CARE Newsletter
In this issue, you will find upcoming events, news, and work that CARE's partners have been conducting to serve the diverse Asian American, Native Hawaiian, and Pacific Islander (AANHPI) communities.
|
|
CARE Registry:
Giving AANHPIs a Voice Through Research
Currently, AANHPIs are among the least represented groups in scientific research. The goal of CARE is to overcome barriers to research participation and connect AANHPIs to various types of research.
As of July 31, 2022, 9,049 people have signed up to increase AANHPIs' representation in research!
|
|
Some examples of potential research studies that CARE registry participants may be contacted about include:
- Prevention or treatments for Alzheimer’s disease and related dementias
- Health issues across the lifespan
- Caregiving issues and improving the health and wellness of caregivers
*CARE'S WEBSITE AND MATERIALS ARE AVAILABLE IN:
|
Watch our 30 second animated videos in
|
UCSF Asian Health Institute Alzheimer’s Symposium
Part 2: Thursday, August 18, 2022 @ 6:00 – 7:30pm PST
Pearls of wisdom and resources for caretakers of patients with Alzheimer’s disease
|
Both parts will be hosted by Diana Lau, PhD, Director of the Asian Health Institute.
Outstanding speakers include:
-
Xiaorong Ou, PhD of the Alzheimer’s Association, and
-
Mrs. Gwen Kao of the Charles K. Kao Foundation (widow of Professor Charles Kuen Kao who was the 2009 Nobel Laureate of Physics from Hong Kong and also fondly dubbed as the “Father of Fibre Optics”, “Father of Fibre Optic Communication” and “Godfather of Broadband”, and shocked the world when he was diagnosed with Alzheimer’s disease in 2004).
For more details, please view these Bilingual flyer for Part 2.
This event is presented in English and Cantonese.
Registration is required.
UCSF Memory and Aging Center and the Alzheimer’s Association
are CARE community partners.
|
Dr. Van Ta Park Quoted in Everyday Health Article
We are excited to share an article by Everyday Health that quoted CARE's principal investigator, Dr. Van Ta Park. The article emphasizes the association between discrimination and the risk of depression among Americans of color concerning the COVID-19 pandemic.
In addressing the impact of discrimination, Dr. Van Ta Park shared her insights on inclusive data in research. She stated that "a strength of the study has to do with diversity," but "that's a limitation because diversity in the U.S. should include more categories than we typically present in terms of findings."
|
Discrimination Associated With Increased Depression
Regularly experiencing discrimination increases the risk of depression and having suicidal thoughts, according to a new study published in JAMA Psychiatry . Health data and survey results from more than 60,000 people in the United States revealed ...
Read more
www.everydayhealth.com
|
|
|
|
|
Project Next Foundation holds a
Community Public Health Event for CARE
On July 23rd, 2022, Project Next Foundation—based in Irvine, California— hosted a large community public health event to promote CARE Registry and increase awareness towards Alzheimer’s disease and other relevant research.
Project Next Foundation is a CARE community partner who aims to create an exemplary learning community in South California that inspires and empowers Asian American youth to think mindfully and creatively, to act with honor and moral courage, to lead with distinction and to serve with a generous spirit.
|
Project Next Foundation is a CARE community partner. |
The CARE Ambassador program is a volunteer opportunity created by the CARE Registry and is open to high school students, college students, and recent undergrad graduates. Participating as a CARE Ambassador will help leverage community connections and assist the Asian American, Native Hawaiian, and Pacific Islander community to increase research participation and representation. Working as a CARE Ambassador will foster new learning experiences involving hosting virtual events, in-person tabling, and more depending on your capacity. CARE Ambassadors will also have the opportunity to gain skills in community outreach, data management, research, ethics, and team collaboration.
Upon completion of the program CARE Ambassadors will receive a certificate as well as gained knowledge from our online trainings.
|
To apply scan the QR code.
After completion, you will be contacted shortly by our Ambassador team.
|
Caring for the Caregivers: An Alzheimer Disease Research Center Call to Action
|
Dr. Oanh L. Meyer (CARE Co-Investigator) was among the scholars who contributed to a paper published in the journal Alzheimer’s Disease and Associated Disorders. The authors advocated for more engagement and support to dementia family caregivers at the Alzheimer’s Disease Research Centers. Read more here.
|
Caring for the Caregivers: An Alzheimer Disease Research ...
Currently, over 16 million dementia caregivers in the US provide over 18 billion hours of care. As the number of persons living with dementia increases, so too will the number of family caregivers. Given the projected steady growth in caregivers...
Read more
pubmed.ncbi.nlm.nih.gov
|
|
|
|
|
Anonymous Online Form Available in 29 Languages to Report Violence Against AANHPI Elders
|
On September 4, 2021, in remembrance of the Bellingham Riots, National Asian Pacific Center on Aging (NAPCA) will introduce an online reporting form to describe occurrences of violence against older Asian American Pacific Islander (AANHPI) community members. The in-language online report form will be fully anonymous and available in 29 AANHPI languages.
NAPCA is a CARE Community Partner.
|
|
The Asian Cohort for Alzheimer’s Disease (ACAD)
is looking for volunteers!
|
|
Asians are among the fastest growing populations in the United States and Canada, yet they are underrepresented in Alzheimer’s disease research.
The ACAD study is a collaboration across multiple universities and community partners in the U.S. and Canada to better understand how genetics and lifestyle factors impact Alzheimer’s disease risk in Asian Americans and Asian Canadians. Dr. Van Park (CARE Principal Investigator) is one of the principal investigators for ACAD, and UCSF is one of the recruitment sites. This study will be looking for healthy volunteers, people concerned about their memory and thinking, and people diagnosed with Alzheimer's disease who are 60 years old or older.
Edie Yau (Alzheimer's Association) and Quyen Vuong (International Children Assistance Network) (both CARE Community Advisory Board members) also serve on the ACAD Community Advisory Board. Joyce Cheng, Executive Director of the Chinese Community Health Resource Center (also a CARE Community Advisory Board member), is one of ACAD's community partners.
All participants will be compensated for their time and effort.
If you are interested in participating in the study,
|
|
The Vietnamese Insights into Aging Program (VIP) |
|
The Vietnamese Insights into Aging Program (VIP) is a brand-new study funded by the National Institute on Aging and is a collaboration between academic universities (UC Davis and UCSF) and community-based organizations (ARI and ICAN). The purpose of this study is to better understand factors that impact thinking and memory in the Vietnamese American community. Dr. Oanh Meyer (CARE Co-Investigator) is the Principal Investigator (PI) of VIP and Dr. Van Ta Park (CARE PI) along with several CARE Co-Investigators are also involved in VIP.
In January 2022, we will be recruiting volunteers who:
- identify as Vietnamese American
- are 65 years or older
- reside in Northern California
- can speak either English or Vietnamese
- have immigrated from Vietnam
All participants will be compensated for their time and effort.
If you are interested in participating in the VIP study,
Bay Area residents (San Francisco Bay area including San Jose, San Francisco, Oakland, etc.), contact us at ucsfvip@ucsf.edu or (408) 609-9144.
|
|
|
|
I think most of the misunderstandings we had amongst our siblings was because some of the siblings did not fully comprehend the severity of her cognitive impairment.
... I decided to bring in a family member from the Alzheimer's Association. She came in and we invited her to speak with the rest of the family. I think that was really the best thing I’ve done because it wasn’t just another professional but also a family member who had also gone through this illness with her own family member. And that really helped everyone accept mom’s situation and be understanding and be supportive of me.
|
|
If you enjoyed this newsletter, please share it with your friends and family.
If you received this from a friend, click here to subscribe.
|
|
Copyright © 2020 University of California, San Francisco, All rights reserved.
Our mailing address is:
Phone: (669) 256-2609
中文:(510) 402-6306
한국어:(408) 320-7642
Tiếng Việt:(415) 580-0845
|
|
|
|
|
|
|
