A social worker finds herself on the receiving end of care when her baby suffers a stroke

BLOOM ~ April ~ 2023

trailblazer

'Trauma doesn't go away, but we learn to grow around it'

A stroke in her healthy baby sparks a series of medical crises for Jennifer Nunes. The social worker writes about being on the receiving end of care.

Woman with long light brown hair smiling with young boy also smiling

parenttalk

A pandemic-related formula shortage threatened my tube-fed son

Can you imagine a family member living with diarrhea for three months because the only liquid food they can tolerate is out of stock? Family leader Marcy White explains.

aroundtheworld

In U.S. counties with more Black doctors, Black patients live longer

This first-of-its-kind study found longer survival among Black Americans even in counties with just one Black primary-care doctor.

growingup

Woman with glasses and hair done in twists smiles.

Youth with disabilities see themselves in new book about sexuality

'Navigating adolescence while having disabilities is difficult as it is,' says Makumbu Lumbu, who identifies as non-binary and queer. 'On top of that, I was questioning my sexuality...'

bookshelf

Pretending to be someone you're not takes a toll on autistic girls

Frankie tries to blend in so kids don't realize she's 'not normal.' Katherine dreams 'of being able to unpeel my skin to show that underneath I was just like them.' Two books detail growing up as a girl with autism.

inthenews

Canada first to develop medical standards to keep kids from suffering from pain in silence The Globe and Mail

Learning-disabled and autistic people are being neglected and tortured. How much longer? The Guardian

'Profound autism' accounts for more than 1 in 4 cases, CDC finds Disability Scoop

Respite suspension at Ont. centre for children with disabilities leaves families high and dry Global News

Why are people with intellectual disabilities clinically vulnerable to COVID-19? The Lancet Public Health

Millions on Medicaid may soon lose coverage as pandemic protections expire The New York Times

My sons understand you without spoken words Essence

'He's a human being': Kayban's visa uncertain because of his disability, mother says ABC Australia

What happened to you? New kid's book challenges intrusive questions on disability Forbes

What a Quebec family saw travelling the world before their children lose their eyesight The Globe and Mail.

Doctors develop first eye chart with characters used in Indigenous languages The Globe and Mail

whatyousaid

'Resilience-boosting approaches' (When resilience is part of the problem) unjustly responsibilize distressed individuals, rather than redress the discriminatory, oppressive social contexts that cause distress.

Franco Carnevale, nurse, psychologist, child ethicist, McGill University

upcomingevents

See Holland Bloorview's Events listing and click on the month for more details.

MAY 10

HUMAN RIGHTS AND RACIAL DISCRIMINATION IN HOUSING

With Lee Web from Canadian Centre for Housing Rights.

10:30 a.m. to 12 noon on Zoom

MAY 12-13

CHILDHOOD DISABILITY (WITHOUT) POVERTY

To explore the intersection of poverty, childhood disability and health outcomes and unite towards influencing systems change across Canada.

9 a.m.-1 p.m. PDT and noon-4 p.m. EDT both days

shoutouts

'Dynamic, daring and disabled'

That's the descriptor for one of the covers of British Vogue's May series, which features disabled activists, athletes, models and artists. Stunning!

Woman with long hair and flowing red dress smiles with arms stretched out.

'It doesn't have to hurt'

From a fear of needles to the pain of stitches, this toolkit provides strategies to minimize a child's pain. Great for professionals and parents.

bookshelf

'Lisette's novel is superbly pitched. The fact of the protagonists being disabled people is central to their identities and the narrative, but the book is not about being disabled. The book is about mystical and eerie events, and takes the readers through universal themes of loss, the...human desire to belong, the meaning of family and what true friendship looks like.' For readers nine to 12.

Disability Arts Online

'From artist and curator Bex Ollerton comes an anthology featuring comics from 30 autistic creators about their experiences of living in a world that doesn't always understand or accept them. Sensory: Life on the Spectrum contains illustrated explorations of everything from life pre-diagnosis to tips on how to explain autism to someone who isn't autistic, to suggestions for how to soothe yourself when you're feeling overstimulated.'

Amazon

Contact BLOOM and share your story:

lkinross@hollandbloorview.ca

Content in BLOOM is not a substitute for professional medical advice. Always consult your doctor.

Views expressed in posts and resources listed do not signify endorsement by Holland Bloorview Kids Rehabilitation Hospital.

You can unsubscribe from these emails at any time by clicking unsubscribe, or by contacting us at lkinross@hollandbloorview.ca. See our Privacy Page for details.

You are receiving this email because you opted in to receive messages from Bloom Holland Bloorview.

Holland Bloorview Kids Rehabilitation Hospital, 150 Kilgour Road, Toronto Ontario Canada M4G 1R8