New Round of Civic Engagement and Advocacy Begins: This last year was amazing as more and more families and self-advocates told their stories. We all have worked together to put advocacy first and foremost to impact policymakers and improve supports for individuals with intellectual and developmental disabilities. We are already working towards next year and further expansion. As families, providers, and self-advocates attended 80 delegation meetings throughout the state, individual stories of families were the catalyst in moving forward as well as the core of our statewide advocacy. Whether experiences are good or bad, the storytelling gives transparency and is the foundation for policymakers to make good decisions for our vulnerable population. HIPAA and many other confidentiality laws protect families and make it difficult for policymakers to hear their personal stories. At the same time, surpluses in the state budget leads those policymakers to believe there is enough money supporting the existing program. As we further advocate and develop relationships with legislators, we want to highlight FOX 13 Chief Investigator Craig Patrick’s series “Disabled Floridians in Crisis and a Lesson in the Power of Civic Engagement.” Having a reporter’s insight into families and advocates connects the dots for our communities to expand even further. This 7-minute video created by Patrick discusses what occurred this year as families with disabilities made a difference through civil engagement. We urge each of you to continue to share your stories with legislators and influencers. Our June Advocacy Meeting, Wednesday, June 5, will recognize FOX 13 Chief Investigator Craig Patrick with our Journalist of the Year Award. Mark your calendar to attend! 
Self-advocate and Family Inspired Legislation. 

Senate Bill 1785, sponsored by Senator Jason Brodeur and Rep James Buchanan (companion HB 1271), along with Chair Fine, was perhaps the most impactful bill this legislative session for individuals with intellectual and developmental disabilities. Its passage was a tribute to self-advocates and families who personally talked to policymakers. 

This new law mandates the Agency for Persons with Disabilities:

  • Provides care navigation services to clients and their caregivers.

  • Requires the integration of care plans with Individual Education Plans (IEP) for public school students.

  • Introduces an online application process for services.

  • Ensures immediate receipt confirmation and maintaining access to paper applications.
  • Alters the timeframe for eligibility determinations and lowers the age requirement for caregivers in a specific pre-enrollment category.

  • Directs the development of a comprehensive plan for a new home and community-based services Medicaid waiver program targeting clients transitioning into adulthood.  
Mark your calendars! We are putting the final touches on speakers and sessions for our #AdvocacyDays Conference this September 13-15 at Disney’s Coronado Springs. Jonathan Martinis, Esq., J.D, Senior Director for Law and Policy with the Burton Blatt Institute at Syracuse University, will be our keynote speaker. In 2013, Jonathan represented Jenny Hatch in the nationally acclaimed “Justice for Jenny” case, helping Ms. Hatch secure her right to live where and how she wants, to make her own decisions, and direct her own life. Jenny’s case was the first trial to hold that a person with disabilities has a right to engage in “Supported-Decision Making,” where people work with trusted friends, family members, and professionals to help them understand the situations and choices they face, so they may make their own decisions – rather than be subjected to a unnecessary permanent, plenary or full guardianship. Registration opens in May. Learn more here!


Thank you for your advocacy! If you want additional information regarding this issues, please contact our CEO Alan Abramowitz at alan@arcflorida.org or 850.241.3232.
https://www.arcflorida.org/