November 2022
Welcome!
The CP-NET Today! newsletter will keep you updated on exciting research and developments in the area of Cerebral Palsy (CP) research funded by the Ontario Brain Institute (OBI), as well as news and events of interest to the CP-NET community. Please feel free to share this newsletter with family, friends and colleagues. They can subscribe to the CP-NET Today! e-Newsletter for free by registering here. Don't forget to check the cp-net.org website for more great resources on CP.
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CP-NET Science and Family Day Videos are out NOW! |
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We are excited to share the video recordings from the 2022 CP-NET Science and Family Day Event. You can watch them by visiting the CP-NET website or click on the video thumbnails below!
We would greatly appreciate your time to provide feedback on the videos you have watched. Click here to tell us know your thoughts and perspectives on the videos.
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CP-NET Photo Contest: Time to Vote! |
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CP-NET is hosting a photo contest to showcase participation of individuals with cerebral palsy! Take a look at the great photo submitted by families of children with cerebral palsy and vote on your two favourites!
The voting will close on December 2nd at 4:00pm ET, so make sure to cast your vote and share with friends and family!
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Winners of the photo contest will be announced on December 3rd!
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CP-NET's Youth Engagement in Research Team Presenting at the CHILD-BRIGHT Virtual Symposium
December 9, 2022 | 12:00-4:30pm ET (poster presentations 3:30-4:30)
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This year’s virtual symposium will feature short presentations of CHILD-BRIGHT’s research projects, including a project initiated by members of theCP-NET Stakeholder Advisory Committee! Learn more about the Youth Engagement in Research project here and tune in to the CHILD-BRIGHT symposium for the poster presentation between 3:30-4:30pm ET.
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The Youth Engagement in Research study aims to develop training materials with and for youth with neurodevelopmental disabilities to support their knowledge, skills, and confidence as research partners. |
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CP-NET on the World Stage! |
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Members of the CP-NET Stakeholder Advisory Committee showcased CP-NET's knowledge translation activities and stakeholder engagement initiatives through a poster presentation at the Developmental Origins of Health and Disease World Congress in Vancouver!
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Click the image above to view the poster! |
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Your Brain Health Series: Women's Brain Health
December 7 2022 | 6:00-7:00pm ET
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Women’s Brain Health, the third talk in OBI’s ‘Your Brain Health’ series, will touch on sex and gender differences in people living with brain disorders, such as multiple sclerosis (MS), epilepsy, and concussion Join OBI as they uncover research on brain disorders that affect women’s lives and meet the leaders who are creating change. Read about the speakers:
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Gena Meldazy, who lives with epilepsy, is an advocate for epilepsy awareness as a member of the EpLink Community Advisory Council.
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Halina (Lin) Haag, a PhD candidate and faculty member with the Faculty of Social Work at Wilfrid Laurier University and a research trainee at the Acquired Brain Injury Research Lab at the University of Toronto.
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Dr. Sarah Morrow, an Associate Professor in the Department of Clinical Neurological Sciences at Western University and Director of the London MS Clinic (London Health Sciences Centre).
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Volunteers needed for research study!
If you are:
- a) Between the ages of 5-25 years and do not identify as a person with a disability,
- b) 5-25 years old with Severe Motor and Communication Impairments (including Cerebral Palsy) and their caregiver, OR
- c) 5-25 years old with Down Syndrome
and would like to participate in a study researching different uses of wearable technology contact: Caryn Vowles, Sydney van Engelen, or Mackenzie Collins at bdatlab@queensu.ca for more information!
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Participate in Research:
A personalizable access technology for children with cerebral palsy and complex communication needs
- Do you have a child with CP and complex communication needs?
- You might be interested in participating in this study at Holland Bloorview Kids Rehabilitation Hospital.
Looking for more information? Please click here to see our flyer.
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If you think this might be useful for your child, or if you have any questions, please feel free to contact our research team:
Sarah Irwin
sirwin@hollandbloorview.ca
(416) 425-6220 ext. 3270
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TRANSITION TO ADULTHOOD DURING COVID-19: Learning from Canadian Youth with Special Healthcare Needs and their Families to Foster Effective Transitional Care Interventions
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We are looking for youth with special healthcare needs (diagnosed with a disability or chronic physical/mental health condition):
- Between the ages of 16-24
- Living anywhere in Canada
- To participate in an online interview (alternative formats available to ensure accessibility)
Participants will receive a $50 gift card.
This study has been reviewed by the Hamilton Integrated Research Ethics Board under project #14471
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Recent Publications by CP-NET Members |
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The purpose of this study was to understand clinicians' perspectives on using inpatient cycling-based exergames for children with cerebral palsy (CP) in their practice. In the study, 16 clinicians (nurses, physiotherapists, recreational therapists) participated in an interview. From the interviews, the authors found key enablers to clinician use of exergames in their practice. Enablers included revision of clinician roles and responsibilities, the belief that children with CP will benefit from exergames, and the belief in potential applicability to other pediatric populations. Barriers included a lack of time and exergame responsibilities not aligning with perceived clinician roles. Overall, this study identified key barriers and enablers that should be considered when incorporating exergames into rehabilitation practice.
Authors: Analyssa Cadenas, Marina Petrevska, Elaine Biddiss, and Darcy Fehlings
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A province-wide collaboration between: |
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STAY CONNECTED WITH CP-NET! |
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