ACCESS NONPROFIT CENTER

Parenting Black Children

Decrease Disparities Increase Access to resources & information for

Black/African American Families experiencing Autism & Developmental Disabilities

November Resource Newsletter

Epilepsy Awareness Month



Improving Epilepsy Outcomes for

African Americans

Table of Contents

01 Director's Note: Ardena Bartlett

02 Epilepsy Resources

03 Upcoming Events and Programs

04 Department of Developmental Services (DDS)

05 San Gabriel Pomona Valley Regional Center (SGPRC)

06 Parent's Place Family Resource Center

07 Inland Regional Center (IRC)

08 Early Start Family Resource Network (ESFRN)

09 African American Infant Maternal Mortality (AAIMM)

10 Additional Resources and Programs

Executive Director’s Share: 

Hello Beautiful People! It's Ardena, momma to a Beautiful Black Boy on the Autism Spectrum. JOIN US for in-person Holiday/Kwanzaa Party on Dec 10th See Flyer. PARENT & CAREGIVERS REGISTER FOR PARTY


November is National Epilepsy Awareness Month. Epilepsy is a neurological situation that causes seizures. It is also one of the qualifying developmental disabilities of CA Regional Centers. Let’s learn more about how it affects our community. View the video and visit the resources available. Be sure to access the services provided by your Regional Center. 

 

According to the U.S. Census Bureau and the Centers for Disease Control and Prevention (CDC), 578,000 African Americans have epilepsy or a seizure disorder. Over 25,000 African Americans are diagnosed with seizures or epilepsy each year.

 

African Americans face more challenges when it comes to managing epilepsy than other groups. Work with your healthcare provider – and get a second opinion and third if necessary – you can get the care you need.



As Deavin Arnold-Hadley, an African-American mother from Indiana whose child has epilepsy told the Washington Informer: “I would encourage the Black community to make sure that you have a health care provider that wants to work with you; do not be afraid to speak up and advocate for yourself or a loved one that you care for.”

 

Please visit our Linktree for more information and updates at https://linktr.ee/accessnonprofit

Epilepsy in the Black/

African American community

Legacy Bridges Foundation


The Legacy Bridges Foundation, Inc. is a 501(c)3 non-profit organization established to help individuals and families who suffer with the disease of Epilepsy, the incurable neurological disorder in which abnormal brain activity causes seizures or other unnatural behaviors.

 

We have taken a stance to spread the word of the disease that is affecting millions of lives, to bring hope to those suffering, and partner to find a cure. Our organization is here to offer the Epilepsy community a place of refuge, and tools and resources necessary to maintain a conducive quality of life.

FIND OUT MORE ABOUT EPILEPSY

Information & Resources



Epilepsy Foundation Los Angeles CLICK HERE

Classroom Accommodations for Students with Epilepsy CLICK HERE

CDC: Epilepsy and Building Inclusive Communities CLICK HERE

EPSY: Epilepsy in the African American Community CLICK HERE

Access Nonprofit Center

Upcoming Programs

Please CLICK Here for our calendar of upcoming event

Department of Developmental Services (DDS)

Department of Developmental Services (DDS) has partnered with State Council to provide a statewide orientation and training to all participants and families who are interested in participating in the Self-Determination Program (SDP). The Statewide SDP Orientation is one (1) Module that is two (2) hours in length:

 

Module 1: Self-Determination Program Orientation

  • Define the Self-Determination Program
  • Introduce the Principles of Self-Determination
  • Discuss the steps to join the Self-Determination Program
  • Introduce key roles and parts of the Self-Determination Program
  • Talk about next steps



San Gabriel/ Pomona Regional Center

Community Outreach Department





If you are a parent or caregiver with questions about SGPRC client services, please contact:


Josie Martinez 

Community Outreach Specialists


jmartinez@sgprc.org

(909) 710-8817


Parent's Place

Family Resource Center

Inland Regional Center 

Community Engagement Department


If you are a parent or caregiver with questions about IRC client services, please contact: 


Mari Rodriguez 


Cultural Specialist 

mrodriguez@inlandrc.org

909-890-4781

Early Start Family Resource Network

AAIMM

African American Infant Maternal Mortality

Additional Resources