- VOLUNTEER OF THE MONTH
- YOU DID IT!
- RESEARCH ADVOCACY UPDATE
- TEAMCCF UPDATE
- AWARENESS STORE
- VOLUNTEERS NEEDED
- UPCOMING EVENTS
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Each month we will recognize those whose contributions inspire us and who demonstrate excellence in their service to others. This award was created to thank those outstanding individuals and to bring to light the immense efforts, time and resources that are generously given to the Foundation.
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Dave Dougherty has been actively volunteering with CCF since 2017. He volunteers because of Barbara Dougherty, his sweetheart of 43 years. After Barbara’s aggressive chemotherapy in 2016 her tumor shrank and doctors thought they could perform a resection. After an hour and a half into the surgery, the procedure was deemed too dangerous to continue. It was during Barbara’s home care that the Dougherty’s became connected to CCF through a mentor’s phone call. Barbara passed away in December of that year, after an extremely brave battle. Months passed, days were difficult, yet Dave remembered how extremely kind and caring everyone was at CCF. Dave decided to stay connected to CCF and got involved.
Dave wants to share hope with other patients who are suffering, and he knows Barbara would want the same! He recognizes cholangiocarcinoma patients need all the support they can get. Not only involved with TeamCCF, Dave has opened his home to patients seeking treatments in his area, many times, as well as hosting CARE Team members. His home was their home. Additionally, Dave plans to serve as an annual conference volunteer.
Meredith McGuffage, TeamCCF Coordinator, shares “
Dave Dougherty is an integral part of the cheer team at the Chicago Marathon. Dave is the first to arrive the morning of the race and the last to leave. He delivers and sets up the enormous TeamCCF tent, provides food, hot chocolate, hot cider and lots of laughs. He is the heart and soul of the cheer team!”
While Melinda Bachini, Patient Advocacy Coordinator, adds “Dave is a true angel! I first met Dave in October of 2017, when the CARE Team first visited Chicago for the Chicago Marathon and awareness events. He took us under his wing and made sure we were well cared for. As a retired Chicago police officer, he guided us to the appropriate locations to participate on Charity Row, not to mention providing a tent, chairs, water and snacks! He has served as a guide for the last three years. He has cheered on Team CCF with passion each year! He has shared his experience and the loss of his wife so that others may benefit from his story. He generously took in one of the CARE Team members, when she joined a clinical trial in the Chicago area and had to travel from New York. He opened his home to her family and accompanied them, driving them to many appointments. He has the best smile, jokes and hugs and it is an honor to know him! Thank you Dave for all that you have done to serve and benefit the cholangiocarcinoma community!” It is a great honor and privilege to recognize Dave Dougherty as Volunteer of the Month.
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Michael and Andrea participate on a patient panel during AWARE for All - Phoenix.
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"Had a great experience December 5th with Andrea Parrella participating on a panel set up by CISCRP called " AWARE for All " here in Phoenix. Sharing both our experience with trials and connection with CCF and other great resources. All to spread more awareness to Cholangiocarcinoma." - Micheal Carrel.
AWARE for All – Phoenix is a free program that aims to educate and empower the public in making informed decisions about clinical research. This event includes free health screenings and food, informational exhibits that feature community organizations and research centers, local physician and patient speakers, a ceremony to honor clinical research volunteers, a raffle and lots of fun giveaways.
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The Research Advocates end 2019 with some remarkable accomplishments
The CCF Research Advocate Team experienced a year filled with learning and advocating. The group is made up of over 30 patients, caregivers and friends of CCF.
Our Director, Melinda Bachini, organizes and provides the team with monthly training meetings, exposing them to what is new in the world of cholangiocarcinoma. Our dedicated advocates represent over 17 states and Canada.
Here is a recap of their accomplishments:
- dedicated over 600 hours to learning and advocating
- attended conferences and advocated in 14 states
- advocated in Beijing, China, Monterrey, Mexico, Delhi, India, Bangalore, India and Scotland
- represented the patient/caregiver perspective with Industry
- served on advisory boards, patient perspective boards and committees
- involved on the state and federal level in advocacy and policy change
- presented CCF at local and community hospitals
- presented at conferences and symposiums
Some favorite memories of advocates during 2019:
“Watching Stacie and Melinda in action during a meeting with Industry”
“Attending the conference and realizing I’m not alone”
“Having my husband's doctor attend the conference for the first time”
“Walking the halls on Capitol Hill and advocating for cholangiocarcinoma”
“My memory is a feeling of overwhelming gratitude for the CCF and feeling like I found a home and family at the conference”
The Research Advocates are looking forward to 2020 and setting goals to exceed this year's goals. We are thankful for all of our volunteers and advocates who selflessly give of their time and talent.
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TeamCCF had a great 2019! We had over 52 athletes sign-up and raise over $120,000!
If you would like to join one of our existing teams including the Bank of America Chicago Marathon, the New York City Marathon or the Chicago Half Marathon or run a race in your hometown, send an email to
meredith.mcguffage@cholangiocarcinoma.org
.
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Stacie Lindsey cheers on TeamCCF at this year's Chicago Marathon.
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Long sleeve t-shirts and sweatshirts on sale all week
January 12 -18th
No code needed
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Purpose: CholangioConnect Mentors offer encouragement. Mentors help others through difficult periods of diagnosis, treatment, and when needed, palliative care which can be extremely stressful and confusing.
Mentors are cholangiocarcinoma survivors, patients, caregivers, family members or friends of cholangiocarcinoma patients. The service is free and is intended to offer support, not to give medical advice or recommendations. Any information shared between mentors and patients concerning treatments, medications or therapies should be discussed with a physician.
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Key Responsibilities:
- Creates personalized connections that enable one-on-one support among cholangiocarcinoma fighters, survivors and caregivers;
- Builds peer-to-peer connections and helps anyone touched by cholangiocarcinoma, at any stage in their journey.
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Awareness Month Volunteers
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February 1, 2020 will begin CCF's month long awareness campaign, with Feb. 12th marking World Cholangiocarcinoma Day. CCF plans to have many buildings lit green to spread awareness. CCF needs volunteers willing to email and write local businesses, hospitals, offices, city councils and statehouse representatives to seek permission to light local buildings green. If you have an interest in this project, please email
cindy.thomas@cholangiocarcinoma.org
for details.
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Inaugural
Quack Out Cholangio to Crush Bile Duct Cancer
will be held on Saturday, March 28, 2020 in Wilmington, Delaware at the HARE Pavilion. Registration is now open. See
Quack Out Cholangio 5K Run/Walk
for more details.
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