spaulding team included:
- Examination of Voice Changes up to Five Years After Burn Injury (Chacon)
- Daily Physical Activity Moderates the Relationship Between Symptoms & Social Participation Outcomes After Burn Injury (Deng)
- Self-Management Interventions and Outcome Measures for Individuals with Chronic Traumatic Injury: A Scoping Review (Schneider)
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Pictured left to right: Dr. Jeffrey Schneider, Edward Santos, Dr. Colleen Ryan | |
STAFF SPOTLIGHT
Dr. Chloe Slocum
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Announcing the newest faculty member at the Rehabilitation Outcomes Center at Spaulding: Dr. Chloe Slocum, Director of Health Policy & Advocacy.
Dr. Slocum is a practicing spinal cord injury physician with her clinical work centered around optimizing long-term health for individuals with paralysis. Her research is focused on assessing functional outcomes following rehabilitation, access to high-quality primary and specialty care, and systems of health care delivery across the post-acute care continuum for individuals with disabilities. Dr. Slocum has published research on functional outcomes following traumatic spinal cord injury and has lectured nationally on topics ranging from spinal cord injury outcomes to health policy and payment reform to clinician well-being.
Dr. Slocum holds related positions across Mass General Brigham, including as Associate Chair of Quality for the Department of PM&R, and Director of Health Policy at Spaulding Rehabilitation. She was recently appointed as the Associate Program Director for the new Advocacy and Public Policy Leadership Program, from the Association of Academic Physiatrists. This exciting new program will begin at the 2025 Annual Meeting.
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Collaboration in Action
ROCS collaborators from across the country visited Boston in February, with lots of discussion around active and future projects, and presentations on data visualization from our LeaRRn scholar Dr. Alison Cogan, and the CRS-R Recovery Ruler from Dr. Jen Weaver.
Pictured clockwise from top left: 1) Dr. Mary Slavin scores big. 2) Dr. Joseph Giacino and Dr. Daniel Daneshvar in serious debate. 3) Dr. Carla Tierney-Hendricks and Dr. Jen Weaver having fun. 4) Dr. Alison Cogan and Dr. Mary Slavin deep in conversation.
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Advocacy at Work!
PCA Cuts Removed from State Budget
Dozens of people with disabilities held a four-hour protest in front of the governor’s office, telling Healey’s aides that they were “thrown under the bus” by her budget that would cut over $100 million worth of services they need to live at home and maintain their independence.
The House Ways and Means Committee version of the budget, which was unveiled on Wednesday, protects the parts of the Personal Care Attendant program that Healey aimed to cut.
READ MORE
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National Burn Awareness Week 2024
The Boston Harvard Burn Injury Model Systems (BHBIMS) team participated in National Burn Awareness Week to mobilize burn, fire, and life safety educators to unite in sharing burn awareness and prevention messages to their communities. This year the theme was “Flammable Liquids.” As part of BHBIMS efforts to spread awareness on the impacts of burn injury, the team and Burn Survivors of New England hosted education tables for patients and clinicians at Spaulding and Mass General Hospital.
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May 13: Disability Pride Day at Fenway
Get tickets to the annual Disability Pride Celebration at Fenway Park on Monday, May 13. Ticket holders who purchase through this special offer will receive an exclusive Red Sox hat with the Disability Pride flag as well as braille lettering spelling Fenway Park on the brim.
GET TICKETS
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Spaulding Represented at the Brain Injury Association of Massachusetts Annual Conference
Ally Sterling from the Spaulding-Harvard Traumatic Brain Injury Model System program presented on "Multicenter Validation of a Telephone-Based Approach to Longitudinal Assessment of Outcome After Severe Brain Injury."
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Calling All Burn Survivors!
The Model Systems Knowledge Translation Center is in need of burn survivors to provide feedback on a new resource on Laser Therapy and Burn Scars!
Participation involves a one hour zoom call and compensation will be provided. Please help us make this resource the best it can be for fellow survivors!
Interested? Contact: msktc@air.org
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Summer Safety: Sun Protection after Burn Injury
Healed burns or skin grafts may be extremely sensitive to sunlight and may sunburn more severely even after short periods of time in the sun. The Model Systems Knowledge Translation Center has lots of excellent resources, including information on sun protection after burn injury.
READ MORE
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Free Trainings from Massachusetts Office on Disability
The Massachusetts Office on Disability (MOD) provides information, guidance, and training on disability-related civil rights and obligations. Check out their excellent spring lineup of trainings including:
- Disability Employment Workshops
- Reasonable accommodation and modification requests in housing
READ MORE
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PCORI Foundational Expectations for Partnerships in Research
The Patient-Centered Outcomes Research Institute (PCORI) has developed six foundational expectations—building blocks for meaningful, effective, and sustainable engagement with patients, communities, and other partners in research. Explore ways to tailor them by each expectation or by examples in practice.
READ MORE
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In this cross-sectional study of 178,195 traditional Medicare and 107,102 Medicare Advantage patients, Medicare Advantage patients had shorter home health lengths of stay and fewer nursing, therapy, and aide visits compared with similar patients with traditional Medicare. Medicare Advantage patients were more likely to be discharged to the community compared with Traditional Medicare but had lower likelihoods of improving in self-care and mobility function.
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In capitated health care payment models, commonly used in managed care plans and value-based care, providers receive a lump sum per patient that’s intended to cover all costs, regardless of the type or frequency of services delivered. In this way, capitation can encourage the delivery of more cost-effective, higher-quality care. But different patients need different levels of care, and the cost of that care varies. If providers’ costs end up exceeding what they were prospectively paid, they are at risk of financial losses. And if these risks aren’t managed well, providers could — and, in the past, have — avoided caring for patients who are more expensive to treat. Risk adjustment can help avoid these problems.
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In this final review in the series on wearable DHTs, we highlight important challenges that must be met to integrate the devices into clinical guidelines and practice. We have deliberately grounded our narrative in what is possible today, but we also speculate about specific uses of wearable DHTs in the future.
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