June 2022
Welcome!

The CP-NET Today! newsletter will keep you updated on exciting research and developments in the area of Cerebral Palsy (CP) research funded by the Ontario Brain Institute (OBI), as well as news and events of interest to the CP-NET community. Please feel free to share this newsletter with family, friends and colleagues. They can subscribe to the CP-NET Today! e-Newsletter for free by registering here. Don't forget to check the cp-net.org website for more great resources on CP.
Meet the Expert Series
Meet the Experts on Baby Constraint Induced Movement Therapy - Let's Play! On June 27th, CP-NET is hosting a Meet the Expert event on baby constraint induced movement therapy. Click here to register for the online event.
Save the Date! CP-NET Science and Family Day
October 6th, 2022
Study Recruitment
Hip Surveillance in children with cerebral palsy
Are you a caregiver of a child with cerebral palsy (CP)? We want to hear from you!

CP-NET is recruiting parents and caregivers of children up to age 16 with any type of CP to take part in a research study. The study will help us learn what information you need on hip surveillance for your child. Currently, there is a gap in knowledge about hip surveillance and its importance for children with CP.

Your participation would involve an interview or focus group to learn about your experiences and information needs. This will be used to develop educational materials on hip surveillance.

Contact hopmansn@mcmaster.ca if you are interested!

Study Recruitment

Gross motor function at home and in the community
Do you have a child or adolescent with Cerebral Palsy between 2 and 18 years?

Would you like to participate in a measurement study to test a new instrument called: the GROSS MOTOR FUNCTION FAMILY REPORT?

It will only take between 5-15 minutes of your time, and you can do it online, at your home, in the best time for you.

If you are interested or have any questions, please email: chagasp@mcmaster.ca
Recent Publications by CP-NET Members

In this cross-sectional study, the authors explore if demographics, social and clinical questionnaire scores, and cortisol levels in hair samples from adolescents and young adults (AYA) with cerebral palsy (CP) are associated with higher scores on anxiety and/or depression questionnaires. Data from a community-based sample of 63 AYA with CP were analyzed. 65% of participants provided a hair sample. Clinical depressive and anxiety symptoms were present in 33% and 31% of participants, respectively. Family functioning, fatigue, and pain were statistically significant predictors of depressive symptoms. Fatigue and pain were statistically significant predictors of anxiety. Cortisol levels from hair samples were not found to be associated with depressive symptoms or anxiety. Overall, integrating mental health support into regular care for AYA with CP is recommended.

Authors: Jan Willem Gorter, Darcy Fehlings, Mark A. Ferro, Andrea Gonzalez, A., Amanda D. Green, Sarah N. Hopmans, Dayle McCauley, Robert J. Palisano, Peter Rosenbaum, Brittany Speller, & on behalf of the MyStory Study Group
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If you have any questions or comments, please contact us at  cpnet@mcmaster.ca
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Funding for CP-NET is provided by the Ontario Brain Institute and our partners.
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