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THE DUCT
A Monthly Newsletter for the PSC Community
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Ricky and Don Safer, co-founders of PSC Partners Seeking a Cure, recently got miles in for WALK83.01 for PSC by kayaking. How are you getting in your miles? There's still time to support this FUN fundraiser, which runs through September 30th. See information below. |
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There's Still Plenty of Time to Get Involved in
WALK83.01 for PSC
Fundraiser runs through September 30th!
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We just passed the halfway mark in the WALK83.01 for PSC fundraiser. Wow! Thank you to everyone who has contributed and/or participated, so far. With 100% of money donated to this fundraiser going to PSC research, this amount will fully cover the cost of a two-year research grant!
Our goal in 2022 is to fund TWO, two-year projects. Won't you help? Your contribution in any amount, whether it's $5, $20, $83.01, $1,000, or another amount that feels comfortable to you will make a HUGE difference in our search for treatments and a cure for PSC.
You can also register to participate in WALK83.01 for PSC and ask others to support you in your effort to walk (run, paddle, pedal, etc.) 83.01 miles. (133.5 km).
Thank you!
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COMPLETE
PSC Partners Annual Conference
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Your opinion matters as we plan for our upcoming 2023 Annual PSC Partners Conference. Please take two minutes to complete our very brief survey by clicking the button above. Thank you very much!
DEADLINE: Monday, August 22, 2022
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The PSC Partners Scientific/Medical Advisory Committee |
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Every year, PSC Partners puts out a call for grant applications for research addressing important and novel, basic, or clinical research questions related to PSC and closely associated diseases, such as inflammatory bowel diseases (IBD) and cholangiocarcinoma (CCA).
Have you ever wondered how we decide which projects to fund? Annually, our volunteer team of experts who make up our Scientific/Medical Advisory Committee (SMAC) review every submitted grant application and recommend projects to support. Based on their recommendations, the PSC Partners Board of Directors makes the final decision. We are grateful for the time and expertise of the SMAC members as we work together to find treatments and a cure for PSC.
We recently received applications for this year's funding cycle, and we will be announcing the newest PSC Partners-funded projects this fall.
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"I was so happy to be part of the group on Zoom. This was the first time I had interaction with people with PSC. It was nice, because it was a small, relaxing meeting."
-- PSC Patient and ZoomRoom Attendee
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REGISTER FOR AN UPCOMING
PEER-TO-PEER SUPPORT ZOOMROOM
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PSC Partners ZoomRooms provide peer-to-peer support for our community. People who have attended in the past keep coming back, because they know these virtual gatherings are a great place to chat with others who truly understand.
ZoomRooms take place at 6 p.m. MT (5 p.m., PT, 7 p.m. CT, 8 p.m. ET.)
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The learning and collaboration continue!
REGISTER FOR UPCOMING
POST-CONFERENCE WEBINAR
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The PSC-IBD Connection
Check out the recording of the second webinar in our post-conference educational series.
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Approximately 80% of people with primary sclerosing cholangitis (PSC) also have inflammatory bowel disease (IBD), either ulcerative colitis or Crohn's disease. Our experts discussed the connection between PSC and IBD. Included is an extremely informative Q & A panel discussion.
Speakers:
Josh Korzenik, MD, Brigham and Women's Hospital
Joel Pekow, MD, University of Chicago
Moderator:
David Assis, MD, Yale University School of Medicine
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Welcome to Sandi's
Circle
Sandi Highlights the Importance of
Fundraising for PSC Partners
Sandi understood the importance of the entire community getting involved in PSC Partners fundraising efforts. She spoke of it often in her writings.
"We ask PSCers all over the world to step up and spread awareness and (fundraise) to let the world know we're here and that we're raising funds for a cure! The fantastic news is that we've got research grants just waiting to be funded and some of the most amazing scientific minds in the world ready and willing to delve into PSC and study the heck out of it. The even more fantastic news is that every single penny helps, and FUNdraising can be done by anyone of any age. And, when we do it together, all over the world, wow, what a difference we can make!"
Folks who have been in the PSC Partners community remember Sandi Pearlman as a bright, positive light. Her insight, humor, and supportive presence were a real gift to those who knew her.
In this space, we share words of encouragement from Sandi and others.
Due to space limitations, not all submissions can be added, but we invite everyone to use this space to encourage folks in the PSC community.
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Online Shopping? Your purchases can result in funds for PSC Partners. It's true!
Log into Amazon via AmazonSmile. It takes you to the exact same site, but, by selecting PSC Partners as your designated charity, a percentage of your total purchase price is donated to us at no extra cost to you. Click here to learn more about this program. Thank you, and happy shopping! |
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Our Mission: PSC Partners Seeking a Cure is to drives research to identify treatments and a cure for primary sclerosing cholangitis (PSC), while providing education and support for those impacted by this rare disease.
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6900 E. Belleview Ave., Ste 202,
Greenwood Village, CO 80111
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