Martine Elias, Myeloma Canada's
Executive Director
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"This month I’d like to share with you my observations regarding the influence of Canadian myeloma researchers at the recently held 19th International Myeloma Society (IMS) Annual Meeting this past August in Los Angeles, CA. The meeting was incredibly stimulating; thousands of leading myeloma experts from around the globe convened to discuss the latest data in preclinical and clinical myeloma research.
The future of myeloma research in Canada is exciting, hopeful, and bright! Not only are we at the helm of important breakthroughs, but Canadian researchers and Myeloma Canada are being recognized internationally."
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Surveys: Contribute to research and have your voice heard! |
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I - Share your opinion on a new therapy:
Carvykti (cilta-cel)
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The ciltacabtagene autoleucel (cilta-cel) CAR-T cell immunotherapy, Carvykti, for the treatment of multiple myeloma patients will be evaluated for funding consideration over the next few months. Myeloma Canada is seeking updated information from people impacted by myeloma to assist process by sharing the input you will provide with the review committee. |
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This survey is intended for people living with relapsed/refractory multiple myeloma
and/or their caregiver.
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This survey should only take approximately 10 minutes of your time.
We ask that you please completed it by September 30, 2022, 5:00 PM EST.
Questions? Please email us at contact@myeloma.ca and indicate ‘Survey’ in the subject line.
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II - Virtual consult meeting to better understand life with myeloma |
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A message on behalf of Syneos Health:
One of our partners is seeking your interest in participating in a virtual consult meeting for a pharmaceutical company who wants to better understand the reality of people living with multiple myeloma.
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The deadline to complete the survey is Wednesday, September 28, 2022.
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What's new at Myeloma Canada |
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Your 2022 Multiple Myeloma March update |
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I - Season 14 is going strong!
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If you haven’t already signed up for Myeloma Canada’s 14th Annual Multiple Myeloma March, what are you waiting for?
Have fun while you help raise awareness and critical funds for myeloma. Join a March in your area or participate on your own. Either way, help us continue to make myeloma matter!
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2022 Sudbury Multiple Myeloma March |
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2022 Hamilton-Niagara Multiple Myeloma March |
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2022 Winnipeg (Virtual) Multiple Myeloma March |
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Our collective national goal is to raise $750,000 to support vital myeloma research that will help improve the lives of people living with myeloma, and inevitably, lead to a cure.
Find a city near you and register today.
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Need help? Reach out to Patricia Celestin, Myeloma Canada’s Development and Digital Support Coordinator at pcelestin@myeloma.ca.
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- Direct links to participating communities (and the Virtual March)
- Important online forms
- Media coverage
- Inspiring profiles
- ..and more!
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III - New & improved! Understanding Your Blood and Blood Tests InfoGuide |
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This updated InfoGuide will help you learn more about the different types of blood cells, the effects of myeloma and myeloma treatments on the blood, and the key blood tests involved in diagnosing and monitoring myeloma. It also gives you tips on how to track blood test results.
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Visit the resources section on myeloma.ca for our growing library of publications.
If you would like to order a free printed version of this or any of our other materials, either email us at contact@myeloma.ca or call, toll-free: 1-888-798-5771.
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IV - Myeloma Canada and IMD Health announce partnership to improve quality of patient education |
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On September 13, IMD Health Global and Myeloma Canada announced an important new partnership. This partnership will be invaluable in providing easily accessible, up-to-date digital health education to healthcare providers, patients and their families on the IMD platform.
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IMD Health Global is a Toronto-based eHealth software development company, focused on innovating healthcare education.
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V - Last chance to take advantage of our early bird pricing for Sam’s Monte Carlo Casino Night! |
The 6th annual Sam’s Monte Carlo Casino Night is set for November 5, 2022 at Auberge des Gallant (Qc). To learn more about the casino, click here. |
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Reserve your spot today!
You have until Sept 30th, 2022
to take advantage of our
Early Bird Ticket Package:
$170* per person
(reg. $180 per person)
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Book our free shuttle service when you purchase your ticket!
(Sorry, the Auberge des Gallant's hotel package is sold out and the hotel is fully booked.)
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VI - "Exciting time in myeloma research" - Toronto Star |
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A few months ago, BMS approached Myeloma Canada with an opportunity to raise awareness for myeloma in the Toronto Star. The series focused on various blood cancers and disorders, with myeloma highlighted in September. The article addresses what people face when it comes to managing their disease, including the ongoing potential of relapse.
The online Toronto Star article went live Sept 8th, and was distributed in print on Sunday, Sept 11th.
A special thank you goes out to Myeloma Canada community member and volunteer extraordinaire, Juliette Royer of Guelph Ontario for sharing her insights and story.
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VII - New recipe available in our “Wellness” section
A new recipe card has arrived!
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Gill Compton, Certified Naturopathic Nutrition / Natural Chef, has created a delicious and nutritious Chocolate Orange Avocado Mousse recipe for you. Download it now from our website!
This yummy autumn-spiced dessert contains healthy fats, antioxidants and is simple to make. If you'd like to experiment with different flavours, you’ll find what it takes to prepare orange or raspberry versions too!
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Spotlight on Christiane Oana:
Devoted to finding a cure
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Christiane Oana with her late husband Richard and some family members at the Multiple Myeloma March in 2011. |
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"My husband Richard was diagnosed with myeloma in the spring of 2008. He was 54 years old. At the time of his diagnosis, we knew absolutely nothing about myeloma.
Richard’s journey began when he injured himself by picking up a box. He immediately felt pain in his upper back and after weeks of living in excruciating pain, Richard went to see an orthopedist who requisitioned an MRI. That’s when the tumour on Richard’s spine was discovered. A bone marrow biopsy was done, and Richard was diagnosed with multiple myeloma."
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Myeloma Canada InfoSessions |
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Each year Myeloma Canada hosts InfoSessions for people living with myeloma, their families, and healthcare professionals, featuring guest speakers from the medical community in cities across Canada. InfoSessions are generally half-day events covering many aspects of living with, and managing myeloma.
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Upcoming InfoSessions (in-person):
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Moncton (NB) - in French
Friday, September 23, 2022
4:00 pm - 7:30 pm EST
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Mississauga (ON)
Save the date!
Wednesday, October 26, 2022
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Learning all about myeloma, its treatment, new research and available resources at Myeloma Canada's Patient & Caregiver InfoSession in Thunder Bay (ON) and Vaudreuil-Dorion (QC) last month: |
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InfoSession in Thunder Bay (ON) |
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InfoSession in Vaudreuil-Dorion (QC) |
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Thank you to our excellent speakers for sharing their time
and expert knowledge with the groups!
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Myeloma Canada Meet & Greets |
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Our Meet & Greet events are the perfect opportunity to meet and exchange with others in your local community who are living with, or caring for someone with myeloma. You'll also learn the latest developments in myeloma research and symptom management from local experts.
Living in an area that doesn’t yet have a local support group? Meet & Greets are a great starting point! Very often, they're the springboard from which a support group will be formed, and friendships created.
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Meet & Greet in Lévis (QC), September 2022 |
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Upcoming Meet & Greets (in-person): |
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Saint John (NB)
Thursday, September 22, 2022
3:00 - 5:00 pm EST
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Niagara (ON)
Wednesday, October 12, 2022
6:30 - 8:30 pm EST
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For people living with myeloma and AL amyloidosis, and their caregivers : |
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Hamilton (ON)
Thursday, September 29, 2022
6:30 - 8:30 pm EST
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Red Deer / Spruce View (AB)
Thursday, October 20, 2022
5:30 - 7:30 pm EST
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Join us online from the comfort of your own home!
All you need is a computer, tablet or smart phone and an internet connection.
Full information on upcoming webinars is available in our 'News & Events' section, or by clicking here.
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Save the date!
Exciting new workshop webinars in collaboration with Connected Canadians:
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Getting Help with Technology
September 29, 2022
11:00 - 12:00 pm EST
In French with English translation
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Phishing Scams
November 24, 2022
11:00 - 12:00 pm EST
In French with English translation
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Recognizing Fake News
December 14, 2022
11:00 - 12:00 pm EST
In English with French translation
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This new series provides advice on using social media and digital platforms like Zoom, managing digital documents, and online privacy. |
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All webinars are available for free viewing on
Click on the YouTube logo to access our YouTube channel.
Past webinars:
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Can Exercise Be Good for People with Multiple Myeloma - Dr. Oren Cheifetz, Hamilton Health Sciences (August 2022)
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Amyloid Day in Calgary 2022 – in English
Virtual event from Calgary, Alberta
Thursday, October 20, 2022
5:30 am – 1:30 pm EST
While this conference is tailored to healthcare professionals, patients may also register.
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Andy's ride towards a cure is going strong! |
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It's a grand slam for the
Francine Boucher Memorial Fun Tennis Event!
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Myeloma Canada is here to support you along every phase
of your myeloma journey.
Please consult our website at myeloma.ca for up-to-date news and information,
as well as the following helpful links:
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In these difficult times, you, our community, remain our number one priority.
Now more than ever, we appreciate your support. Your donation enables us to continue
providing you with the best information, resources, programs and services - across as many
technology platforms as possible - to stay empowered, informed and connected, while funding
research to help find a cure for this disease.
Thank you for your generosity and for helping us help you.
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Follow us on social media for the most up-to-date information and resources: |
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Si vous préférez recevoir cette Infolettre en français, écrivez-nous à contact@myelome.ca.
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Myeloma Canada's mission: To improve the lives of Canadians impacted by myeloma through awareness-building, educational efforts, advocacy, fostering an empowered myeloma community and support of clinical research so that a cure may be found.
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