Warmest Wishes for the Holidays

Dear Friend,

As the year ends, we reflect on the blessings we've shared, especially the connection we have with you.

Thank you for your trust and support. We look forward to another year of making a difference together.

Warmest wishes for a happy and healthy new year,

With gratitude,

The UPA Team

From coming together with our Porphyria family—our beloved Porphamily 💜—for unforgettable events like the inaugural Porphyria Palooza and Sun Escape Weekends, to more intimate connections through online Connect UP groups and the launch of UPA 1:1, we cherished every opportunity to unite as a community.  

The year also brought exciting strides in research, with promising new treatments in development and groundbreaking studies deepening our understanding of porphyria and how best to address it.

Here are some of our most memorable moments from the past year:

Make the future bright for porphyria! Your donation brings us closer to a world free from the pain and challenges of porphyria. With your support, we're advancing quicker diagnoses, enhanced management and greater access to treatments. Please consider making a 2024 donation.

The United Porphyrias Association is a registered 501c(3) and your contribution is tax deductible.

Thank you for your generous support!

Reproductive health is an important topic for individuals with porphyria, raising unique questions and considerations. How can you plan for a healthy pregnancy? What are the safest options for birth control?

Join Dr. Rebecca Karp Leaf, a leading porphyria specialist at the Porphyria Center at Massachusetts General Hospital (MGH), for an informative webinar on Saturday, January 11 at 1:00 PM ET.

Don’t miss this opportunity to learn and ask questions about reproductive health and porphyria!

Dr. Karp Leaf will cover key topics, including:

• Family planning for individuals with porphyria
• Pregnancy care and important precautions
• Safety of fertility treatments
• Birth control options tailored for porphyria patients
• Hormone replacement therapies

This session will focus on acute hepatic porphyrias (AIP, HCP, and VP), but individuals with all types of porphyria are encouraged to attend.

 Add United Porphyrias INSTA, FACEBOOK, TWITTER to your social media feeds.