Today is the 2nd annual International Hypothalamic Hamartoma (HH) Awareness Day! We are excited to mark 2021 with this important milestone for those we serve in the HH community.
Help us spread awareness of this rare disease! Our goal is to improve the quality of life of people living with hypothalamic hamartomas (HH). Although generally characterized by rare gelastic (laughing) seizures, those living with HH understand it is more than an epilepsy syndrome. The comorbidities associated with HH include endocrine dysfunction, psychiatric conditions, cognitive impairment, and sleep disturbances. Working together with the HH community we can positively impact those living with this complex and rare syndrome by raising awareness, educating our communities, and pushing for more research.
We ask that you, our HH community, embrace this international awareness initiative TODAY and throughout the month of September.
Working together we'll ensure those with HH continue to have a voice!
