June 2020: Weekly Patient Resources

Dear Patients, Family Members, and Caregivers: The outbreak of coronavirus (COVID-19) has become stressful for many people. You may find yourself overwhelmed with the amount of information coming out from multiple sources. IPRO ESRD Network of New York would like to share some important patient education resources that might be helpful for you, your family, friends, caregivers or others in your community.

Visit Our Website for More COVID-19 Resources/Information

COVID-19 Patient Resources

Kidney Hub :  ESRD National Coordinating Center (ESRD NCC) has created an internet "hub" for patient education information, their ESRD NCC Patient Web Tool, to help people find resources created by patients for patients. It's major subsections include COVID-19. transplant, home dialysis, infection prevention, well-being, new patient information, and the Kidney Community Emergency Response Coalition or KCER.  Palliative Care and COVID-19 : The COVID-19 pandemic presents a severe healthcare crisis. Those most at risk from the virus — the elderly, frail, and/or those with underlying serious health problems — are the exact patient population that palliative care is designed to serve. Health Resources & Services Administration: Resource Page Find a Health Center HRSA and COVID-19 COVID-19 Claims Reimbursement to Health Care Providers and Facilities for Testing and Treatment of the Uninsured

Mental Health Resources Combating Social Isolation, Stress, Anxiety, Telehealth and .....More!

New York State Office of Mental Health COVID-19 Mental Resources OMH Emotional Support Helpline: 1-844-863-9314 The Emotional Support Helpline provides free and confidential support, helping callers experiencing increased anxiety due to the coronavirus emergency. The Helpline is staffed by volunteers, including mental health professionals, who have received training in crisis counseling.  Tips for Mental Wellness During COVID-19: The outbreak of COVID-19 around the world has led to the spread of fear and panic for individuals and communities. In addition to following physical precautions guidelines, individuals should be taking care of their psychological well-being Mental Health Resources During an Emergency: People often experience anxiety, fear, and helplessness during an emergency. Know the signs and get help. Reminders When Coping With Grief: List of Reminders for people processing COVID-19 grief. Ten Tips for Helping Others Grieve: Coping with grief during the coronavirus emergency.

Click here for more information from the New York State Office of Mental Health

Network Educational Resources

Dialysis Facility Compare Dialysis Facility Compare was created by the Centers for Medicare and Medicaid Services (CMS) and provides information on more than 7,000 facilities throughout the United States. It allows patients or caregivers to compare potential dialysis facilities based on the following criteria: How well the facility care for their patients How often the dialysis centers follow best practices How effective are these facilities in keeping their patients healthy How patients feel about their healthcare experience at these facilities Click Here to Learn More About Dialysis Facility Compare

Vascular Access Patients with end-stage renal disease (ESRD) receive hemodialysis treatment. Dialysis is a medical process that r emoves waste and extra chemicals and fluid from a person's blood.  During dialysis,  blood goes into a needle and travels through a tube into a dialyzer. Once the blood is in the dialyzer, it flows through thin fibers. These fibers filter out wastes and extra fluid. Once completed, the blood travels through the machine and back into the patient. This process continues until the end of the dialysis treatment Click Here for Learn More About Vascular Access

The IPRO ESRD Network of New York team is available to offer you support 24-hours, 7-days a week. Please call our dedicated COVID-19 Hotlines. Patients: 516-209-5626 or Providers 516-209-5578 to discuss positive cases, concerns/needs, reporting questions, or to request support/resources.  We are also accessible to provide technical assistance or guidance during this public health emergency. Visit the Network's website for up-to-date information on CMS and CDC guidelines, alerts, educational resources, and stakeholder webinars.

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IPRO ESRD Network of New York 1979 Marcus Avenue, Suite 105, Lake Success, NY 11042 Main: 516-209-5778 | Fax: 516-326-8929 ESRDNetwork2@ipro.us | https://network2.esrd.ipro.org/