Hope For Hypothalamic Hamartomas - March 2022
Celebrating our Impact

We are excited to share our Impact Report for 2020-2021 and highlight the achievements of the organization and our Hope for HH community. The report can be downloaded here.

We are looking forward to the new opportunities 2022 brings and the ongoing impact for our community and advancing critical research of Hypothalamic Hamartoma Syndrome.

The Hope for HH Board of Directors and our dedicated volunteers would like to thank our Hope for HH community for your unwavering support and generosity.

Warm Regards,
Hope for HH Board
Upcoming 2022 Meet & Greets
We launched the Meet & Greets in 2021 and we were able to bring together individuals and families from around the world. We are so happy to announce we'll be hosting additional Meet & Greets in July 2022 with a continued focus on providing a platform to connect our Hope for HH community. The groups will be divided by age (0-5 yrs, 6-12yrs, 13-18yrs, 18+).

Registration will begin in mid-May and will be limited so make sure to stay connected so you don't miss out on this opportunity to connect with others on this HH journey.
Latest New and Articles
Volunteers Needed
We are currently looking to add volunteer members to our Finance Committee. Are you driven to help others in the Hope for HH community and have a background as a certified public accountant (CPA)?

To find out more about this opportunity we invite you to complete the following Volunteer Inquiry Survey form and start the process to become a volunteer.
Hope For Hypothalamic Hamartomas | www.hopeforhh.org | info@hopeforhh.org