| eNews: September Edition |
SRF Board Members Bob Saget and Susan Feniger are back hanging out together: they'll be hosting Cool Comedy • Hot Cuisine, a virtual event, on Sunday, October 17th, 2021 at 8 pm ET / 5 pm PT. This year's event will be better than ever, with a new lineup of world-class comedians and musicians, a variety of online auction items, and a Watch Party Tool Kit (coming soon).

It's a night of laughter & inspiration you won't forget,
on Sunday, October 17th, 2021 at 8 pm ET/ 5 pm PT.

Register today and help us end scleroderma together. 
CCHC Online Auction Preview
This year's Cool Comedy • Hot Cuisine online auction promises to have some amazing, one-of-a-kind packages and experiences... and if last year you missed the chance to bid on virtual Zoom experiences with Bob Saget or Susan Feniger, don't worry because you can bid and win them this year! Or if travel experiences, fine art, fine wine, and fine dining are your thing, we've got you covered. You can be one of the first people to preview all the amazing online auction packages and be notified when bidding opens. Sign up now and don't miss out!
News & Updates
Driving Awareness of ILD
This month, the SRF collaborated with eight other organizations to drive awareness of interstitial lung disease (ILD) and to present the first-ever ILD Day on Wednesday, September 15th. In the weeks prior to ILD Day, participating organizations shared information and education via their social media platforms, email, and in a webinar.

ILD can be a complication of systemic scleroderma and about 15% of people living with this disease have ILD. There are more than 200 types of ILD, which is the umbrella term used for a large group of diseases characterized by inflammation and/or scarring in the lungs. The inflammation and scarring injure the lungs, making it difficult to breathe and get oxygen to the bloodstream.
Community Spotlights
Raising Awareness for Scleroderma
Living with scleroderma hasn't slowed Emily down. Find out why people are surprised to hear of her diagnosis and how she serves as an advocate for research to find a cure.
Dionna Honors Her Mother Through Advocacy
Dionna was seven years old when she lost her mother, Donna, to scleroderma. Read more about how she and her family have been relentless advocates for spreading the word on this disease.
SRF Research
Patient Registry Drives Science Forward
Because scleroderma is highly variable in its presentation and severity, the SRF formed CONQUER (COllaborative National QUality and Efficacy Registry), the first nationwide longitudinal registry for scleroderma patients in the U.S. that tracks the development and course of the disease in patients over time. Data from the registry will enable researchers to better understand all forms and levels of severity of scleroderma and to develop new therapies to treat it.

Through intentional collaboration with leading medical institutions, CONQUER is paving the way for new discoveries around effective therapy for patients as we work towards finding a cure to scleroderma.
Making a Difference
Join the Crew Crew Today
Cure Crew members make a real impact on the lives of people living with scleroderma. These dedicated volunteers help to raise awareness, organize innovative fundraising events, and share a belief in the power of research to find a cure.

Visit the SRF Cure Crew webpage to learn more, or tell us how you'll get involved to make a difference!