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VON Durham Hospice Services

Monthly Palliative Care Educational Newsletter

Jan. 2022

Palliative Approach vs End of Life Care

Written by Brenda Derdaele RN, CHPCN(C)

The Canadian Hospice Palliative Care Association indicates that “hospice palliative care is appropriate for any person and/or family living with or at risk of developing a life-threatening illness due to any diagnosis, with any prognosis, regardless of age, and at any time they have unmet expectations and/or needs and are prepared to accept care”. A palliative approach to care and EOL care are part of hospice palliative care but they are distinctly different in the timing of when they are implemented in a person’s illness trajectory.

Palliative Approach to Care:



Focuses on improving quality of life and symptom management. It is an approach to care that can benefit any person living with a life-limiting illness (i.e. Cancer, CHF, COPD, Dementia, Parkinson’s, ALS, etc.)


A Palliative Approach to Care:

  • is person-centered, but also encompasses the caregivers and family
  • encompasses all 8 domains of palliative care
  • should start at time of diagnosis of a life limiting illness
  • focuses on a persons Goals of Care, related to their values, wishes and beliefs
  • is meant to be proactive in management of uncontrolled symptoms, medical and palliative emergencies


Research has found that those who receive an early palliative approach to care have improved quality of life, reduced anxiety, improved pain and symptom management and often live longer. Check out the Better Early Than Late video for more information.


For more information on early identification of patients who may benefit from a palliative approach to care, please review this helpful resource: Early Identification & Prognostic Indicator Guide.

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Palliative Pain and Symptom Management Consultant (Durham Region)


Brenda Derdaele

RN, CHPCN(C)

416-807-1403

Brenda.Derdaele@von.ca

Please contact for healthcare provider educational opportunities, through education sessions (in-person/virtual), guidance, coaching, mentorship and consultation.


Services are free of charge.


Resources:


  1. Canadian Hospice Palliative Care Association (2013). A Model Guide to Hospice Palliative Care Based on National Principles and Norms and Practice, Ottawa, Canada
  2. Pallium Canada (2016). The Pallium Palliative Pocketbook. A peer-reviewed referenced resource (2nd Ed.), Ottawa, Canada
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Additional Resources:


A Model to Guide Hospice Palliative Care: Based on National Principles and Norms of Practice

A Palliative Approach to Care in the Last 12 Months of Life



Ontario Palliative Care Network - Healthcare Delivery Framework

PDF Version

End-of-Life Care:


EOL care refers to care that is provided during the terminal phase and/or last days to weeks of a patient's life. Typically these patients will have a Palliative Performance Scale (PPS) score of 30% or lower.


It is particularly important that a patient's wishes and goals of care (GOC) are addressed and respected during this phase. Therefore, these conversations are best started earlier in a patient's trajectory.


End of life and palliative care focuses on improving the patient's quality of life – helping them manage symptoms and providing emotional, spiritual and practical support for the patient and family.


Everyone is different, so it’s not easy to say exactly what will happen when someone approaches the end of their life. But in the last weeks and days before death, it’s common to experience certain changes. (for additional information)

  • eating and drinking less, difficulty swallowing
  • weight loss
  • feeling weak/sleeping more
  • talking less
  • inability to regulate temperature - feeling hot/cold
  • incontinence
  • breathlessness, noisy breathing
  • may have symptoms such as - pain, nausea/vomiting, restlessness/agitation
  • Delirium



Medications required to manage symptoms, most likely will be changed to subcutaneous route and should be ordered in advanced to be prepared for quick changes.


Not all illness trajectories are the same (i.e. Dementia, COPD, ALS etc.), some have a slower decline. We need understand illness trajectories and look at the complete clinical picture when trying to establish if a patient is approaching EOL.

Upcoming Education:


Feb. 9/2022 Lunch and Learn

Topic: Symptom Management and Use of Symptom Response Kit

Lunch and Learn to be held every second Wednesday of the month via Zoom.

SEND ME AN EMAIL TO REQUEST REGITRATION LINK



Monthly Webinar Series

Jan. 2022 -Topics: "Understanding Palliative Emergencies"

"Pain Assessment and Tools"

SEND ME AN EMAIL TO REQUEST WEBINAR LINKS

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Want more information regarding other Palliative Care topics? Just ask!

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