This precious baby boy is Ryder Comer of Middleton.
His parents Jake & Haley were thrilled to welcome him into this great big world, but they were quickly concerned about his development.
He was hospitalized at 5-weeks old after having trouble breathing, and his mom and dad soon learned he had SMA type 1, a rare and life-threatening genetic condition that impacts his muscles.
They were told his best treatment option was a new, life-saving 2.1 million dollar infusion.
Yes, 2.1 MILLION DOLLARS. It’s the world’s most expensive medical treatment.
It is a staggering price tag. The sooner he received it, the better. He’s the only Idaho baby to have this infusion so far.
Find out how he, and his mom, are now paving the way for other Idaho babies with SMA. They are heroes!