Making a Difference Together:
What Would Finding a Cure for NF Mean to You?

Year after year, we’ve seen firsthand how advancements in NF research have progressed by leaps and bounds. Through these monumental milestones like the first ever FDA-approved treatment for neurofibromatosis and promising clinical trials coming down the pipeline, you have continued to share your kindness and generosity with the Neurofibromatosis Network. We thank you for continuing to be here for us as we are here for you. Learn how we can work together to make a difference and see what a cure for NF would mean for our community.


Dr. Gutmann Elected to National Academy of Medicine


Dr. David Gutmann, founder of the Washington University NF Center and NF Hope Concert Advocate of Hope Award Winner, was recently elected to the National Academy of Medicine. This election is one of the highest honors for contributions to health and medicine.

NF1 Cutaneous Neurofibroma Consortium Project


PolyGenRX, in partnership with The University of Newcastle and several NF1 researchers, is conducting a new NF1 project. Adults with NF1 are invited to participate in the NF1 cutaneous neurofibroma (cNF) consortium project. Findings will aim to understand the root cause of these tumors and potential treatment options for cNFs.

GivingTuesday: What It Is and How You Can Help the NF Community


After a holiday of gratitude and time spent with loved ones, GivingTuesday is a global movement to remind us that gratitude can go beyond expressing what we are thankful for. You can make a difference by joining in the celebration and worldwide day of giving and giving back.
Moms Rock: Melanie is a Mom on a Mission


Melanie Leach is the definition of strength and endurance. When her son Zac was diagnosed with neurofibromatosis, she immediately jumped into action to get the answers and care he needed, even as new medical curveballs were thrown their way. Seeking support and resources, Melanie found a home within the NF Network and continues to share her insight and story to support the Florida community and beyond.
Upcoming Events
NF Central Plains' Camp Christmas
Saturday, December 3rd
The mission of the NF Network is "to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."

Will you join with us?