USF Friedreich's Ataxia
Scientific Symposium
Friday, September 24th, 2021
Join the USF Health Ataxia Research Center along with the Friedreich's Ataxia Research Alliance (FARA) for a special interactive symposium focused on advancing therapeutic approaches. The symposium will be held at the USF Health Center for Advanced Learning and Medical Simulation (CAMLS), and it will also be live streamed.

If you wish to attend in person, please click the RSVP button below. There will be valet parking set up outside the main entrance of CAMLS along the E. Brorein St. side of the building.

If you wish to view the live stream (starting at 6:30pm ET), click the Live Stream button below.

Please Note: While in the past we have enjoyed sharing a beverage and hors d'oeuvres with you at the symposium cocktail reception, out of an abundance of caution, this portion of the evening will not take place this year. All attendees will be required to mask at this event. Thank you for understanding.
USF Health Friedreich's Ataxia Scientific Symposium
Center for Advanced Medical Learning & Simulation (CAMLS)
124 S Franklin Street
Tampa, FL 33602
Agenda

6:00 - 6:30pm Registration
6:30 - 6:35pm Welcome
Charles J. Lockwood, MD, MHCM
Senior Vice President, USF Health
Dean, Morsani College of Medicine
6:35 - 6:40pm An Introduction to the USF Ataxia Research Center Team & the Evening-
Theresa Zesiewicz, MD
Director, USF Ataxia Research Center
6:45 - 7:10pm Emerging Therapies Panel- Moderated by
Barbara Tate, Phd Chief Scientific Officer, FARA

A research panel including representatives from the following pharmaceutical companies with new development programs in FA:

  • Design Therapeutics
  • Exicure
  • PTC Therapeutics
7:15 - 7:40pm Clinical Stage Therapies Panel- Moderated by Jennifer Farmer Chief Executive Office, FARA

A research panel including representatives from the following pharmaceutical companies with clinical trials in FA:

  • Larimar Therapeutics
  • PTC Therapeutics
  • Reata Pharmaceuticals
7:45 - 8:10pm Living with FA Panel- Moderated by
Clifton Gooch, MD USF Chair, Neurology Neuromuscular Medicine

  • Bridget Downing- Charleston, SC
  • Gavin Lambert- New Port Richey, FL
  • Christian Maugee- Gainesville, FL
  • Isabel Maugee- Fort Lauderdale, FL
8:10 - 8:15pm Closing Comments- Clifton Gooch, MD
USF Chair, Neurology Neuromuscular Medicine
COVID-19 Health Assessment:
In light of the ongoing spread of COVID-19, individuals who cannot affirmatively respond to all of the categories below should not engage in FARA events and/or other face to face fundraising activities. By attending, you agree that you:

  1. Have not had close contact with a person confirmed or suspected to have COVID-19 in the past 14 days;
  2. Are not currently experiencing any symptoms associated with COVID-19, which include fever, cough, and shortness of breath among others;
  3. Are not waiting for a COVID-19 test result or received a positive test for COVID-19 in the past 14 days;
  4. Have not traveled internationally or to a community in the U.S. that has experienced or is experiencing sustained community spread of COVID-19 within the past 14 days.
  5. Will wear a mask that covers your nose and mouth at this event.

Participants and volunteers agree to report a positive COVID-19 test to FARA at [email protected] within 14 days after participating or volunteering at FARA events.