DIG cropped.gif

2022 Monthly Newsletter

Visit our Website

A note from Debbie....

debbie and justine working on a large TV screen with lucy on the floor preparing for give miami day

I want to thank everyone that donated to DIG on Give Miami Day. It means so much to us. We raised $5,520.01 from 32 unique donors. I always feel like everyone that works with DIG becomes a part of our family and we take every connection very personally. The DIG family sends everyone hugs and smiles.


Justine was instrumental in preparing us for Give Miami Day. She created all of our images and designed all of the emails and social media posts. She is a wonderful part of our DIG family, and we are so excited to keep expanding her role at DIG. Starting in January Justine will become the official editor of the newsletter.


We will be looking for new ideas and suggestions as we move into 2023. If you have any thoughts or ideas, you can email Justine directly at justine@justdigit.org.


I hope everyone enjoys time with friends and family during the holidays.

Facebook  Instagram  Twitter  YouTube  LinkedIn  TikTok
Donate Here
tiktok logo.png

Tik Tok


Follow us @DIGMiami 



Out and About with DIG

Matthew Dietz and Genesis Espaillat, one of the DIG MIA Liaisons (11.15.22)

The DIG table at the Coral Gables Adventure Day Festival (10.22.22)

Debbie and DIG MIA Liaison Kat Magnoli at the Coral Gables Adventure Day Festival (10.22.22)

Debbie and Lucy setting up at the Coral Gables Adventure Day Festival (10.22.22)

Debbie and the amazing Catie Hastings (10.22.22)

Debbie and Matt and the Abilities Expo (11.05.22)

Debbie at the Abilities Expo (11.05.22)

Debbie, Matt, and Wren Ruiz riding on the Beep Shuttle at Zoo Miami. DIG was testing the semi-autonomous vehicle to check for accessibility. (11.19.22)

Phyllis Resnick performing an afternoon of drama and comedy. (11.20.22)



Debbie and Steph Conti sitting together at the Parent to Parent Miami Gala. (11.05.22)



DIG Litigation Update

Disability Independence Group’s Litigation Department is closed.

 

If you have a disability legal question, you can contact Professor Matthew Dietz at his clinical office at Nova Law School. 

 

Professor Dietz is currently operating a disability law clinic out of Nova Southeastern University Law School. 


His email is now mdietz@nova.edu, and the clinic’s phone number is 954-262-6063.


If you have a disability education issue, such as an IEP or Exceptional Student Education, you can contact Ms. Langer at her own private law firm, Langer Law, PA.  


Her website is: https://langerlawpa.com/


Ms. Langer has created an Education Helpline.


Through the Education Helpline, Ms. Langer will offer advice and support to families navigating through the education system.


The Education Helpline will allow you to self-book an appointment at your convenience.


Langer Law, P.A. also offers meeting preparation, document(s) review, litigation support, coaching, guardianships, advance directives and supported decision making, partial and full representation.


If you have any questions or problems scheduling an appointment through the Helpline, or need any accommodations, please send an email to helpline@langerlawpa.com.

Give Miami Day 2022

We raised $5,520.01 from

32 unique donors

Thank You!

The View From Here

By: Justine Chichester

Justine Pic.jpg

“I know what it’s like to have the words in my head and to try to get them out of my mouth and just not be able to quick enough. – Brianne Williams, Stroke Survivor in an NBC Interview


Tears welled up in my eyes as I watched John Fetterman, candidate for Senate in Pennsylvania, give his acceptance speech in the early morning hours of November 9th this year. The emotions I felt were not because I am a Pennsylvanian, or particularly political, or even a John Fetterman fan. I became emotional in those early morning hours watching him give his speech, because I understand what he had to overcome to get there.


While campaigning for Senate, Lt. Governor John Fetterman suffered a stroke that compromised his speech processing capabilities. He continued his campaign for Senate while recovering from the stroke. During a debate shortly before election day, Fetterman often stumbled when responding to the moderator’s questions, for which he was highly criticized. To aid him during the debate, he had access to closed captioning on two 70-inch screens placed above the moderators. I remember watching the news the day after the debate and was mortified when one newscaster characterized Fetterman’s performance as “difficult to watch.” I, on the other hand, and I believe many other survivors out there thought it was a triumph of someone who fought back and showed tremendous courage in the face of adversity and intense scrutiny.


After my spinal cord injury in 2014, I began to suffer extreme confusion and became unable to properly express myself. MRI and CT scans revealed that, in addition to my spinal cord injury, I had hydrocephalus and needed surgery to place a shunt in my brain. I look back now on that confusing and difficult time and am so thankful I made a full recovery. I wasn’t sure I would ever be the same again. While my condition was not the same as Mr. Fetterman, I can sympathize with his fight to get back to who he was, and I admire his determination to participate in that debate and continue on with his campaign, despite all of the criticism.


Fetterman sustained an ischemic stroke, which occurs when a blood clot impedes the flow of oxygen and other nutrients to the brain. Consequently, certain brain cells can incur damage that may result in the post-stroke difficulties that someone like Fetterman faces. But there is generally a lot of opportunity for progressive healing. 


It is apparently a common misconception that someone who struggles to speak following a stroke is necessarily compromised cognitively, said Dr. Kevin Sheth, chief of the Division of Neurocritical Care and Emergency Neurology at the Yale School of Medicine. Dr. Sheth differentiates between the intellectual and cognitive capacities of stroke survivors and their ability to process language and communicate. Dr. Sheth also indicated during his interview with NBC that it is reasonable to expect that the Democratic Senator-Elect, John Fetterman, will continue to improve over the coming months.

 

Despite facing criticism, I am hoping John Fetterman’s successful fight for a Senate seat after suffering a stroke will shed a little light on many different types of survivors and what we have to overcome every day, ourselves, to succeed. May he serve as a role model to those of us who are just finding out what is possible on our own journeys toward success. 

The 988 Lifeline

blue square with 988 suicide and crisis lifeline written in the middle

988 is now active across the United States.


988 has been designated as the new three-digit dialing code that will route callers to the National Suicide Prevention Lifeline (now known as the 988 Suicide & Crisis Lifeline) and is now active across the United States.


When people call, text, or chat 988, they will be connected to trained counselors that are part of the existing Lifeline network. These trained counselors will listen, understand how their problems are affecting them, provide support, and connect them to resources if necessary.

 

This new, shorter phone number will make it easier for people to remember and access mental health crisis services.

(Please note, the previous 1-800-273-TALK (8255) number will continue to function indefinitely.)

Click below to learn more about 988.


LEARN MORE

Miami Inclusion Alliance (MIA)

By: Sharon Langer

mia lowercase.png

This month, I want to introduce you to an issue that is well-documented in the medical field but still just beginning to get addressed by the Domestic Violence System of Care.

 

While we have known for decades that abusers often intentionally target the victim’s head, neck and face, we are just beginning to understand the way these assaults impact the brain and how it has lasting impacts on the victim.

 

The numbers can be as high as 8 in 10 victims accessing DV services have experienced head trauma that caused brain injury.

 

Victims with brain injuries often have difficulty communicating. This can cause all kinds of difficulties because the system is built on the communication of facts and circumstances to establish a case for protection. Communicating with authorities, physicians, and advocates, about what happened is central to getting help.

 

The practical consequences of these communication difficulties are the under identification of abusers and more victims being exposed to further violence, less successful criminal justice prosecutions and victims not receiving the full spectrum of services they really need.

 

The problem is that many times these injuries are not identified and therefore not treated.

 

Many DV victims never receive a formal diagnosis of a brain injury in part because they rarely have visible injuries. 

 

To improve the identification of victims with head injuries, we need to adopt new screening methods and assessments. We need better protocols to screen DV victims for invisible injuries and brain trauma, and we need to recognize that there are many ways brain injuries can affect a victim’s success in moving through the DV system.

 

The first step has already been taken as there is now conversations about brain injuries and DV going on all over the country.

 

Fortunately, there are tools already used for sports injuries and accidents that could be adapted for use in screening victims of DV.

 

This new recognition that this is a serious problem, and the fact that tools exist already, should lead to the crafting of collaborative solutions between everyone that interfaces with victims.

 

This includes law enforcement, criminal justice professionals, mental health and medical professionals, and everyone who works with a victim throughout the system.

 

I have attended several seminars on this topic in the last year and will bring you more information as we continue, as a community, to address these issues.

amazon smile.png
Does your pet have a FLorida Bar_k_ Card.png
Wallet Card Logo 2021.png

The wallet card is a tool to be used by a teenager or an adult with a disability.


Currently, we have developed cards for persons with Autism Spectrum Disorder (ASD) or intellectual disabilities. 

We have finished our new caregiver card.


You can start ordering them online on our website.


Check out our new Facebook page for The Wallet Card Project.

Order a Wallet Card Here

Benefits Information

By: Lesly Lopez

Work incentives Protecting Health Coverage for People with Disabilities

 

Many SSA beneficiaries are afraid of losing their health insurance coverage because of employment however SSA provides protections to SSA beneficiaries to be able to work and keep their Medicare or Medicaid.

 

Extended Medicare Coverage for Working People with Disabilities. Beneficiaries receiving SSDI

 

As long as your disabling condition still meets our rules, you can keep your Medicare coverage for at least 8 ½ years after you return to work. (The 8 ½ years includes your nine month trial work Period)


Your Medicare hospital insurance (Part A) coverage is premium-free. Your Medicare medical insurance (Part B) coverage will also continue. You or a third party (if applicable) will continue to pay for Part B. If your Social Security Disability Insurance cash benefits stop due to your work, you or a third party (if applicable) will be billed every 3 months for your medical insurance premiums. If you are receiving cash benefits, your medical insurance premiums will be deducted monthly from your check.

 

Continued Medicaid Eligibility (Section 1619(B)).

Beneficiaries receiving SSI

 

One of the biggest concerns SSI beneficiaries have about going to work is the possibility of losing Medicaid coverage. Section 1619(b) of the Social Security Act provides some protection for these beneficiaries. To qualify for continuing Medicaid coverage, a person must:


  • Have been eligible for an SSI cash payment for at least 1 month;
  • Still meet the disability requirement; and
  • Still meet all other non-disability SSI requirements; and
  • Need Medicaid benefits to continue to work; and
  • Have gross earnings that are insufficient to replace SSI, Medicaid, and publicly funded attendant care services.

 

This means that SSI beneficiaries who have earnings too high for an SSI cash payment may be eligible for Medicaid if they meet the above requirements. SSA uses a threshold amount to measure whether a person’s earnings are high enough to replace his/her SSI and Medicaid benefits. This threshold is based on the:


  • Amount of earnings which would cause SSI cash payments to stop in the person’s State; and
  • Average Medicaid expenses in that State.


If an SSI beneficiary has gross earnings higher than the threshold amount for his/her State, SSA can figure an individual threshold amount if that person has:



The state of Florida 2021 annual threshold amount for disabled and blind beneficiaries is $32,642.

 

Other healthcare coverage options while you work:

 

Market Place or Affordable Care Act

A service that helps people shop for and enroll in affordable health insurance. The federal government operates the Marketplace, available at HealthCare.gov, for most states. Some states run their own Marketplaces.


The Health Insurance Marketplace (also known as the “Marketplace” or “exchange”) provides health plan shopping and enrollment services through websites, call centers, and in-person help.

When you apply for individual and family coverage through the Marketplace, you’ll provide income and household information. You’ll find out if you qualify for:


  • Premium tax credits and other savings that make insurance more affordable
  • Coverage through the Medicaid and Children’s Health Insurance Program (CHIP) in your state


On HealthCare.gov, you may be asked to select your state or enter your ZIP code. If you live in a state that runs its own Marketplace, we’ll send you to your state’s Marketplace website.

 

Medicaid Share of Cost or Medically Needy

The Department of Children and Families (DCF) determines eligibility for the Medically Needy Program. It may also be referred to as the “Share of Cost” program. The Medically Needy Program assists individuals who would qualify for Medicaid except for having income that is too high. Individuals enrolled in Medically Needy may have a monthly “share of cost”, which is similar to an insurance deductible. The share of cost is determined by household size and gross monthly income. When there are changes to the household size and income, the share of cost amount may change.


Some examples of medical expenses that can be used to meet the “share of cost” • Unpaid medical bills owed that have not been used to meet the share of cost before. • Medical bills the individual paid within the last three months. • Health insurance premiums • Medical bills that will not be paid by health insurance or any other source. • Co-pays for medical bills. • Medical services prescribed by a doctor. • Transportation by ambulance, bus or taxi to get medical care.


For more information about the Medicaid share of cost please visit http://www.myflorida.com/accessflorida/

 

Community Health clinics CHI

Community Health of South Florida Inc. is a nonprofit healthcare organization providing affordable quality primary and behavioral healthcare services to the residents of rapidly growing South Florida. CHI operates 11 state-of-the-art primary care centers and 31 school-based programs. All centers offer quality comprehensive primary and behavioral health care services. Our physicians are board-certified or board eligible. Additionally, CHI is accredited by the Joint Commission and is accredited as a Level 3 Patient-Centered Medical Home by the National Committee for Quality Assurance (NCQA). CHI offers a “one-stop-shop” model where the organization and delivery of quality services are seamless, affordable, accessible, and culturally sensitive.


For more information visit the website http://www.chisouthfl.org/

 

If you are an SSI or SSDI beneficiary and need an individualized analysis of your situation please contact the Community Work Incentives Coordinator or benefits Planner in your area. For South Florida contact the WIPA project at 305 453 3491 Lesly Quin

ATVFL - without accessible icon _005_.png

Access The Vote Florida (ATVFL) is a state chapter of AAPD’s REVUP Campaign. REV UP stands for: Register! Educate! Vote! Use your Power!


The chapter is a statewide coalition of organizations and self-advocates that are working to raise awareness about issues that impact persons with disabilities, encourage people with disabilities to participate in the voting process, and educate elected officials on issues important to persons with disabilities.


Email Olivia at oliviab@drflorida.org to get on our mailing list.

ATVFL Website
black rectangle box outlined with a yellow line and the words Supper social club in the box in white

This Supper Social Club is on hold for now.


However, if you are looking for something fun to do, you should check out My Squad and Teen Scene.


Two new programs sponsored by the City of Coral Gables.


You can text (305) 978-1196 (text preferred) for more information.


Teen Scene at Squad Lodge


Dec. 1 - Play outdoor games


Dec. 29 - Cookout and S'mores


My Squad


Nov. 30 - Outdoor games and light up art


Dec. 28 - Cookout and S'mores


 

My Squad Tickets are $5.00 and available at www.playgables.com.


Select “Event Calendar” if accessing from a cellphone, the dates will be stacked vertically, keep scrolling down to the date of the event. 

book your upward journey by patricia bochi.jpg

Your Upward Journey


In a nutshell, Your Upward Journey:


It is Easier Than You Think!, a three-part project (book, self-help seminars and merchandise sale).


Click Here for More Information

Facebook  Instagram  Twitter  YouTube