We are working on the Conference agenda, which will be posted on our 2023 Conference webpage as soon as it is ready.

If this will be your first PSC Partners Conference, be sure to visit the Annual Conference Page to learn more about this annual event. You can also get answers to frequently asked questions by visiting our 2023 Conference FAQ page.

It has taken us awhile to find a covid-friendly venue for our group with the best post-pandemic pricing available, and, now that the decision has been made, we wanted to get the date and location out ASAP. We'd love to hear from you. Please add your questions, comments, and/or ideas to the form on the bottom of the 2023 Conference webpage. Feel free to also reach out via email, contactus@pscpartners.org, or phone, 303-771-5227.

The PSC Partners staff and board of directors are excited to work with this year's Conference Co-Chairs Dr. Josh Korzenik and Dr. Chris Bowlus to ensure that the event will be impactful for our entire community, including patients, caregivers, friends and family, medical providers, researchers, industry representatives, and other attendees. More information will be posted as the Conference date gets closer.

We rely on community and corporate support for our Patient and Caregiver Conference. Won't you help? There are numerous levels and many ways to get involved. A Sponsorship Packet will be available soon and posted on the 2023 Annual Patient and Caregiver Conference webpage. To speak with someone directly, email our Development Director Elizabeth Leachman, elizabeth@pscpartners.org, or call 303-771-5227.

We'd love to hear from you. Visit the 2023 Annual Conference page on our website, and fill out the form at the bottom of the page. You can also reach out via email, contactus@pscpartners.org, or call 303-771-5227.

Join a Peer-to-Peer ZoomRoom to Chat with

In episode 37 of the Living with PSC Podcast, Host Niall McKay talks with Dr. Laura Cristoferi, hepatologist, clinical research fellow, and PhD candidate, at Milano Bicocca University in Italy. They discuss PSC diagnosis and disease progression, the importance of PSC registries to share knowledge and improve research, various PSC therapies, and more.

Dr. Cristoferi highlights various research endeavors including her project aimed at discovering biomarkers to enable a more precise determination of PSC disease progression over time.

Check Out Episode 37 HERE.

To learn more about the PSC Partners Patient Registry, click here.

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Independent Media Producer, Director, and PSC Patient Niall McKay. Each month, this podcast explores the latest research and knowledge about PSC. Topics include patient stories, latest research updates from PSC experts, collaborations that are necessary to find better treatments and a cure, and more. This podcast has it all!

Click here for links to all Living with PSC episodes.

Living with PSC can also be found wherever you download your podcasts.

In her book Sandi's Journey, which is available on Amazon, Sandi often talked about the PSC Partners Annual Patient and Caregivers Conference. In the summer of 2009, she reflected upon her feelings as she stepped into the Conference venue.

"I arrived and realized that life changing isn't just once in a lifetime, and it's not just for those who have never been part of a PSC Partners Conference before.

To be honest, I'm not sure when it hit me. It may have been when the first attendees started wandering the halls. It may have been as we were packing up and preparing goody bags to hand out. It doesn't matter. All that matters is that, suddenly, I was at ease. I felt relaxed and happy and whole.

I wasn't the sick girl in the room. I was just in a room with a bunch of people like me who were proudly wearing their blue dots (PSCers) and their yellow dots (caregivers) and their red dots (first-timers) and green ones (transplant) all declaring that we were members of the same group, of the same family - that we were ones who belonged."

"I'm supporting efforts to find treatments and a cure for PSC because, well, it can be brutal. It literally breaks my heart that anyone has to live with a disease like PSC, and I want to do whatever I can to keep funding research and patient programs to make life with PSC a bit easier until there is a cure." - Jason Sparks, post-transplant PSC patient and top fundraiser for the 2022 WALK83.01 for PSC event

Reach out to PSC Partners at contactus@pscpartners.org with your blog idea.

Save the Date for the Third Annual WALK83.01 for PSC

We hope you’ll join the PSC Partners staff and board of directors on our mission to raise PSC awareness and funds by walking 83.01 miles (133.5 km) between June 1-July 31, 2023. This is the third year of this virtual event, which has raised more than $200,000 for PSC research since the first walk in 2021.

(Note: The event has been shortened from three to two months this year.)

For this fundraising event, walk as an individual or gather a team, wear PSC Partners gear (Link to Shop Here), and raise funds for PSC research! Donations can be made per mile/km or given in one lump sum. $83.01 is the suggested donation, but feel free to raise more or donate whatever amount feels comfortable to you.

We are hard at work on a new, more user-friendly WALK83.01 registration and fundraising page. We'll alert you via email and social media when we are ready. In the meantime, please save the date.

Shop • COVID-19 • Volunteer • Ways to Give